PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

Click the Accessibility Button on the right side, halfway down in the middle, for enhanced viewing and/or access options!  Click the Translate Button in the lower left corner for language options. 

Your use of this site is subject to the Privacy Policy, Terms and Conditions of Use.  Reminder: Fees or charges may be charged by your carrier for sending or receiving SMS text messaging, phone, or data.

If you have an event to add, email us: webmail@peergalaxy.com

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Dec
4
Sun
04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Dec 4 all-day

 

Suicide Prevention Resource Center

 

Event Image

Resource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Veterans Crisis Line 1-800-273-8255, Veterans and Military Families Resources and Information
Dec 4 all-day

CRISIS LINES AND WARMLINES

 

Veterans Crisis Line: 800-273-8255, Press 1

Women Veterans Hotline: 855-829-663

Vet Center Call Center: 877-WAR-VETS (927-8387)

U.S. Department of Veterans Affairs (VA) Caregiver Support Line: 855-260-3274

Lines for Life Military Help Line:  Call 1-888-457-4838

Senior Loneliness Line:  Call 503-200-1633

The Trevor Project:  866-488-7386

 

RESOURCES AND INFORMATION

Veteran Resource Navigator

The coronavirus pandemic has changed our world. But it has not changed Oregon’s commitment to those who served and fought for us.

This comprehensive online resource guide is meant to assist veterans from all walks of life in finding the benefits that are most useful to their unique circumstances at this time.

These benefits and resources are yours, earned through your faithful and honorable service to our nation; they are also an investment in the state of Oregon, because your success is our success.

Oregon veterans are a diverse community, but we are united in our shared service, and this has never been truer than it is today. We are all in this together, and we are not defeated. We will stand again, united.


If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance, please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.


Resources by Topic Area

COVID Economic Resources

Economic

Emergency aid, employment, disability, taxes, scams, veteran-owned businesses

COVID Housing and Food Resources

Housing and Food

Housing security and support, homelessness resources, food

COVID Education Resources

Education

Federal VA resources, Voc Rehab re-entry, GI Bill updates, apprenticeships info

COVID Resources

Other Resources

Resources for families, aging veterans, and Oregon OEM COVID-19 resources

COVID Health and Wellness Resources

Health and Wellness

Healthcare, mental health, medical transportation, crisis hotlines

COVID Agency Resources

Agency Resources

Changes and updates about ODVA’s programs and resources

 

LOCATE VETERANS SERVICES IN OREGON

 

Veteran Services by County

Click on the  map below to access resources in your county.

 

VETERANS SERVICES IN OREGON BY CATEGORY

Click on the Image Below to find services by category

 

COVID-19 ALERT – Due to COVID-19, many County Offices are limiting in-person services and are providing services by phone.

Please call your County Veteran Service Office before going in to confirm how they can best serve you during this time.

 

If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance,

please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.

Contact ODVA Headquarters

Oregon Department of Veterans' Affairs
700 Summer St NE
Salem, OR 97301

 

 

 

 

 

 

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned. Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy, so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Print out your VA Welcome Kit

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned.

Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Download your VA Welcome Kit

Feel free to share this guide with friends or family members who need help with their benefits too. You can print out copies for yourself and others:

Download our guides to VA benefits and services

For Veterans

For family members

 

Other Resources Available to Veterans and Military Service Members

DD214 & Military Records Request:

https://www.archives.gov/veterans/military-service-records

Veteran Resource Navigator site by ODVA:

https://www.oregon.gov/odva/COVID/Pages/default.aspx

(Oregon)Military Help Line:  

Call 888-457-4838

VA Crisis Line 1-800-273-8255:

Press 1.VA Confidential crisis chat at net or text to 838255 

U.S. Department of Veterans Affairs, National Center for PTSD:

https://www.ptsd.va.gov/

Defining Discharge Status:

https://militarybenefits.info/character-of-discharge/#:~:text=There%20are%206%20types%20of,DD%20214%20must%20have%20a

How to apply for a discharge status upgrade:

https://www.va.gov/discharge-upgrade-instructions/

Oregon Supportive Services for Vets & Families (Housing):

https://caporegon.org/what-we-do/ssvf/

Clackamas County VSO’s (Veteran Service Officers):

https://www.clackamas.us/socialservices/veterans.html

Portland VA Clinic that can help with homelessness & medical care:

https://www.portland.va.gov/locations/crrc.asp

 

National Resource Directory (NRD)

https://nrd.gov/

The National Resource Directory (NRD) is a resource website that connects wounded warriors, Service Members, Veterans, their families, and caregivers to programs and services that support them. The NRD is hosted, managed, maintained, sustained and developed by the Defense Health Agency’s Recovery Coordination Program.

It provides access to services and resources at the national, state and local levels to support recovery, rehabilitation and community reintegration. Visitors can find information on a variety of topics that supply an abundance of vetted resources. For help finding resources on the site, visit the How to Use this site section of the NRD. Please see below for some of our major categories.

 

The National Recovery Directory is a partnership among the Departments of Defense, Labor, and Veterans Affairs. Information contained within the NRD is from federal, state, and local government agencies; Veteran and military service organizations; non-profit and community-based organizations; academic institutions and professional associations that provide assistance to wounded warriors and their families.

GLOSSARIES

Find definitions to commonly used terms in VA, DoD, DOL, and other federal government agencies.

NRD FACT SHEET

Get to know your NRD: why it was created, who operates it, and all the resources meant for you.

KEY CONTACTS

Find contacts in the Departments of Defense, Labor, and Veterans Affairs and Military Services.

 

 

 

 

Tue, January 25, 2022, 4:00 PM – 5:00 PM PST

ONLINE EVENT

Semper Fi & America’s Fund offers a Caregiver Support Program encompassing a variety of activities, education, support tools and resource connections designed to assist the spouses, parents, siblings, extended family members, or close friends who drop everything to care for a catastrophically wounded, critically ill or injured service member. The Caregiver Support Program provides different types of events to suit the busy schedules of our caregivers.

Join MVCN with special guest Karen Hetherington, Director of Case Management for the Semper Fi & America’s Fund, a non-profit that assists catastrophically wounded, ill and injured service members. Ms. Hetherington will share about Semper Fi & America’s Fund’s programs and answer questions.

Come learn how Semper Fi & America’s Fund can help you!

