PeerGalaxy Original Calendar
Welcome to PeerGalaxy Calendar featuring over 336,800+ monthly offerings of FREE telephone- and online-accessible peer support, recovery support, and wellness activities! Plus 50+ warmlines, helplines, chatlines, and hotlines. Plus workshops, webinars, job postings, resources, observances, special events, consumer input opportunities and more.
WE ARE PEER FOR YOU!
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If you have an event to add, email us: [email protected]
Training Opportunities in July 2020
List Provided Courtesy of State of Oregon, Oregon Health Authority
Click here to download PDF Format, 16 pages
Calendar Event Sorting
At the top, the 24/7/365 SAMHSA Disaster Helpline and similar links.
Next, Bundled “All Day” Events
Some organizations (like 12 step recovery programs, AA, NA, AlAnon, etc.) have so many events happening throughout the day that they need to be in a bundled listing to spare endless scrolling. Often there is a link to look up events by zip code and other criteria.
Lastly, Time-Specific Events
So you can see what’s happening in the next hours, time specific events are tagged and listed by start time from 12:01am early morning to 11:59pm late night. There can be events and warmlines operating in different time zones, though we try to list all in Oregon’s Pacific Time Zone.
Page Advancement
The calendar displays ~50 listings per page. To advance to next page with ~50 more listings, click the right arrow in the lower left corner of the calendar
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
Spinal Muscular Atrophy (SMA)
Awareness Month
August 2026 (event times shown in PST)
Spinal Muscular Atrophy (SMA) Awareness Month takes place each August to build understanding of this progressive neuromuscular disease and to spotlight the research, treatment, and community support available to people living with SMA and their families.
Cure SMA, the Muscular Dystrophy Association, Spinal Muscular Atrophy UK, SMA Australia, Cleveland Clinic, Practical Neurology, and Squirmy and Grubs are sharing free virtual social events, expert-led webinars, podcasts, and video resources throughout the month.
Cleveland Clinic
Cleveland Clinic is a nonprofit academic medical center providing patient care, research, and education across many specialties, including neurology. Its Neuro Pathways podcast features Cleveland Clinic physicians discussing current research and treatment advances in neurological and neuromuscular conditions.
On-Demand Resources
Spinal Muscular Atrophy: Progress Continues Against a Grave Neuromuscular Disorder
Type: Podcast (Neuro Pathways)
Duration: 28 minutes
Cleveland Clinic pediatric neurologist Dr. Alexandra Bonner discusses SMA genetics, subtypes, newborn screening policy, and current and emerging treatment options.
Cure SMA
Cure SMA is a U.S. nonprofit founded in 1996 whose mission is to drive research for treatments and a cure for spinal muscular atrophy and to support and empower everyone affected by SMA. The organization funds SMA research and provides community, educational, and advocacy programs for patients and families nationwide.
Virtual Events & Meetings
SMA Awareness Month Candle Lighting
A decentralized, community-led commemoration in which people affected by SMA light candles at local sunset and share photos on social media using #SMAawarenessmonth; commemorative candles are available through the Cure SMA Shop.
Time: At local sunset (participation is decentralized; no single fixed PST start time)
Date(s): Saturday, August 8, 2026
Format: Virtual (community participation via social media)
Platform: Social Media — @CureSMA — Awareness Month Hub
On-Demand Resources
Adaptive Recreation Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, in which community members share firsthand experiences with adaptive recreation.
Access: https://www.youtube.com/watch?v=nV3U89uU6-c
Adaptive Sports & Recreation Virtual Resource Fair
Type: Recorded Resource Fair & Panel Discussion
Duration: 1 hour
A Cure SMA resource fair and panel discussion, sponsored by Novartis, showcasing adaptive sports and recreation programs available to the SMA community.
Access: https://www.youtube.com/watch?v=tVOrSiYmpSk
Adaptive Sports Panel Webinar
Type: Recorded Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Novartis, featuring community members discussing their participation in adaptive sports.
Access: https://www.youtube.com/watch?v=FOrZPRhiBj0
Going Away to College Panel Webinar
Type: Recorded Panel Webinar
Duration: 1 hour
A Cure SMA panel, sponsored by Scholar Rock, on preparing for and navigating the transition to college with SMA.
Access: https://www.youtube.com/watch?v=sLbjzuq5mRs
“Lift Me Up” — SMA Awareness Month Theme Song
Type: Music Video
Duration: 4 minutes
The official SMA Awareness Month theme song, performed by Lachi, Gaelynn Lea, April Rose, and James Ian (an adult living with SMA), released through RAMPD Records.
