
Hearing Loss Association of America/Oregon Meetings and Resources, 2021
HLAA of Portland meets the third Saturday each month (except June, July, and August) 10 am, in the Wistar Morris Conference Room in the Main Hospital Building on the Legacy Good Samaritan Campus, 1015 NW 22nd Ave. (at Marshall), Portland, 97210. Contact Mark Foster, president; email: hlaportland@gmail.com. Write P.O. Box 2112, Portland, OR 97208-2112; http://www.hlaa-or.org/portlandchapter.html.
HLAA of Lane County meets quarterly: second Thursday in March, June, Sept., and Dec., at 7 p.m. at the Hilyard Community Center, 2580 Hilyard St., Eugene. Right now we are scheduled to meet in person June 10 unless COVID-19 infections mandate otherwise.
Mail: P.O. Box 22501, Eugene, OR 97402. Clark Anderson; email: clarkoa@msn.com
HLAA of Linn and Benton counties meets the last Wednesday each month (except June, July, & Dec.) at 6:30 p.m. at the Reimar Building, next to Albany General Hospital, 1085 6th Ave. SW, Albany, OR 97321. Contact: John Hood-Fysh, email: jhoodfysh@gmail.com; 541/220-8541 (cell – call or text), 818 Broadalbin St. SW, Albany, OR 97321.
Note: HLAA of Douglas County no longer meets the requirements for a 501(c)(3) nonprofit. Reinstatement may occur, but right now, this group meets as a support group. Contacts: Vincent Portulano, president, email: HLAADC@outlook. com; or Ann Havens, secretary, 541/673-3119. Check with them for location for meetings and time.
NATIONAL HLAA EVENT CALENDARS
HLAA Calendar
https://www.hearingloss.org/programs-events/calendar/
HLAA Leaders Calendar
https://hlaagroups.hearingloss.org/g/HLAALeaders/calendar
HLAA Subgroups
https://hlaagroups.hearingloss.org/g/HLAALeaders/subgroups
HLAA Virtual Meetings / Captioned Recordings
https://www.hearingloss.org/hearing-help/communities/hlaa-national-virtual-meetings/
MORE RESOURCES
Hands and Voices
https://www.handsandvoicesor.org
Supports families and children who are deaf and hard of hearing, by connecting parents, mentorship, educational advocacy, community development and support programs. Collaborates with professionals to support families.
FACT Oregon
https://www.factoregon.org/
Supports, empowers and advocates for families who experience disability.
Family to Family Health Information Center
Oregon Family-to-Family Health Information Center | OHSU
Supports families and caregivers of children with special health needs to navigate the healthcare system. Many resources on the website.
AG Bell Oregon
https://www.agbell.org/Connect/Oregon-Chapter
- Facebook page – AG Bell Oreoon
- Instagram – aobelloreoon
Local chapter of a national organization. The focus is to promote listening and spoken language education, advocate for accessibility, educational services, and health-related rights, and create connections and memories together.
Oregon Early Hearing Detection and Intervention (EHDI) Program
https://www.oreown ov/oha/PDH/HeaIthvP eooleFamilies/Babies/HeaIthScreenino/He arinqscreenino/Paoes/index asox
For Providers: Information on EHDI Reporting, forms, protocols, facilities, OVERS Hearing Screening Module, 1-3-6 Newborn Hearing Screening Checklist For Parents: Information on hearing screening (what it involves and why it’s important), follow-up (what happens if a newborn doesn’t pass a screening), Early Intervention/Family Services, Guide By Your Side (a Hands & Voices program that matches trained parent guides with families who have recently found out their child has a hearing loss), and other resources for families
American Cochlear Implant Alliance
https://www.acialliance.org/
Facebook page
Twitter
Contains information about research, awareness, and advocacy around cochlear implants. Information about hearing loss and cochlear implants in general.
Oregon Association for Deaf
https://oad1921.org/
Advocates for the rights of people who are Deaf and Hard of Hearing in Oregon. The website contains articles, meeting and conference information, and youth opportunities.
Hearing Loss Association of America – Oregon State Association
https://www.hlaa-or.org/about-us.html
Education, Information and Advocacy.
