PeerGalaxy Calendar
Welcome to PeerGalaxy Calendar featuring offerings of telephone + online peer support + wellness activities!
WE ARE PEER FOR YOU!
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If you have an event to add, email us: webmail@peergalaxy.com
Training Opportunities in July 2020
List Provided Courtesy of State of Oregon, Oregon Health Authority
Click here to download PDF Format, 16 pages
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
What: Phoenix Society for Burn Survivors
Join us for a live, weekly chat about common issues and questions facing burn survivors and their loved ones.
Every week, Peer Support Chat offers a vital connection to the burn community for burn survivors and family members. In this online conversation, moderated by trained peer supporters, participants from all over the world can address questions and concerns about burn recovery.
Peer Support Chat is hosted on Facebook every Wednesday from 9 – 10:30 pm EST. / & 6-7:30 am PST
How do I join?
You must request to join the Peer Support Chat Facebook group to participate in chat. You may send a request at anytime but requests will only be approved between 9:00 PM – 10:30 PM (EST). The group is “closed,” which means all members must be approved by Chat Moderators. When you request to join, you’ll be asked basic questions about your connection to the burn community. This helps us ensure all members are directly connected to the issues discussed.
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
What: Phoenix Society for Burn Survivors
Join us for a live, weekly chat about common issues and questions facing burn survivors and their loved ones.
Every week, Peer Support Chat offers a vital connection to the burn community for burn survivors and family members. In this online conversation, moderated by trained peer supporters, participants from all over the world can address questions and concerns about burn recovery.
Peer Support Chat is hosted on Facebook every Wednesday from 9 – 10:30 pm EST. / & 6-7:30 am PST
How do I join?
You must request to join the Peer Support Chat Facebook group to participate in chat. You may send a request at anytime but requests will only be approved between 9:00 PM – 10:30 PM (EST). The group is “closed,” which means all members must be approved by Chat Moderators. When you request to join, you’ll be asked basic questions about your connection to the burn community. This helps us ensure all members are directly connected to the issues discussed.
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html
Reach Out Oregon / Oregon Family Support Network
Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467
Weekdays 12pm-7pm PST except holidays
Welcome to Reach Out Oregon!
Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing. Shame and stigma surrounding these issues can make it even more challenging.
As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:
- Inspiration
- Connection
- Compassion
- Support
Family Self-Care during COVID-19
- Have a special friendly online conversation about Family Self-Care during COVID-19.
- More events coming, stay tuned.
- Learn about fun activities to bring back to your family.
- If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/
Discussion Forum
https://www.reachoutoregon.org/discussions/
Family Self Care Discussion:
https://www.reachoutoregon.org/forums/forum/self-care/
Reach Out Oregon Website
https://www.reachoutoregon.org
Crisis Support
https://www.reachoutoregon.org/crisis-support/
Listening Support
https://www.reachoutoregon.org/listening-support/
Resource Support
https://www.reachoutoregon.org/resources/
What: Phoenix Society for Burn Survivors
Join us for a live, weekly chat about common issues and questions facing burn survivors and their loved ones.
Every week, Peer Support Chat offers a vital connection to the burn community for burn survivors and family members. In this online conversation, moderated by trained peer supporters, participants from all over the world can address questions and concerns about burn recovery.
Peer Support Chat is hosted on Facebook every Wednesday from 9 – 10:30 pm EST. / & 6-7:30 am PST
How do I join?
You must request to join the Peer Support Chat Facebook group to participate in chat. You may send a request at anytime but requests will only be approved between 9:00 PM – 10:30 PM (EST). The group is “closed,” which means all members must be approved by Chat Moderators. When you request to join, you’ll be asked basic questions about your connection to the burn community. This helps us ensure all members are directly connected to the issues discussed.
Gender Spectrum works to create gender sensitive and inclusive environments for all children and teens. Gender Spectrum offers over 25 online groups for parents and teens.
In the Gender Spectrum Lounge you can find the list of groups to explore or sign up for. There is a great variety of topics featured.
https://lounge.genderspectrum.org/groups/
Registration required. See group description for contact information details.