CLICK HERE TO REGISTER

**Please SAVE your confirmation email as it contains information to join the Zoom group.** Check your spam or junk folder if you do not receive an email confirmation from Eventbrite.Find other peer support opportunities on our Caregiver Calendar on the MVCN website. https://www.redcross.org/caregiversVisit the safe and secure, caregiver-only Online Community available 24/7 for support. https://mvcn.force.com/login.

 

 

 

 

Dual Diagnosis Anonymous

 

 

“You protected us, now we support you!”

https://ddainc.org/dda-veterans-page/

DDA was founded by a highly decorated veteran, Corbett Monica. After serving in the Vietnam War, like other veterans, returning to home only find anguish, trauma, and remorse. After suffering from severe PTSD, OCD, survivors guilt, and addictions, Corbett found a way to transcend from destructive means with the inception of Dual Diagnosis Anonymous (DDA) providing hope and recovery through our peer support which is now his legacy.

Culturally responsive DDA’s Veterans meetings are intended to provide a safe venue to be open about depression, post-traumatic stress, alcohol and drug use, abuse, and addiction as well as serve as a resource for navigation of the telehealth system, It will encourage healthy solutions for adapting to the changing times. Specifically. the project will Improve access for Veterans and military service members to dual diagnosis services through the creation of on-line recovery support groups and on-line DDA meetings.

This project will serve Veterans throughout the state and is beginning outreach through Veterans publications, local newspapers, the VA, Veterans websites, list services, and anything else that will help identify Oregonians who can use the services.

 

More Ways to Connect

Join our Private Online Group

DDA Veterans Resource Group and Chatroom: www.facebook.com/groups/345810496697764

In Person Meetings

 

Wednesdays 5pm to 7pm

1520 Sherman Ave North Bend, OR 97459

Online Meetings

 

Tuesdays 12pm-1pm Pacific Time Zone

Join Zoom Meeting https://us02web.zoom.us/j/84398341923 Meeting ID: 843 9834 1923

By Phone

Give our Central Office a call at (503)-222-6484

 

ADDITIONAL RESOURCES AND LINKS

VA National Center on PTSD

                PTSD Treatment Decision Aid

                Educational Materials

                Mobile Apps

                Whiteboard Videos

                Consultation Program

 

VA Healthcare – Community Care network

Minority Veterans of America

https://www.minorityvets.org/

 

Vet Centers:

Central Oregon Vet Center

Eugene Vet Center

Grants Pass Vet Center

Portland Vet Center

Salem Vet Center

 

Community Based Outpatient Clinics:

Bend CBOC

Morrow County VA Telehealth Clinic (Boardman OR)

Brookings VA Clinic

Wallowa County VA Telehealth Clinic (Enterprise OR)

Eugene Health Care Center

Eugene VA Downtown Clinic

Fairview Clinic

Grants Pass West VA CBOC

Hillsboro CBOC

Klamath Falls CBOC

La Grande CBOC

Lincoln City Clinic

North Bend VA Clinic

Community Resource and Referral Center (CRRC)

Salem CBOC

North Coast CBOC

 

Military Children Resources

Military kids face unique psychological challenges related to military life. Compared to their non-military peers, military kids are many times more likely to move multiple times during their school careers and have a parent absent for long periods of time in potentially dangerous locations – factors that can greatly stress military kids’ mental health.

The Defense Health Agency maintains two online resources to support military children use the links povided below:

  • Military Kids Connect is an online community specifically for military children ages 6-17, and provides access to age-appropriate resources for military kids and also for parents, caregivers, and educators to help them understand and support military kids at home and in school.
  • Sesame Street for Military Families is a free, bilingual (English and Spanish) website where families can find information and multimedia resources on the topics of military deployments, multiple deployments, homecomings, injuries, grief, and self-expression.
AM – All Month – ODVA – Oregon Dept of Veterans Affairs – Veterans Resource number (1-800-698-2411) & Veteran Resource Listings
Dec 4 all-day

 

Veteran Resource Navigator

The Oregon Department of Veterans’ Affairs (ODVA) has a comprehensive online resource guide (VETERAN RESOURCE NAVIGATOR) available to assist veterans in finding the benefits that are most useful to their unique circumstances at this time.

 

Use the link below for the Veteran Resource Navigator

https://www.oregon.gov/odva/COVID/Pages/default.aspx)

 

USE THIS LINK TO OPEN THE VA WELCOME KIT

Print out your VA Welcome Kit

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned.

Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy, so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Download your VA Welcome Kit

You are welcome to share this guide with friends or family members who need help with their benefits too. You can print out copies for yourself and others:

Download our guides to VA benefits and services

For Veterans

For family members

Other Resources Available to Veterans and Military Service Members

DD214 & Military Records Request:

https://www.archives.gov/veterans/military-service-records

Veteran Resource Navigator site by ODVA:

https://www.oregon.gov/odva/COVID/Pages/default.aspx

(Oregon)Military Help Line:  

Call 888-457-4838

VA Crisis Line 1-800-273-8255:

Press 1.VA Confidential crisis chat at net or text to 838255 

U.S. Department of Veterans Affairs, National Center for PTSD:

https://www.ptsd.va.gov/

Defining Discharge Status:

https://militarybenefits.info/character-of-discharge/#:~:text=There%20are%206%20types%20of,DD%20214%20must%20have%20a

How to apply for a discharge status upgrade:

https://www.va.gov/discharge-upgrade-instructions/

Oregon Supportive Services for Vets & Families (Housing):

https://caporegon.org/what-we-do/ssvf/

Clackamas County VSO’s (Veteran Service Officers):

https://www.clackamas.us/socialservices/veterans.html

Portland VA Clinic that can help with homelessness & medical care:

https://www.portland.va.gov/locations/crrc.asp

Portland VA Mental Health Clinic:

https://www.portland.va.gov/services/mentalhealth.asp

Veterans Crisis Line/ Suicide Prevention:

https://www.veteranscrisisline.net/

 

If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance,

please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.

