PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

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If you have an event to add, email us: webmail@peergalaxy.com

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Dec
4
Sun
AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 4 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 4 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
5
Mon
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 5 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 5 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 5 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
6
Tue
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 6 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 6 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 6 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
7
Wed
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 7 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 7 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 7 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
8
Thu
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 8 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 8 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 8 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
9
Fri
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 9 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 9 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 9 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
10
Sat
AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 10 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 10 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
11
Sun
AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Dec 11 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-