Additional online groups, webinars, recordings, and events online including resources related to the pandemic at:
https://www.genderspectrum.org/articles/blog-covid-resources
Additional resources specific for schools and professionals, too.
Website:
https://www.genderspectrum.org
Facebook:
https://www.facebook.com/GenderSpectrum/
Twitter:
https://twitter.com/genderspectrum
Phoenix Society for Burn Survivors – Peer Support, Chat, Workshops and more!
What:
Virtual peer support, chat, and community drop-in for adult, family and youth burn survivors
Weekly online hour-long Peer Support Chat via Facebook
Wednesdays
6-7:30pm PST / 9-10:30pm EST (90 minutes)
To join via Facebook:
Send a request via Facebook. Note, requests are only approved at the meeting time(s). This group is “closed” meaning it is only open to people with lived experience, not 3rd party observers, etc. You will be asked to answer some questions and approval to join is determined by the Chat Moderator(s). This helps us ensure all members are directly connected to the issues discussed.
Spanish / Espanol Online Virtual Peer Support for Adult Burn Survivors
Online Burn Survivors Support Group for Spanish-speaking burn survivors. The Group is for burn survivors 18 years or older.
3rd Tuesdays
7-8:30pm PST (90 minutes)
Contact Margarita Rodriguez at 818-848-0223 X 16 or email mrodriguez@aarbf.org RSVP.
Youth & Family Online Peer Support
Connect with kids, teens, and families for a live, interactive support group from anywhere in the world!
We’re responding to the community’s request to offer virtual gatherings for kids, teens, and their grown-ups. Join us for interactive activities and peer support specially crafted for this age group! Fill out this online form to request info on active groups online via WebEx:
http://www.phoenix-society.org/what-we-do/youth-family-online
Burn Survivors, Loved Ones Virtual / Call in Support Groups
A facilitated support group for adult burn survivors and loved ones – hosted at various times so participants can join from different time zones.
To honor their support needs, we ask that all participants identify within these categories. In other words, it is a “closed” group, limited to adult burn survivors and/or their loved ones. Basic Ground Rules will be shared to create a supportive setting.
* Except holidays
1st and 3rd Mondays *
10:30-11:30am PST (60 minutes)
2nd and 4th Mondays *
5-6pm PST (60 minutes)
To join online via WebEx (video and/or telephone) and for more information, visit:
https://www.phoenix-society.org/what-we-do/virtual-support-group
There is a sign up sheet and an Virtual online group safety agreement to complete.
https://www.phoenix-society.org/virtual-group-safety-agreement
Burn support professionals
Consider joining the Webinar+ Roundtable. Learn from other leaders in the burn community and share your wisdom in this collaborative conversation about online support groups and more.
Link:
https://www.phoenix-society.org/what-we-do/webinar-roundtable/virtual-support-groups
Burn Community Drop ins via Zoom
For anyone within the burn community! Survivors, firefighters, nurses, loved ones, etc.
The last event was Sun Aug 2nd @ 4:30pm PST
Check this web page link for the schedule of upcoming drop in events:
http://www.phoenix-society.org/what-we-do/burn-community-drop-in
Join online via Zoom during meeting times:
https://us04web.zoom.us/j/2622176875
Meeting ID: 262 217 6875
(Phone not available at this time)
Other virtual support
Be sure to check out other virtual peer support events, conferences and activities online at these links.
Calendar Page:
http://www.phoenix-society.org/community-calendar
Resources Page:
http://www.phoenix-society.org/resources
Website features: Stories, tools, and information to power your healing journey.
Personal Stories
http://www.phoenix-society.org/resources?hierarchicalMenu%5Bfields.topics.lvl0%5D=Stories&page=1
Online Courses
Videos
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Video&page=1
Fact Sheets
http://www.phoenix-society.org/resources?refinementList%5Bfields.type%5D%5B0%5D=Factsheet&page=1
Special Events
Special events include but are not limited to the Virtual Burn Camp Retreat, conferences, advocacy congress, trainings and more.