 

Contact ODVA Headquarters

Oregon Department of Veterans' Affairs
700 Summer St NE
Salem, OR 97301

Web: https://www.oregon.gov/odva/Pages/default.aspx

Phone: (800) 692-9666 or (503) 373-2085

Fax: (503) 373-2392

Email:orvetsbenefits@odva.state.or.us

AM – All Month – Veteran Quick Resource List by NAMI Multnomah – Weekdays & Weekends
Dec 4 all-day

Oregon Veterans Resources may include but not be limited to:

>> DROP IN RESOURCE LIST

 

VA Community Resource & Referral Center (CRRC)

308 SW 1st Ave

Portland, OR 97204

503- 808-1256 or 800-949-1004 Ext: 51256

WEEKDAYS 8 A.M. TO 3 P.M.

THURSDAYS 10 A.M. TO 3 P.M.

Transition Projects Day Center at Bud Clark Commons

650 NW Irving Street

Portland, OR 97209

MONDAY – FRIDAY 7 A.M. TO 7 P.M.

WEEKENDS 8 A.M. TO 4 P.M.

Multnomah County Veterans’ Services Offices (VSO)*

Lincoln Building

421 SW Oak Street, Room 100

Portland, OR 97204

EVERY TUESDAY: 9 A.M. TO 12:00 P.M.

EVERY FRIDAY: 9 A.M. TO 12:00 P.M.

 

East Area Office

600 NE 8th Street, Room 100\

Gresham, OR 97030

EVERY THURSDAY 9:00 A.M. TO 11:30 A.M.

 

North / Northeast Area Office

5325 NE Martin Luther King Blvd

Portland, OR 97239

EVERY FRIDAY 2:00 P.M. TO 4:00 P.M.

Portland VA Medical Center

3710 SW U.S. Veterans Hospital Road

Portland, OR 97239

EVERY TUESDAY, WEDNESDAY, AND THURSDAY 1:00 P.M. TO 3:30 P.M.

*Walk-ins are unavailable at all Multnomah County VSO locations on the last working day of every month due to VA claims deadlines.

>> CALL RESOURCE LIST

 

211Info
Dial: 2-1-1

Transition Projects Veterans Hotline
855-425-5544

Multnomah County Veterans’ Services
503-988-VETS (8387)

   Email: veteran.services@multco.us

   Call or email any time to schedule an appointment or see VSO drop-in hours.

Veterans Crisis Line
800-273-8255

Call Center for Homeless Veterans
877-424-3838

Multnomah County Veterans’ Services Aging, Disability & Veteran Services Helpline
503-988-3646

 

>>WEB RESOURCE LIST

https://www.quickresourceguide.veteran 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

QuickResourceGuide.Veteran

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 4 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

HLAAOR – Hearing Loss Association of America/Oregon – Meetings and Resources @ Online Register for Details
Dec 4 all-day

 

 

Hearing Loss Association of America/Oregon Meetings and Resources, 2021

HLAA of Portland meets the third Saturday each month (except June, July, and August) 10 am, in the Wistar Morris Conference Room in the Main Hospital Building on the Legacy Good Samaritan Campus, 1015 NW 22nd Ave. (at Marshall), Portland, 97210. Contact Mark Foster, president; email: hlaportland@gmail.com. Write P.O. Box 2112, Portland, OR 97208-2112; http://www.hlaa-or.org/portlandchapter.html.

HLAA of Lane County meets quarterly: second Thursday in March, June, Sept., and Dec., at 7 p.m. at the Hilyard Community Center, 2580 Hilyard St., Eugene. Right now we are scheduled to meet in person June 10 unless COVID-19 infections mandate otherwise.

Mail: P.O. Box 22501, Eugene, OR 97402. Clark Anderson; email: clarkoa@msn.com

HLAA of Linn and Benton counties meets the last Wednesday each month (except June, July, & Dec.) at 6:30 p.m. at the Reimar Building, next to Albany General Hospital, 1085 6th Ave. SW, Albany, OR 97321. Contact: John Hood-Fysh, email: jhoodfysh@gmail.com; 541/220-8541 (cell – call or text), 818 Broadalbin St. SW, Albany, OR 97321.

Note: HLAA of Douglas County no longer meets the requirements for a 501(c)(3) nonprofit. Reinstatement may occur, but right now, this group meets as a support group. Contacts: Vincent Portulano, president, email: HLAADC@outlook. com; or Ann Havens, secretary, 541/673-3119. Check with them for location for meetings and time.

NATIONAL HLAA EVENT CALENDARS

HLAA Calendar

https://www.hearingloss.org/programs-events/calendar/

HLAA Leaders Calendar

https://hlaagroups.hearingloss.org/g/HLAALeaders/calendar

HLAA Subgroups

https://hlaagroups.hearingloss.org/g/HLAALeaders/subgroups

HLAA Virtual Meetings / Captioned Recordings

https://www.hearingloss.org/hearing-help/communities/hlaa-national-virtual-meetings/

 

MORE RESOURCES

Hands and Voices
https://www.handsandvoicesor.org

Supports families and children who are deaf and hard of hearing, by connecting parents, mentorship, educational advocacy, community development and support programs. Collaborates with professionals to support families.

FACT Oregon
https://www.factoregon.org/

Supports, empowers and advocates for families who experience disability.

Family to Family Health Information Center
Oregon Family-to-Family Health Information Center | OHSU

Supports families and caregivers of children with special health needs to navigate the healthcare system. Many resources on the website.

AG Bell Oregon 
https://www.agbell.org/Connect/Oregon-Chapter

  • Facebook page – AG Bell Oreoon
  • Instagram – aobelloreoon

Local chapter of a national organization. The focus is to promote listening and spoken language education, advocate for accessibility, educational services, and health-related rights, and create connections and memories together.

Oregon Early Hearing Detection and Intervention (EHDI) Program

https://www.oreown ov/oha/PDH/HeaIthvP eooleFamilies/Babies/HeaIthScreenino/He arinqscreenino/Paoes/index asox

For Providers: Information on EHDI Reporting, forms, protocols, facilities, OVERS Hearing Screening Module, 1-3-6 Newborn Hearing Screening Checklist For Parents: Information on hearing screening (what it involves and why it’s important), follow-up (what happens if a newborn doesn’t pass a screening), Early Intervention/Family Services, Guide By Your Side (a Hands & Voices program that matches trained parent guides with families who have recently found out their child has a hearing loss), and other resources for families

American Cochlear Implant Alliance

https://www.acialliance.org/

Facebook page

Twitter

Contains information about research, awareness, and advocacy around cochlear implants. Information about hearing loss and cochlear implants in general.