Access: https://youtu.be/zmr4H9NpTKk
SMA Podcast Recommendations Playlist
Type: Curated Podcast Playlist
Duration: Ongoing curated collection
A Cure SMA–curated Spotify playlist of community-recommended podcasts covering SMA and disability topics.
Access: https://open.spotify.com/playlist/7GQyrfGwgtDxtvFGs4G7xc
Muscular Dystrophy Association (MDA)
Muscular Dystrophy Association (MDA) is the leading U.S. nonprofit for people living with muscular dystrophy, ALS, and more than 300 other neuromuscular conditions, including SMA. For 75 years, MDA has funded research, provided clinical care, and offered community education and support for the neuromuscular disease community.
Virtual Events & Meetings
Spotlight On: Spinal Muscular Atrophy
An MDA Virtual Learning webinar offering community education on current SMA research, treatment, and care.
Time: 9:30 AM–12:00 PM, PST
Date(s): Tuesday, August 25, 2026
Format: Virtual
Platform: Zoom Webinar — Register · Event Page
Practical Neurology
Practical Neurology is an open-access, peer-reviewed publication launched in 2002 to provide neurology professionals with practical reviews of research and treatment advances. Its podcast series, Amplifying the Patient Journey, explores patient perspectives on living with neurological conditions.
On-Demand Resources
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Type: Podcast (Amplifying the Patient Journey)
Duration: 36 minutes
Andrew Cherico and Dr. John W. Day of Stanford University discuss genetic testing, therapy options, and the patient experience of living with SMA.
Access: https://podcasts.apple.com/us/podcast/amplifying-the-patient-journey/id1716363809
SMA Australia (Spinal Muscular Atrophy Australia Inc.)
SMA Australia has supported patients, families, and communities affected by spinal muscular atrophy for over 20 years with best-practice care information and resources. The organization provides screening, treatment, and living-with-SMA guidance for children, teens, and adults.
On-Demand Resources
SMA Australia Podcast
Type: Podcast Series
Duration: 46 minutes per episode (published episode count not available; per-episode duration applied)
An ongoing audio series covering life with SMA, community stories, and resources from the Australian SMA community.
Access: https://podcasts.apple.com/nz/podcast/sma-australia/id1465534907
Spinal Muscular Atrophy UK (SMA UK)
SMA UK is a UK charity committed to ensuring everyone affected by spinal muscular atrophy has access to the best care, support, and treatment. The organization runs community programs, grants, and health information services for SMA families across the UK.
Virtual Events & Meetings
SMA Social: Cards Against Humanity (Online)
A biweekly virtual social event on Zoom for adults living with SMA, hosted by SMA UK community members.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 15, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
SMA Social: Virtual Pub Night
A virtual social event on Zoom for adults living with SMA to connect over shared pub games and conversation.
Time: 12:00 PM, PST (8:00 PM local UK time)
Date(s): Saturday, August 29, 2026
Format: Virtual
Platform: Zoom — Join details on the SMA UK events page
On-Demand Resources
Zolgensma Treatment Updates
Type: Recorded Webinar
Duration: 1 hour (runtime not published)
SMA UK health professionals Elizabeth Wraige, Jennie Sheehan, and Laurent Servais discuss the UK Zolgensma programme and related treatment updates.
Access: https://smauk.org.uk/treatment-updates-health-profs
Squirmy and Grubs
Squirmy and Grubs is the YouTube channel and platform of Shane Burcaw, who lives with SMA, and his wife Hannah Aylward, reaching more than 800,000 subscribers. Their videos combine humor and education to build public understanding of disability, ableism, and life with SMA.
On-Demand Resources
Squirmy and Grubs — YouTube Channel
Type: Video Series
Duration: 45 minutes per video (channel-wide video count not published; per-video duration applied)
An ongoing vlog and video series documenting daily life, an “inter-abled” relationship, and disability advocacy from the creators’ perspective.
Access: https://www.youtube.com/@SquirmyandGrubs/videos
General & Cross-Cutting Resources
Crisis & Immediate Support
988 Suicide & Crisis Lifeline · Free, confidential support available 24/7 by call, text, or chat.
Disclaimer: This listing is shared for community information only. The offerings are organized and hosted by the listed organizations, not by PeerGalaxy. Details such as dates, times, availability, and access links are subject to change — please confirm with the relevant organization before attending or applying.
International FND Awareness Month
April 2026
“You are not alone. Connect, learn, and find support throughout April and beyond.”
April is International FND Awareness Month, recognized worldwide each year to raise understanding of Functional Neurological Disorder — a condition where the brain has trouble sending and receiving signals, causing symptoms such as functional seizures, weakness, tremor, gait problems, sensory changes, and chronic pain. Below is a roundup of free, virtual peer support groups, helplines, podcasts, and trusted information resources available throughout April 2026.