Early Hearing Detection and Intervention (EHDI)
https://www.cdc.oov/ncbddd/hearinqloss/e hdi-programs.html
Information about EHDI programs Information for families including:
• Questions You May Want to Ask Your Child’s Audiologist
• Just in Time for Pediatric Primary Care Providers
FACEBOOK EVENTS
• ASL Social Chat:
EVERY SUNDAY @ 12:00noon to 2:00 pm
VANCOUVER MALL – Food Court [2nd floor]
Host by: Gary Holden
• ASL Social Chat:
Host by: Gary Holden
• PORTLAND OPEN-CAPTIONED MOVIES:
(See FB page for MORE information)
Order Tickets online @ bagdadmovies.com
Host by: Isaac Stone Dick
• ASL NIGHT GAMES (announcing soon)
Every Second Saturday evening
ASL Game Night page for more information.
Host by: Stephen RodBjorn
• World Deaf Timberfest
• Camp Taloali
Contact for information: Andrea Albers
• Pacific Northwest Deaf Golf Association (PNWDGA) and Portland Metro Deaf Golf Association (FB Page).
(See FB Page for MORE information)
Host by: Craig Marineau
• Northwest Deaf Traveling League (NWDTL)
(Deaf/HOH Bowling Club)
Contact: Melody Kitty McDaniel and Andrea Albers
• NW Deaf Poker Tournaments
Announcement in Jan/Feb 2022 !!!
Host by: James Forncrook
• CYMASPACE: Announcement SOON
Host by: Myles de Bastion
• Deaf Massage Therapist (see link below)
www.openhandhealth.com/book-now
Host by: Clara Bella Storry Parnell
(Email: clara@openhandhealth.com)
• ASL Coffee Podcast – see announcements on regular posting:
https://www.facebook.com/groups/334857136618534/user/100069324005062/
ASL Coffee Chats @ 3pm on Fridays at Hidden Creek Community Center in Hillsboro
• To find a Deaf ASL tutor or mentor, see ASL TUTORS AND MENTORS FB page.
Bridges in Oregon
https://www.facebook.com/BridgesOregon
Source: https://www.facebook.com/groups/portlandaslevents/
AG Bell Association for the Deaf and Hard of Hearing
AG Bell is another convenient resource for those seeking in-person hearing loss support groups, with 41 active chapters across the United States and Puerto Rico. Specifically designed to support children with hearing loss and their families, AG Bell hosts everything from social events to informational sessions for individuals and families impacted by hearing loss; connect with your nearest chapter to learn more. You can also join the AG Bell Facebook group to connect with fellow members online.
DeafandHoH Forum
DeafandHoH is a website featuring hearing loss news, a discussion forum, resources for financial aid and other services, search directories for audiologists, hearing care facilities, speech-language pathologists, and more. The topics covered on the site include living with hearing loss, caring for a family member or friend with hearing loss, American Sign Language, and hearing loss products. You can also join open chat nights on select Wednesdays from 6pm-7pm PST / 9pm-10pm EST to enjoy live interaction!
CALL TO ACTION FOR PEER SUPPORT
https://www.nasmhpd.org/sites/default/files/Assessment-5_Deaf-and-Hard-of-Hearing-Peer-Support.pdf
https://www.transformation-center.org/home/community/deaf-and-hard-of-hearing-recovery-project/
https://www.nasmhpd.org/sites/default/files/BeingSeen.pdf
https://www.hearinglikeme.com/why-we-need-deaf-peer-support-in-our-communities/
https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1018&context=jadara
12-Step online for Deaf and Hard of Hearing
Sounds of Sobriety (SOS): This online email group was formed to help us who have a hearing loss (deaf, deafened, or hard of hearing) to find a place to recover from alcoholism. For many of us, face-to-face AA meetings no longer work. All members of AA, or those who think they may have a problem with alcohol, are welcome. SOS_online_group-subscribe@yahoogroups.com
Deaf Grateful: This is a real-time open discussion meeting on Saturday at 4 pm (EST) for deaf & HOH people who have a desire to stop drinking. Meeting uses videoconferencing software (easily downloaded) that requires a high speed internet connection and a webcam. Our communication mode is ASL only (no audio). http://doda.omnijoin.com
Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support
https://pubmed.ncbi.nlm.nih.gov/23149648/
Is Telemental Health Services a Viable Alternative to Traditional Psychotherapy for Deaf Individuals?
https://pubmed.ncbi.nlm.nih.gov/27260308/
https://www.arundellodge.org/omhc/telemental-health-for-deaf-and-hard-of-hearing/
Deaf Centric Approach / Peer Support Program
https://www.minnpost.com/mental-health-addiction/2016/01/alison-aubrecht-peer-support-program-takes-deaf-centric-approach-men/