Oregon Association for Deaf
https://oad1921.org/

Advocates for the rights of people who are Deaf and Hard of Hearing in Oregon. The website contains articles, meeting and conference information, and youth opportunities.

Hearing Loss Association of America – Oregon State Association 
https://www.hlaa-or.org/about-us.html

Education, Information and Advocacy.

Early Hearing Detection and Intervention (EHDI)
https://www.cdc.oov/ncbddd/hearinqloss/e hdi-programs.html

Information about EHDI programs Information for families including:

     • Questions You May Want to Ask Your Child’s Audiologist

     • Just in Time for Pediatric Primary Care Providers

FACEBOOK EVENTS

ASL Social Chat:

EVERY SUNDAY @ 12:00noon to 2:00 pm

VANCOUVER MALL – Food Court [2nd floor]

Host by: Gary Holden

ASL Social Chat:

Host by: Gary Holden

PORTLAND OPEN-CAPTIONED MOVIES:

(See FB page for MORE information)

Order Tickets online @ bagdadmovies.com

Host by: Isaac Stone Dick

ASL NIGHT GAMES (announcing soon)

Every Second Saturday evening

ASL Game Night page for more information.

Host by: Stephen RodBjorn

World Deaf Timberfest

Camp Taloali

Contact for information: Andrea Albers

Pacific Northwest Deaf Golf Association (PNWDGA) and Portland Metro Deaf Golf Association (FB Page).

(See FB Page for MORE information)

Host by: Craig Marineau

Northwest Deaf Traveling League (NWDTL)

(Deaf/HOH Bowling Club)

Contact: Melody Kitty McDaniel and Andrea Albers

NW Deaf Poker Tournaments

Announcement in Jan/Feb 2022 !!!

Host by: James Forncrook

CYMASPACE: Announcement SOON

Host by: Myles de Bastion

Deaf Massage Therapist (see link below)

www.openhandhealth.com/book-now

Host by: Clara Bella Storry Parnell

(Email: clara@openhandhealth.com)

ASL Coffee Podcast – see announcements on regular posting:

https://www.facebook.com/groups/334857136618534/user/100069324005062/

ASL Coffee Chats @ 3pm on Fridays at Hidden Creek Community Center in Hillsboro

To find a Deaf ASL tutor or mentor, see ASL TUTORS AND MENTORS FB page.

Bridges in Oregon

https://www.facebook.com/BridgesOregon

Source: https://www.facebook.com/groups/portlandaslevents/

AG Bell Association for the Deaf and Hard of Hearing
AG Bell is another convenient resource for those seeking in-person hearing loss support groups, with 
41 active chapters across the United States and Puerto Rico. Specifically designed to support children with hearing loss and their families, AG Bell hosts everything from social events to informational sessions for individuals and families impacted by hearing loss; connect with your nearest chapter to learn more. You can also join the AG Bell Facebook group to connect with fellow members online.

DeafandHoH Forum

DeafandHoH is a website featuring hearing loss news, a discussion forum, resources for financial aid and other services, search directories for audiologists, hearing care facilities, speech-language pathologists, and more. The topics covered on the site include living with hearing loss, caring for a family member or friend with hearing loss, American Sign Language, and hearing loss products. You can also join open chat nights on select Wednesdays from 6pm-7pm PST / 9pm-10pm EST to enjoy live interaction!

 

CALL TO ACTION FOR PEER SUPPORT

https://www.nasmhpd.org/sites/default/files/Assessment-5_Deaf-and-Hard-of-Hearing-Peer-Support.pdf

https://www.transformation-center.org/home/community/deaf-and-hard-of-hearing-recovery-project/

https://www.nasmhpd.org/sites/default/files/BeingSeen.pdf

https://www.hearinglikeme.com/why-we-need-deaf-peer-support-in-our-communities/

https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1018&context=jadara

12-Step online for Deaf and Hard of Hearing

Sounds of Sobriety (SOS):  This online email group was formed to help us who have a hearing loss (deaf, deafened, or hard of hearing) to find a place to recover from alcoholism. For many of us, face-to-face AA meetings no longer work. All members of AA, or those who think they may have a problem with alcohol, are welcome.    SOS_online_group-subscribe@yahoogroups.com

Deaf Grateful:  This is a real-time open discussion meeting on Saturday at 4 pm (EST) for deaf & HOH people who have a desire to stop drinking. Meeting uses videoconferencing software (easily downloaded) that requires a high speed internet connection and a webcam. Our communication mode is ASL only (no audio). http://doda.omnijoin.com

Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support

https://pubmed.ncbi.nlm.nih.gov/23149648/

Is Telemental Health Services a Viable Alternative to Traditional Psychotherapy for Deaf Individuals?

https://pubmed.ncbi.nlm.nih.gov/27260308/

https://www.arundellodge.org/omhc/telemental-health-for-deaf-and-hard-of-hearing/

Deaf Centric Approach / Peer Support Program

https://www.minnpost.com/mental-health-addiction/2016/01/alison-aubrecht-peer-support-program-takes-deaf-centric-approach-men/

Dec
5
Mon
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 5 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Dec 5 all-day

 

Suicide Prevention Resource Center

 

Event Image

Resource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Veterans Crisis Line 1-800-273-8255, Veterans and Military Families Resources and Information
Dec 5 all-day

CRISIS LINES AND WARMLINES

 

Veterans Crisis Line: 800-273-8255, Press 1

Women Veterans Hotline: 855-829-663

Vet Center Call Center: 877-WAR-VETS (927-8387)

U.S. Department of Veterans Affairs (VA) Caregiver Support Line: 855-260-3274

Lines for Life Military Help Line:  Call 1-888-457-4838

Senior Loneliness Line:  Call 503-200-1633

The Trevor Project:  866-488-7386

 

RESOURCES AND INFORMATION

Veteran Resource Navigator

The coronavirus pandemic has changed our world. But it has not changed Oregon’s commitment to those who served and fought for us.

This comprehensive online resource guide is meant to assist veterans from all walks of life in finding the benefits that are most useful to their unique circumstances at this time.

These benefits and resources are yours, earned through your faithful and honorable service to our nation; they are also an investment in the state of Oregon, because your success is our success.