More about the Phoenix Burn Society:
Mission
Uniting the voice of the burn community around the globe to profoundly advance lifelong healing, optimal recovery, and burn prevention.
Testimonial Quote
“You immediately feel like you have this family, that you never knew you had.”
—Rebekah Johnson, Phoenix WBC Attendee + Speaker
Subscribe
Sign-up for a Subscription to Burn Support Magazine
AARP Family Caregiving Resource Line
AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Agents can’t provide specific advice to callers, but they can suggest resources on a variety of caregiving topics.
Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.
Agents are Available on Weekdays, Monday-Friday from 4am-8pm PST / 7am-11pm EST
English: 1-877-333-5885
En Español / Spanish: 1-888-971-2013
NEW: CONNECTIONS WEBSITE
https://aarpcommunityconnections.org
NEW: MUTUAL AID GROUPS – Informal groups of volunteers that band together to find effective ways to support those people most in need who live in their local community. Mutual aid can include picking up groceries, providing financial assistance, or lending emotional support to your neighbors. Visit https://aarpcommunityconnections.org/find-group/
Q: How can I find support groups for family caregivers? English. En Español / Spanish.
A: Here are some resources
Finding the Right Support Group – Read this First. An excellent article about the types of support groups available. https://www.aarp.org/caregiving/life-balance/info-2017/support-groups.html.
Benefits of support groups may include but not be limited to: a safe place for sharing, venting, validating, comparing, uniting, advocating, finding social connection, and building community.
Caregiving.com – Caring for you as you care for family. Online calendar of virtual support events: https://www.caregiving.com/calendar/
Community Resource Locator – an online database from AARP and the Alzheimer’s Association, provides easy access to a variety of local programs, resources and services. https://www.communityresourcefinder.org/
Family Care Navigator – the Family Caregiver Alliance’s tool that helps locate state-by-state assistance for family caregivers. 800-445-8106. https://www.caregiver.org/family-care-navigator
The Eldercare Locator – a public service of the U.S. Administration on Aging that connects you to services for older adults and their families such as respite care, insurance counseling, transportation and other services for older Americans and family members. They can also be reached at 1-800-677-1116. https://eldercare.acl.gov/Public/Index.aspx
AARP Caregiving Community Forum – an online discussion and support forum on all topics related to caregiving. https://community.aarp.org/t5/Caregiving/Welcome-to-the-AARP-Caregiving-Community/m-p/1786782#M3126
Caregiver Action Network – Information, educational materials and support for family caregivers. Toll Free phone number: 855-CARE-640
National Alliance for Caregiving – a coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients. Phone: 202-918-1013. https://www.caregiving.org
National Institute on Aging – an arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.. 800-222-2225. https://www.nia.nih.gov/
Well Spouse Association – provides support for spousal caregivers, including a national network of support groups and an online chat forum. 800-838-0879. https://wellspouse.org/
VA (Veterans Administration) National Caregiver Support Line (CSL) – serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by. The National Caregiver Support Line, at 1-855-260-3274, is open weekdays, Monday through Friday from 5am to 5pm PST. https://www.caregiver.va.gov/help_landing.asp
Rosalyn Carter Institute for Caregiving – Education, Research, Advocacy and more. http://www.rosalynncarter.org/
Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools. 800-272-3900. http://www.alz.org/
Alzheimers.gov – a federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers. 800-438-4380. https://www.alzheimers.gov
Memory Cafe Directory – lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations. https://www.memorycafedirectory.com/
AARP care guides – FREE, in-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources.
Prepare to Care: A Planning Guide for Families. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families. https://www.aarp.org/content/dam/aarp/caregiving/2018/02/prepare-to-care-guide-english-aarp.pdf
Military Caregiving Guide: For Veterans, Service Members and Their Families – A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities. https://www.aarp.org/content/dam/aarp/caregiving/2019/05/military-caregiving-guide-aarp.pdf
For more resources, visit:
https://www.aarp.org/caregiving/local/info-2017/important-resources-for-caregivers.html