FND HOPE INTERNATIONAL — PEER SUPPORT GROUPS & EVENTS
FND Hope International hosts a monthly calendar of free virtual peer support groups, creative wellness sessions, and educational gatherings for people living with FND, their families, and care partners. View the full calendar at fndhope.org/events. All times listed below are converted to Pacific Time (PT).
Aussie FND Peer Support Group
Safe online space for people experiencing FND in Australia and beyond. Wednesday, April 1, 8:00 PM – 9:00 PM PT (March 31 in PT zones, listed AEST). Register via the FND Hope events calendar. Register through the FND Hope events calendar. FREE.
Art Journaling for Wellbeing — Mondays
Use mindfulness and creative journaling to process the experience of living with FND. Meets every Monday in April — April 6, 13, 20, 27, 3:00 AM – 4:00 AM PT (UTC+1). Register through the FND Hope events calendar. FREE.
Art Journaling for Wellbeing — Fridays
Friday session of the Art Journaling group for FND community members. Meets every Friday in April — April 3, 10, 17, 24, 11:00 AM – 12:00 PM PT (UTC+1). Register through the FND Hope events calendar. FREE.
FND Young Adult Peer Support Group
Welcoming peer space for young adults living with FND. Meets Monday, April 6 and Monday, April 20, 1:30 PM – 2:30 PM PT. Register through the FND Hope events calendar. FREE.
Canada Peer Support Group
Safe online setting for those diagnosed with FND in Canada — families, friends, and care partners welcome. Tuesday, April 7, 11:30 AM – 1:00 PM PT. Register through the FND Hope events calendar. FREE.
Cookfulness Classes for the FND Community
Mindful cooking classes designed for people in the FND community to rediscover the joy of food while honoring energy limits. Session 2 (Mastering The Batch) Thursday, April 9, 8:40 AM PT. Session 3 (The High-Five Bowl) Tuesday, April 14, 9:00 AM – 10:00 AM PT. Session 4 (Mindful Munching) Wednesday, April 29, 12:00 PM – 1:00 PM PT. Register through the FND Hope events calendar. FREE.
USA Peer Support Group
Online peer group for U.S.-based individuals diagnosed with FND. Families, friends, and care partners welcome. Thursday, April 9, 4:00 PM – 5:00 PM PT. Register through the FND Hope events calendar. FREE.
Book Club with FND Hope
Discuss books chosen by community members in this welcoming reading group. Monday, April 13, 12:00 PM – 1:00 PM PT. Register through the FND Hope events calendar. FREE.
High Tea with FND
A space for those with FND to connect, learn, and support each other over tea. Tuesday, April 14, 7:00 AM – 8:00 AM PT (BST). Also Tuesday, April 28, 7:00 AM – 8:00 AM PT. Register through the FND Hope events calendar. FREE.
LGBTQIA+ FND Peer Support Group
FND Hope International welcomes LGBTQIA+ adults living with FND for peer connection. Wednesday, April 15, 5:00 PM – 6:00 PM PT. Register through the FND Hope events calendar. FREE.
USA/Canada Peer Support Group
Online group for North American FND community members. Saturday, April 18, 8:00 AM – 9:00 AM PT. Register through the FND Hope events calendar. FREE.
Functional Seizure Peer Support Group
Peer group for individuals diagnosed with functional (dissociative) seizures. Sunday, April 19, 1:00 PM – 2:00 PM PT. Register through the FND Hope events calendar. FREE.
Care Partner / Caregiver Support Group
Safe online setting for care partners and caregivers of those diagnosed with FND. Thursday, April 23, 4:00 PM – 5:00 PM PT. Register through the FND Hope events calendar. FREE.
Men’s FND Peer Support Group
Virtual peer support group designed specifically for men living with FND. Sunday, April 26, 11:00 AM – 12:00 PM PT. Register through the FND Hope events calendar. FREE.
Teen FND Support Group
Online group for teens with all symptoms of Functional Neurological Disorder. Monday, April 27, 5:00 PM – 6:00 PM PT. Register through the FND Hope events calendar. FREE.
New to FND
Orientation group for those newly diagnosed with FND or care partners new to the condition. Tuesday, April 28, 7:00 AM – 8:30 AM PT. Register through the FND Hope events calendar. FREE.
NOT DEFINED BY FND — FND EMPOWERMENT CIRCLE
The FND Empowerment Circle is a free virtual support group hosted by Not Defined by FND for FND warriors and their supporters. April theme: Growth and Renewal — Embracing Change. Learn more at notdefinedbyfnd.org/fnd-empowerment-circle.
FND Empowerment Circle — Thursday Morning Session
Monthly support circle for those affected by FND. Thursday, April 2, 8:00 AM PT (11:00 AM EST). Join via Zoom or RSVP through Zeffy. FREE.
FND Empowerment Circle — Saturday Evening Session
Monthly evening support circle. Saturday, April 25, 5:00 PM PT (8:00 PM EST). Join via Zoom or RSVP through Zeffy. FREE.
ONLINE COMMUNITIES & FORUMS
FND Hope International — Public Facebook Page
Open Facebook page sharing FND news, events, and peer encouragement. Available 24 hours a day · 7 days a week. Visit facebook.com/FNDHOPE. FREE.
FND Hope — USA & Canada Closed Facebook Group
Closed Facebook support group for FND community members in the U.S. and Canada. Free to join with admin approval. Available 24 hours a day · 7 days a week. Request to join at facebook.com/groups/1581750502109806. FREE. [VERIFY: confirm free open access]
FND Action UK — Facebook Support Group
Facebook support community hosted by UK charity FND Action for individuals with FND, caregivers, and loved ones. Available 24 hours a day · 7 days a week. Join at facebook.com/groups/fndaction. Details on all FND Action online groups: fndaction.org.uk/online-support-groups. FREE. [VERIFY: confirm free open access]
Not Defined by FND — Hope for Warriors Facebook Group
Private Facebook community connecting FND warriors and supporters. Available 24 hours a day · 7 days a week. Request to join at facebook.com/groups/936091437866143. FREE. [VERIFY: confirm free open access]
HealthUnlocked — FND Hope Forum
Public peer-to-peer discussion forum hosted on HealthUnlocked, supported by FND Hope. Post questions, share experiences, and read others’ stories. Available 24 hours a day · 7 days a week. Visit healthunlocked.com/fndhope. FREE.
ON-DEMAND PODCASTS — LISTEN ANYTIME
The FND Society Podcast
Educational podcast tailored for clinicians, researchers, and FND community members covering neuroimaging, biomarkers, diagnosis, treatments, and outcomes. 21 publicly available episodes hosted by Erica Cotton. Available 24 hours a day · 7 days a week. Listen at fndsociety.org/resources/podcasts/the-fnd-society-podcast or directly via Apple Podcasts, Spotify, or Buzzsprout. FREE.
FND Society — Other Podcasts (Conference Recordings & Interviews)
Curated collection of podcast episodes from FND Society conferences, member interviews, and feature topics including patient voices, functional tremor, dissociative seizures, imaging in FND, and FND history. Available 24 hours a day · 7 days a week. Listen at fndsociety.org/resources/podcasts/otherpodcasts. FREE.
ADDITIONAL RESOURCES
FND Hope International (main site) — fndhope.org — Patient-led nonprofit empowering people with FND through education, peer support, and advocacy.
neurosymptoms.org — A Patient’s Guide to FND — neurosymptoms.org/en — Trusted plain-language information on FND symptoms, causes, and treatment, written by Professor Jon Stone (University of Edinburgh) and available in multiple languages with free Android and iOS apps.
nonepilepticseizures.com — PNES Information & Resources — nonepilepticseizures.com — Comprehensive consumer and professional education site on Psychogenic Non-Epileptic Seizures (PNES), administered by an international group of PNES specialists.
FND Society — www.fndsociety.org — International professional society of clinicians, scientists, and lay members advancing FND research, education, and care.
FND Action (UK) — www.fndaction.org.uk — UK-registered charity offering peer support, regional community groups, and awareness campaigns.
FND Friends (UK) — fndfriends.com/about — Southwest England charity providing in-person meet-ups, craft sessions, and peer support for FND patients and carers.
Not Defined by FND — www.notdefinedbyfnd.org — U.S. nonprofit offering peer support circles, FND knowledge resources, and warrior stories.
ABOUT INTERNATIONAL FND AWARENESS MONTH
International FND Awareness Month is observed every April to raise understanding of Functional Neurological Disorder, a common but often misdiagnosed condition affecting how the brain sends and receives signals. The month is championed by patient-led charities including FND Hope International (founded 2012), FND Action (UK, founded 2016), FND Friends (UK), and Not Defined by FND (U.S.), in partnership with the Functional Neurological Disorder Society — the global professional society advancing FND research and clinical care. Together these organizations work to reduce stigma, advance research, and ensure people with FND are treated with dignity, care, and respect.
DISCLAIMER: Information is shared as a courtesy. Resources listed are confidential within the policies of each individual organization and are listed as completely free. This information is not a substitute for legal advice, professional treatment, or emergency services. If a person is in immediate danger, call 911 or contact local law enforcement. For mental health emergencies including suicidal thoughts, call or text 988 (Suicide & Crisis Lifeline). For functional seizures or other medical concerns, consult your healthcare provider.