Oregon veterans are a diverse community, but we are united in our shared service, and this has never been truer than it is today. We are all in this together, and we are not defeated. We will stand again, united.


If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance, please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.


Resources by Topic Area

COVID Economic Resources

Economic

Emergency aid, employment, disability, taxes, scams, veteran-owned businesses

COVID Housing and Food Resources

Housing and Food

Housing security and support, homelessness resources, food

COVID Education Resources

Education

Federal VA resources, Voc Rehab re-entry, GI Bill updates, apprenticeships info

COVID Resources

Other Resources

Resources for families, aging veterans, and Oregon OEM COVID-19 resources

COVID Health and Wellness Resources

Health and Wellness

Healthcare, mental health, medical transportation, crisis hotlines

COVID Agency Resources

Agency Resources

Changes and updates about ODVA’s programs and resources

 

LOCATE VETERANS SERVICES IN OREGON

 

Veteran Services by County

Click on the  map below to access resources in your county.

 

VETERANS SERVICES IN OREGON BY CATEGORY

Click on the Image Below to find services by category

 

COVID-19 ALERT – Due to COVID-19, many County Offices are limiting in-person services and are providing services by phone.

Please call your County Veteran Service Office before going in to confirm how they can best serve you during this time.

 

If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance,

please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.

Contact ODVA Headquarters

Oregon Department of Veterans' Affairs
700 Summer St NE
Salem, OR 97301

 

 

 

 

 

 

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned. Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy, so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Print out your VA Welcome Kit

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned.

Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Download your VA Welcome Kit

Feel free to share this guide with friends or family members who need help with their benefits too. You can print out copies for yourself and others:

Download our guides to VA benefits and services

For Veterans

For family members

 

Other Resources Available to Veterans and Military Service Members

DD214 & Military Records Request:

https://www.archives.gov/veterans/military-service-records

Veteran Resource Navigator site by ODVA:

https://www.oregon.gov/odva/COVID/Pages/default.aspx

(Oregon)Military Help Line:  

Call 888-457-4838

VA Crisis Line 1-800-273-8255:

Press 1.VA Confidential crisis chat at net or text to 838255 

U.S. Department of Veterans Affairs, National Center for PTSD:

https://www.ptsd.va.gov/

Defining Discharge Status:

https://militarybenefits.info/character-of-discharge/#:~:text=There%20are%206%20types%20of,DD%20214%20must%20have%20a

How to apply for a discharge status upgrade:

https://www.va.gov/discharge-upgrade-instructions/

Oregon Supportive Services for Vets & Families (Housing):

https://caporegon.org/what-we-do/ssvf/

Clackamas County VSO’s (Veteran Service Officers):

https://www.clackamas.us/socialservices/veterans.html

Portland VA Clinic that can help with homelessness & medical care:

https://www.portland.va.gov/locations/crrc.asp

 

National Resource Directory (NRD)

https://nrd.gov/

The National Resource Directory (NRD) is a resource website that connects wounded warriors, Service Members, Veterans, their families, and caregivers to programs and services that support them. The NRD is hosted, managed, maintained, sustained and developed by the Defense Health Agency’s Recovery Coordination Program.

It provides access to services and resources at the national, state and local levels to support recovery, rehabilitation and community reintegration. Visitors can find information on a variety of topics that supply an abundance of vetted resources. For help finding resources on the site, visit the How to Use this site section of the NRD. Please see below for some of our major categories.

 

The National Recovery Directory is a partnership among the Departments of Defense, Labor, and Veterans Affairs. Information contained within the NRD is from federal, state, and local government agencies; Veteran and military service organizations; non-profit and community-based organizations; academic institutions and professional associations that provide assistance to wounded warriors and their families.

GLOSSARIES

Find definitions to commonly used terms in VA, DoD, DOL, and other federal government agencies.

NRD FACT SHEET

Get to know your NRD: why it was created, who operates it, and all the resources meant for you.

KEY CONTACTS

Find contacts in the Departments of Defense, Labor, and Veterans Affairs and Military Services.

 

 

 

 

Tue, January 25, 2022, 4:00 PM – 5:00 PM PST

ONLINE EVENT

Semper Fi & America’s Fund offers a Caregiver Support Program encompassing a variety of activities, education, support tools and resource connections designed to assist the spouses, parents, siblings, extended family members, or close friends who drop everything to care for a catastrophically wounded, critically ill or injured service member. The Caregiver Support Program provides different types of events to suit the busy schedules of our caregivers.

Join MVCN with special guest Karen Hetherington, Director of Case Management for the Semper Fi & America’s Fund, a non-profit that assists catastrophically wounded, ill and injured service members. Ms. Hetherington will share about Semper Fi & America’s Fund’s programs and answer questions.

Come learn how Semper Fi & America’s Fund can help you!

CLICK HERE TO REGISTER

**Please SAVE your confirmation email as it contains information to join the Zoom group.** Check your spam or junk folder if you do not receive an email confirmation from Eventbrite.Find other peer support opportunities on our Caregiver Calendar on the MVCN website. https://www.redcross.org/caregiversVisit the safe and secure, caregiver-only Online Community available 24/7 for support. https://mvcn.force.com/login.

 

 

 

 

Dual Diagnosis Anonymous

 

 

“You protected us, now we support you!”

https://ddainc.org/dda-veterans-page/

DDA was founded by a highly decorated veteran, Corbett Monica. After serving in the Vietnam War, like other veterans, returning to home only find anguish, trauma, and remorse. After suffering from severe PTSD, OCD, survivors guilt, and addictions, Corbett found a way to transcend from destructive means with the inception of Dual Diagnosis Anonymous (DDA) providing hope and recovery through our peer support which is now his legacy.

Culturally responsive DDA’s Veterans meetings are intended to provide a safe venue to be open about depression, post-traumatic stress, alcohol and drug use, abuse, and addiction as well as serve as a resource for navigation of the telehealth system, It will encourage healthy solutions for adapting to the changing times. Specifically. the project will Improve access for Veterans and military service members to dual diagnosis services through the creation of on-line recovery support groups and on-line DDA meetings.

This project will serve Veterans throughout the state and is beginning outreach through Veterans publications, local newspapers, the VA, Veterans websites, list services, and anything else that will help identify Oregonians who can use the services.

 

More Ways to Connect

Join our Private Online Group

DDA Veterans Resource Group and Chatroom: www.facebook.com/groups/345810496697764

In Person Meetings

 

Wednesdays 5pm to 7pm

1520 Sherman Ave North Bend, OR 97459

Online Meetings

 

Tuesdays 12pm-1pm Pacific Time Zone

Join Zoom Meeting https://us02web.zoom.us/j/84398341923 Meeting ID: 843 9834 1923

By Phone

Give our Central Office a call at (503)-222-6484

 

ADDITIONAL RESOURCES AND LINKS

VA National Center on PTSD

                PTSD Treatment Decision Aid

                Educational Materials

                Mobile Apps

                Whiteboard Videos

                Consultation Program

 

VA Healthcare – Community Care network

Minority Veterans of America

https://www.minorityvets.org/

 

Vet Centers:

Central Oregon Vet Center

Eugene Vet Center

Grants Pass Vet Center

Portland Vet Center

Salem Vet Center

 

Community Based Outpatient Clinics:

Bend CBOC

Morrow County VA Telehealth Clinic (Boardman OR)

Brookings VA Clinic

Wallowa County VA Telehealth Clinic (Enterprise OR)

Eugene Health Care Center

Eugene VA Downtown Clinic

Fairview Clinic

Grants Pass West VA CBOC

Hillsboro CBOC

Klamath Falls CBOC

La Grande CBOC

Lincoln City Clinic

North Bend VA Clinic

Community Resource and Referral Center (CRRC)

Salem CBOC

North Coast CBOC

 

Military Children Resources

Military kids face unique psychological challenges related to military life. Compared to their non-military peers, military kids are many times more likely to move multiple times during their school careers and have a parent absent for long periods of time in potentially dangerous locations – factors that can greatly stress military kids’ mental health.

The Defense Health Agency maintains two online resources to support military children use the links povided below:

  • Military Kids Connect is an online community specifically for military children ages 6-17, and provides access to age-appropriate resources for military kids and also for parents, caregivers, and educators to help them understand and support military kids at home and in school.
  • Sesame Street for Military Families is a free, bilingual (English and Spanish) website where families can find information and multimedia resources on the topics of military deployments, multiple deployments, homecomings, injuries, grief, and self-expression.
AM – All Month – ODVA – Oregon Dept of Veterans Affairs – Veterans Resource number (1-800-698-2411) & Veteran Resource Listings
Dec 5 all-day

 

Veteran Resource Navigator

The Oregon Department of Veterans’ Affairs (ODVA) has a comprehensive online resource guide (VETERAN RESOURCE NAVIGATOR) available to assist veterans in finding the benefits that are most useful to their unique circumstances at this time.

 

Use the link below for the Veteran Resource Navigator

https://www.oregon.gov/odva/COVID/Pages/default.aspx)

 

USE THIS LINK TO OPEN THE VA WELCOME KIT

Print out your VA Welcome Kit

Whether you’re just getting out of the service or you’ve been a civilian for years now, the VA Welcome Kit can help guide you to the benefits and services you’ve earned.

Based on where you are in life, your VA benefits and services can support you in different ways. Keep your welcome kit handy, so you can turn to it throughout your life—like when it’s time to go to school, get a job, buy a house, get health care, retire, or make plans for your care as you age.

Download your VA Welcome Kit

You are welcome to share this guide with friends or family members who need help with their benefits too. You can print out copies for yourself and others:

Download our guides to VA benefits and services

For Veterans

For family members

Other Resources Available to Veterans and Military Service Members

DD214 & Military Records Request:

https://www.archives.gov/veterans/military-service-records

Veteran Resource Navigator site by ODVA:

https://www.oregon.gov/odva/COVID/Pages/default.aspx

(Oregon)Military Help Line:  

Call 888-457-4838

VA Crisis Line 1-800-273-8255:

Press 1.VA Confidential crisis chat at net or text to 838255 

U.S. Department of Veterans Affairs, National Center for PTSD:

https://www.ptsd.va.gov/

Defining Discharge Status:

https://militarybenefits.info/character-of-discharge/#:~:text=There%20are%206%20types%20of,DD%20214%20must%20have%20a

How to apply for a discharge status upgrade:

https://www.va.gov/discharge-upgrade-instructions/

Oregon Supportive Services for Vets & Families (Housing):

https://caporegon.org/what-we-do/ssvf/

Clackamas County VSO’s (Veteran Service Officers):

https://www.clackamas.us/socialservices/veterans.html

Portland VA Clinic that can help with homelessness & medical care:

https://www.portland.va.gov/locations/crrc.asp

Portland VA Mental Health Clinic:

https://www.portland.va.gov/services/mentalhealth.asp

Veterans Crisis Line/ Suicide Prevention:

https://www.veteranscrisisline.net/

 

If you are a veteran or family member with specific questions not addressed here, or if you need other direct assistance,

please contact an ODVA Resource Navigator by calling (503) 373-2085 or toll-free at 1-800-692-9666.

 

Contact ODVA Headquarters

Oregon Department of Veterans' Affairs
700 Summer St NE
Salem, OR 97301

Web: https://www.oregon.gov/odva/Pages/default.aspx

Phone: (800) 692-9666 or (503) 373-2085

Fax: (503) 373-2392

Email:orvetsbenefits@odva.state.or.us

AM – All Month – Veteran Quick Resource List by NAMI Multnomah – Weekdays & Weekends
Dec 5 all-day

Oregon Veterans Resources may include but not be limited to:

>> DROP IN RESOURCE LIST

 

VA Community Resource & Referral Center (CRRC)

308 SW 1st Ave

Portland, OR 97204

503- 808-1256 or 800-949-1004 Ext: 51256

WEEKDAYS 8 A.M. TO 3 P.M.

THURSDAYS 10 A.M. TO 3 P.M.

Transition Projects Day Center at Bud Clark Commons

650 NW Irving Street

Portland, OR 97209

MONDAY – FRIDAY 7 A.M. TO 7 P.M.

WEEKENDS 8 A.M. TO 4 P.M.

Multnomah County Veterans’ Services Offices (VSO)*

Lincoln Building

421 SW Oak Street, Room 100

Portland, OR 97204

EVERY TUESDAY: 9 A.M. TO 12:00 P.M.

EVERY FRIDAY: 9 A.M. TO 12:00 P.M.

 

East Area Office

600 NE 8th Street, Room 100\

Gresham, OR 97030

EVERY THURSDAY 9:00 A.M. TO 11:30 A.M.

 

North / Northeast Area Office

5325 NE Martin Luther King Blvd

Portland, OR 97239

EVERY FRIDAY 2:00 P.M. TO 4:00 P.M.

Portland VA Medical Center

3710 SW U.S. Veterans Hospital Road

Portland, OR 97239

EVERY TUESDAY, WEDNESDAY, AND THURSDAY 1:00 P.M. TO 3:30 P.M.

*Walk-ins are unavailable at all Multnomah County VSO locations on the last working day of every month due to VA claims deadlines.

>> CALL RESOURCE LIST

 

211Info
Dial: 2-1-1

Transition Projects Veterans Hotline
855-425-5544

Multnomah County Veterans’ Services
503-988-VETS (8387)

   Email: veteran.services@multco.us

   Call or email any time to schedule an appointment or see VSO drop-in hours.

Veterans Crisis Line
800-273-8255

Call Center for Homeless Veterans
877-424-3838

Multnomah County Veterans’ Services Aging, Disability & Veteran Services Helpline
503-988-3646

 

>>WEB RESOURCE LIST

https://www.quickresourceguide.veteran 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

QuickResourceGuide.Veteran

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 5 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

HLAAOR – Hearing Loss Association of America/Oregon – Meetings and Resources @ Online Register for Details
Dec 5 all-day

 

 

Hearing Loss Association of America/Oregon Meetings and Resources, 2021

HLAA of Portland meets the third Saturday each month (except June, July, and August) 10 am, in the Wistar Morris Conference Room in the Main Hospital Building on the Legacy Good Samaritan Campus, 1015 NW 22nd Ave. (at Marshall), Portland, 97210. Contact Mark Foster, president; email: hlaportland@gmail.com. Write P.O. Box 2112, Portland, OR 97208-2112; http://www.hlaa-or.org/portlandchapter.html.

HLAA of Lane County meets quarterly: second Thursday in March, June, Sept., and Dec., at 7 p.m. at the Hilyard Community Center, 2580 Hilyard St., Eugene. Right now we are scheduled to meet in person June 10 unless COVID-19 infections mandate otherwise.

Mail: P.O. Box 22501, Eugene, OR 97402. Clark Anderson; email: clarkoa@msn.com

HLAA of Linn and Benton counties meets the last Wednesday each month (except June, July, & Dec.) at 6:30 p.m. at the Reimar Building, next to Albany General Hospital, 1085 6th Ave. SW, Albany, OR 97321. Contact: John Hood-Fysh, email: jhoodfysh@gmail.com; 541/220-8541 (cell – call or text), 818 Broadalbin St. SW, Albany, OR 97321.

Note: HLAA of Douglas County no longer meets the requirements for a 501(c)(3) nonprofit. Reinstatement may occur, but right now, this group meets as a support group. Contacts: Vincent Portulano, president, email: HLAADC@outlook. com; or Ann Havens, secretary, 541/673-3119. Check with them for location for meetings and time.

NATIONAL HLAA EVENT CALENDARS

HLAA Calendar

https://www.hearingloss.org/programs-events/calendar/

HLAA Leaders Calendar

https://hlaagroups.hearingloss.org/g/HLAALeaders/calendar

HLAA Subgroups

https://hlaagroups.hearingloss.org/g/HLAALeaders/subgroups

HLAA Virtual Meetings / Captioned Recordings

https://www.hearingloss.org/hearing-help/communities/hlaa-national-virtual-meetings/

 

MORE RESOURCES

Hands and Voices
https://www.handsandvoicesor.org

Supports families and children who are deaf and hard of hearing, by connecting parents, mentorship, educational advocacy, community development and support programs. Collaborates with professionals to support families.

FACT Oregon
https://www.factoregon.org/

Supports, empowers and advocates for families who experience disability.

Family to Family Health Information Center
Oregon Family-to-Family Health Information Center | OHSU

Supports families and caregivers of children with special health needs to navigate the healthcare system. Many resources on the website.

AG Bell Oregon 
https://www.agbell.org/Connect/Oregon-Chapter

  • Facebook page – AG Bell Oreoon
  • Instagram – aobelloreoon

Local chapter of a national organization. The focus is to promote listening and spoken language education, advocate for accessibility, educational services, and health-related rights, and create connections and memories together.

Oregon Early Hearing Detection and Intervention (EHDI) Program

https://www.oreown ov/oha/PDH/HeaIthvP eooleFamilies/Babies/HeaIthScreenino/He arinqscreenino/Paoes/index asox

For Providers: Information on EHDI Reporting, forms, protocols, facilities, OVERS Hearing Screening Module, 1-3-6 Newborn Hearing Screening Checklist For Parents: Information on hearing screening (what it involves and why it’s important), follow-up (what happens if a newborn doesn’t pass a screening), Early Intervention/Family Services, Guide By Your Side (a Hands & Voices program that matches trained parent guides with families who have recently found out their child has a hearing loss), and other resources for families

American Cochlear Implant Alliance

https://www.acialliance.org/

Facebook page

Twitter

Contains information about research, awareness, and advocacy around cochlear implants. Information about hearing loss and cochlear implants in general.

Oregon Association for Deaf
https://oad1921.org/

Advocates for the rights of people who are Deaf and Hard of Hearing in Oregon. The website contains articles, meeting and conference information, and youth opportunities.

Hearing Loss Association of America – Oregon State Association 
https://www.hlaa-or.org/about-us.html

Education, Information and Advocacy.

Early Hearing Detection and Intervention (EHDI)
https://www.cdc.oov/ncbddd/hearinqloss/e hdi-programs.html

Information about EHDI programs Information for families including:

     • Questions You May Want to Ask Your Child’s Audiologist

     • Just in Time for Pediatric Primary Care Providers

FACEBOOK EVENTS

ASL Social Chat:

EVERY SUNDAY @ 12:00noon to 2:00 pm

VANCOUVER MALL – Food Court [2nd floor]

Host by: Gary Holden

ASL Social Chat:

Host by: Gary Holden

PORTLAND OPEN-CAPTIONED MOVIES:

(See FB page for MORE information)

Order Tickets online @ bagdadmovies.com

Host by: Isaac Stone Dick

ASL NIGHT GAMES (announcing soon)

Every Second Saturday evening

ASL Game Night page for more information.

Host by: Stephen RodBjorn

World Deaf Timberfest

Camp Taloali

Contact for information: Andrea Albers

Pacific Northwest Deaf Golf Association (PNWDGA) and Portland Metro Deaf Golf Association (FB Page).

(See FB Page for MORE information)

Host by: Craig Marineau

Northwest Deaf Traveling League (NWDTL)

(Deaf/HOH Bowling Club)

Contact: Melody Kitty McDaniel and Andrea Albers

NW Deaf Poker Tournaments

Announcement in Jan/Feb 2022 !!!

Host by: James Forncrook

CYMASPACE: Announcement SOON

Host by: Myles de Bastion

Deaf Massage Therapist (see link below)

www.openhandhealth.com/book-now

Host by: Clara Bella Storry Parnell

(Email: clara@openhandhealth.com)

ASL Coffee Podcast – see announcements on regular posting:

https://www.facebook.com/groups/334857136618534/user/100069324005062/

ASL Coffee Chats @ 3pm on Fridays at Hidden Creek Community Center in Hillsboro

To find a Deaf ASL tutor or mentor, see ASL TUTORS AND MENTORS FB page.

Bridges in Oregon

https://www.facebook.com/BridgesOregon

Source: https://www.facebook.com/groups/portlandaslevents/

AG Bell Association for the Deaf and Hard of Hearing
AG Bell is another convenient resource for those seeking in-person hearing loss support groups, with 
41 active chapters across the United States and Puerto Rico. Specifically designed to support children with hearing loss and their families, AG Bell hosts everything from social events to informational sessions for individuals and families impacted by hearing loss; connect with your nearest chapter to learn more. You can also join the AG Bell Facebook group to connect with fellow members online.

DeafandHoH Forum

DeafandHoH is a website featuring hearing loss news, a discussion forum, resources for financial aid and other services, search directories for audiologists, hearing care facilities, speech-language pathologists, and more. The topics covered on the site include living with hearing loss, caring for a family member or friend with hearing loss, American Sign Language, and hearing loss products. You can also join open chat nights on select Wednesdays from 6pm-7pm PST / 9pm-10pm EST to enjoy live interaction!

 

CALL TO ACTION FOR PEER SUPPORT

https://www.nasmhpd.org/sites/default/files/Assessment-5_Deaf-and-Hard-of-Hearing-Peer-Support.pdf

https://www.transformation-center.org/home/community/deaf-and-hard-of-hearing-recovery-project/

https://www.nasmhpd.org/sites/default/files/BeingSeen.pdf

https://www.hearinglikeme.com/why-we-need-deaf-peer-support-in-our-communities/

https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1018&context=jadara

12-Step online for Deaf and Hard of Hearing

Sounds of Sobriety (SOS):  This online email group was formed to help us who have a hearing loss (deaf, deafened, or hard of hearing) to find a place to recover from alcoholism. For many of us, face-to-face AA meetings no longer work. All members of AA, or those who think they may have a problem with alcohol, are welcome.    SOS_online_group-subscribe@yahoogroups.com

Deaf Grateful:  This is a real-time open discussion meeting on Saturday at 4 pm (EST) for deaf & HOH people who have a desire to stop drinking. Meeting uses videoconferencing software (easily downloaded) that requires a high speed internet connection and a webcam. Our communication mode is ASL only (no audio). http://doda.omnijoin.com

Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support

https://pubmed.ncbi.nlm.nih.gov/23149648/

Is Telemental Health Services a Viable Alternative to Traditional Psychotherapy for Deaf Individuals?

https://pubmed.ncbi.nlm.nih.gov/27260308/

https://www.arundellodge.org/omhc/telemental-health-for-deaf-and-hard-of-hearing/

Deaf Centric Approach / Peer Support Program

https://www.minnpost.com/mental-health-addiction/2016/01/alison-aubrecht-peer-support-program-takes-deaf-centric-approach-men/

Dec
6
Tue
01 – Support Line – L4L Racial Equity Support Line – BIPOC Lived Experience @ 1-503-575-3764 or Toll Free – Lines for Life – Weekdays – 8:30am to 5:00pm PST @ Phone
Dec 6 all-day
01 - Support Line - L4L Racial Equity Support Line - BIPOC Lived Experience @ 1-503-575-3764 or Toll Free - Lines for Life - Weekdays - 8:30am to 5:00pm PST @ Phone

 

Crisis / Support Line For Racial Equity Support

503-575-3764
Answered by BIPOC counselors 
M-F from 8:30 AM -5:00 PM PST

The Racial Equity Support Line is a service led and staffed by people with lived experience of racism. We offer support to those who are feeling the emotional impacts of racist violence and microaggressions, as well as the emotional impacts of immigration struggles and other cross-cultural issues.

Many of us experience racism every day.

Unfortunately, we live in a culture where racist acts happen often. From workplaces to housing to healthcare, we know that our communities aren’t getting the same kind of treatment as others.

Experiencing racism can harm our mental wellness.

Whether in small acts, or violent ones, racial bias can have serious emotional impacts. Racism changes how we see the world around us. It’s stressful to worry about how people see us as different or dangerous. It’s exhausting to notice the ways that people treat us as less-than, day in and day out. It’s heartbreaking to turn on the news and learn about more violence against people who look like us.

We get it. And we’re here to talk. To support. To connect.

The person who answers may be a stranger – but we understand what you’re going through. We’ll listen to your situation as you talk through your feelings, and we may offer resources based on what seems most helpful to you.

Call us today at 503-575-3764.

This line is available weekdays from 8:30am to 5pm, Pacific Standard Time.

If you have questions or want to reach the Director of Equity Initiatives, please email Donna Harrell at DonnaH@linesforlife.org.

Toll-Free Access

If you need toll-free access, call any line at Lines for Life and ask to be transferred to the Racial Equity Support Line during its operating hours.

For example, you can call the Suicide Prevention Crisis Line @ 1-877-273-8255 or the Safe+Strong Helpline @ 1-800-923-4457 and ask to be transferred to the Racial Equity Support Line between 8:30am and 5pm PST.

04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Dec 6 all-day

 

Suicide Prevention Resource Center

 

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Resource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS