PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

Click the Accessibility Button on the right side, halfway down in the middle, for enhanced viewing and/or access options!  Click the Translate Button in the lower left corner for language options. 

Your use of this site is subject to the Privacy Policy, Terms and Conditions of Use.  Reminder: Fees or charges may be charged by your carrier for sending or receiving SMS text messaging, phone, or data.

If you have an event to add, email us: webmail@peergalaxy.com

Training Opportunities in July 2020
List Provided Courtesy of State of Oregon, Oregon Health Authority
Click here to download PDF Format, 16 pages

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Aug
12
Fri
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 12 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Aug 12 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

AM – All Month – OAPS – Oregon Alliance to Prevent Suicide – Oregon LGBTQ2SIA+ Suicide Prevention – Youth Resources – Family Resources
Aug 12 all-day

The Oregon Alliance to Prevent Suicide has created a county-based LGBTQ+ Youth Resource List.  ( 14 Pages in PDF Format) 

>>> Check it out here <<<

and share with partners.

The Oregon Alliance to Prevent Suicide

Statewide Suicide Prevention Liaison:
Annette Marcus
Email:amarcus@aocmhp.org
Phone: (503) 399-7201

Suicide Prevention Project Specialist:
Jennifer Fraga
Email: jfraga@aocmhp.org
Phone: (503) 399-7201

MORE OREGON RESCOURCES

Crisis & Support Lines

OREGON LGBTQ CRISIS LINES

Local, state, national and LGBTQ crisis and support resources.

CRISIS & SUPPORT LINES

If you are experiencing a life-threatening emergency, please call 911.

If you or a friend are experiencing suicidal thoughts or are having a crisis and need support, contact Oregon’s Lines for Life: 800-273-8255.

Lines for Life will connect you with 24-hr crisis lines that provide crisis intervention and targeted support for youth, families, older adults, military service members and veterans for mental health crises and support, suicide prevention, help with addiction and recovery and racial equity and support – in partnership with the Oregon Health Authority.

English: 800-273-8255
En español: 888-628-9454
TTY: 800-799-4TTY (4889)

Oregon YouthLine: 877-968-8491.

Oregon YouthLine is a peer crisis line for youth ages 21 and younger. Teens are available to help daily, 4 to 10 p.m. Pacific Time (off-hour calls answered by adult call counselors) or chat online at the YouthLine website.

Text:teen2teen” to 839863
Chat online: at YouthLine website

24/7 Crisis Text Line: Text 741741 with the message “Home” for support any time, night or day.

National Suicide Prevention Lifeline – National suicide prevention support, available 24/7. Call: 800-273-8255.

Nacional de Prevención del Suicidioin Spanish call: 888-628-9454.

LGBTQ CRISIS LINES & ONLINE CHAT

Trevor Lifeline (for LGBTQ youth) 24 hours: 1-866-488-7386.

TrevorChat is available 24/7 days a week, or you can text the word “START” to 678-678, available 24/7.

CHAT SPACE FOR LGBTQ YOUTH

Q Chat Space is an online community chat for LGBTQ youth and teens who are questioning their identity, ages 13-19, facilitated by staff and volunteers from LGBTQ community centers around the country. Provides a place to connect and get access to information and resources. Q Chat Space is a program of CenterLink, the national organization for LGBTQ community centers.

Oregon Child Abuse Hotline – to report child abuse and neglect call: 855-503-SAFE (7233), available 24/7.

PARENT SUPPORT LINES

Reach Out Oregon WarmlineParent Support Line call: 833-732-2467, Monday – Friday 12-7 pm PST (except for holidays).

A parent / caregiver support service that provides peer support, access to services and referrals for parents and caregivers with a child or youth experiencing emotional, behavioral and mental health challenges. The warmline is a project of Reach Out Oregon and the Oregon Family Support Network.

 

Oregon-Based LGBTQ Services& Support

OREGON LGBTQ RESOURCES & SUPPORTS

Selected resources listed on this website focus on providing services and support to reduce mental health risks and promote well-being for LGBTQ young people.

RESOURCES FOR PEOPLE OF COLOR

Asian Pacific Island Pride
Non-profit organization that serves LGBTQ API communities in greater Portland and provides safe and supportive environments to celebrate, educate and bring communities together. apipride@gmail.com

Native American Youth and Family Center (NAYA)
A multi-service agency that provides a wide range of services and supports for Native American children, youth, adults and families, including Two-Spirit and LGBTQ support groups and events.

PDX Latinx Pride – Pride events in Portland for the Latinx LGBTQ community, families and allies. Central facebook page provides a space to connect throughout the year – www.facebook.com/PDXlatinxpride

Portland Two-Spirit Society
P2SS is a social, cultural, educational, resource group for the LGBTIQ Native American/Alaskan Natives and their families; to come together and share, connect, reclaim, and restore culture and community.

Sankofa Collective Northwest
Sankofa provides support, education and advocacy for Black families, friends and LGBTQ people through monthly support groups, faith outreach, mini-grants and an annual Portland Black Pride celebration. Sankofa began as the first African American chapter of PFLAG in the U.S. and relaunched as the Sankofa Collective Northwest in 2016.

Utopia PDX – United Territories of Pacific Islanders Alliance Portland
Portland chapter of a nonprofit organization by and for queer and trans Pacific Islanders that provides support, community organizing, political engagement, and cultural stewardship. https://www.facebook.com/utopiaportland

 

YOUTH RESOURCES – STATE ACCESS

SMYRC (Sexual & Gender Minority Youth Resource Center)
SMYRC’s on-site center in Portland provides a safe, supervised, harassment-free space for sexual and gender minority youth ages 13-23 who participate in positive activities such as art, music, community organizing, open mic nights, drag shows, and support groups and receive services including case management, resource referral, counseling, and education. Through Bridge 13, SMYRC provides LGBTQ trainings, educational workshops and consultations for social support staff, health professionals, youth providers, and educators. SMRYC also helps families and youth find local resources in their communities that support LGBTQ youth and families.

Oregon Queer Youth Summit
A conference held by and for queer and trans identified youth and their allies from the state of Oregon. Leadership development and organizing events happens year-round.

SCHOOL RESOURCES – STATEWIDE

Oregon Safe Schools & Communities Coalition (OSSCC)
A coalition of public and private organizations in Oregon that supports community efforts to reduce youth suicide and risk behaviors for LGBTQ youth. Provides education, data collection, and support services to create safe schools and communities for youth, teachers, and families.

GSA (Genders & Sexualities Alliance) School Clubs
GSA school clubs are available in many Oregon schools to provide support for LGBTQ students and allies and to provide education and events to promote safer schools and communities. Individual GSAs are listed by county and by school. (See National listings for information on GSA Network – a national organization that provides education and training to help students and local GSA clubs in schools to advocate for safer schools and policies to protect LGBTQ students from harassment and victimization.)

GLSEN Oregon
State chapter of the national organization that works to ensure safe schools for all students. GLSEN’s state chapter supports students and educators to adopt LGBTQ-affirming public policy, plan teacher trainings, and hold events for students, educators, parents, and allies.

FAMILY RESOURCES

Basic Rights Oregon Fierce Families Network
Advocates for public policy that meets the needs of a breadth of the LGBTQ communities. Provides and distributes resources to help families understand their LGBTQ+ children.

Pride Foundation Scholarship Program
Community foundation that funds LGBTQ programs and supports in the Northwest, and funds scholarships for LGBTQ student leaders.

YOUTH & FAMILY RESOURCES BY COUNTY

BENTON COUNTY

Cheldelin Middle School Pride Club
Cheldelin Middle School sponsored group that provides a confidential, safe space for students to support each other.

Corvallis High School Sexuality And Gender Alliance (SAGA)
A Corvallis High School sponsored GSA group that promotes understanding, acceptance and inclusion of all.

CLACKAMAS COUNTY

Clackamas High School GSA
A Clackamas High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Milwaukie High School & Milwaukie Academy of the Arts Queer-Straight Alliance
A Milwaukie High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

The Living Room
A safe space that provides peer support and youth drop-in services, resources to promote personal growth and leadership skills, to build relationships and promote positive development of LGBTQ youth and allies.

Youth ERA Clackamas
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

CLATSOP COUNTY

Astoria High School Rainbow Alliance (GSA)
An Astoria High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Lower Columbia Q Center
A community center that provides a range of resources and support activities for LGBTQ youth and adults, including youth support and educational activities.

Seaside High School GSA
A Seaside High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

COLUMBIA COUNTY

Scappoose High School FLATH/GSA
A Scappoose High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

COOS COUNTY

PFLAG Coos Bay/South Coast
A Coos Bay/South Coast chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Youth ERA Coos
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

CROOK COUNTY

PFLAG Central Oregon
A Central Oregon chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

PFLAG Prineville
A Prineville chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

CURRY COUNTY

Brookings-Harbor High School LGBTQ+ and Straight Alliance Club
A Brookings-Harbor High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Curry County
Curry County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

DESCHUTES COUNTY

PFLAG Central Oregon
A Central Oregon chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Mountain View High School GSA
A Mountain View High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

DOUGLAS COUNTY

PFLAG Douglas County
A Douglas County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

HOOD RIVER COUNTY

Hood River Valley High School GSA
A Hood River Valley High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

JACKSON COUNTY

Lotus Rising Project
A community organization in Southern Oregon that provides activities and services for LGBTQ youth and adults.

Phoenix High School GSA
A Phoenix High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Youth ERA Medford
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

JOSEPHINE COUNTY

Grants Pass High School Southern Oregon Pride (GSA)
A Grants Pass High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Grants Pass
A Grants Pass chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

LANE COUNTY

Churchill High School GSA
A Churchill High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Sheldon High School GSA
A Sheldon High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

South Eugene High School GSA
A South Eugene High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Trans*Ponder
A Lane County parent support group for families and caregivers with gender diverse children.

Willamette High School GSA
A Willamette High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion. https://www.facebook.com/Willamette-High-School-GSA-273630792665482

Youth ERA Eugene
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

LINCOLN COUNTY

Newport High School GSA
A Newport High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Oregon Central Coast
Oregon Central Coast chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

The Bravery Center
A resource center that provides a safe space for LGBTQ+ youth, ages 14-24, in Lincoln County.

LINN COUNTY

Intersection Connection via Zoom
A support group for area middle and high school students with regular meetings held on Zoom.

Out-N-About
A support group for high school-aged LGBTQ youth in Linn and Benton with regular meetings via Zoom.

MARION COUNTY

PFLAG Salem
Salem chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Rainbow Youth
Support groups for middle and high school students in Marion and Polk Counties. Services include social activities, and individual support.

Youth ERA Salem
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

MULTNOMAH COUNTY

Asian Pacific Island Pride
Non-profit organization that serves LGBTQ API communities in greater Portland and provides safe and supportive environments to celebrate, educate and bring communities together. apipride@gmail.com

Brave Space, LLC
An organization that provides counseling and support and facilitates access to knowledgeable providers for transgender and genderqueer young people, adults and their families.

Bridging Voices
A chorus for LGBTQ+ and allied youth, ages 13-21 in a safe, accessible place for youth to experience empowerment and unity through music. Bridging Voices is Portland’s first LGBTQ+ and Allied Youth Chorus and is one of the largest choruses of its kind.

Cascade AIDS Project (CAP)
A multi-service agency that provides a range of health, education housing and peer support services for adults. Also provides services for youth. Includes Prism Health that provides gender affirming care.

Native American Youth and Family Center (NAYA)
A multi-service agency that provides a wide range of services and supports for Native American children, youth, adults and families, including Two-Spirit and LGBTQ support groups and events.

OHSU Transgender Health Program
Health care services for transgender for gender diverse children, youth and adults at Oregon Health and Science University (OHSU). Provides information, referrals and access to resources.

Outside In Transgender Health Services
Health care and social services for youth experiencing homelessness and others. Provides an LGBTQ affirming medical clinic, transgender care, housing assistance, a Queer Zone group and a community drop-in center.

P:ear
Organization that provides a safe space, food, recreation, and mentorship through art, barista, and bike mechanic programs for youth who are experiencing homelessness and unstable housing.

PFLAG Portland
Portland chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Portland Two-Spirit Society
P2SS is a social, cultural, educational, resource group for the LGBTIQ Native American/Alaskan Natives and their families; to come together and share, connect, reclaim, and restore culture and community.

Prism Healthcare Clinic
Health care agency that provides a wide range of services for LGBTQ people, including primary care and behavioral health services and counseling, gender-affirming care and STI testing.

Q Center
Portland’s LGBTQ community center. Provides a range of support groups, activities and a directory of local LGBTQ resources and referrals. Support groups are provided for adults related to gender identity, addiction recovery, veterans, seniors and a support group for youth under age 18.

Quest Center for Integrative Health
Health center that provides health and mental health care to youth and adults that includes counseling, LGBTQ health services, HIV services and wellness care.

Sankofa Collective Northwest
Sankofa provides support, education and advocacy for Black families, friends and LGBTQ people through monthly support groups, faith outreach, mini-grants and an annual Portland Black Pride celebration. Sankofa began as the first African American chapter of PFLAG in the U.S. and relaunched as the Sankofa Collective Northwest in 2016.

SMYRC (Sexual & Gender Minority Youth Resource Center)
SMYRC’s on-site center in Portland provides a safe, supervised, harassment-free space for sexual and gender minority youth ages 13-23 who participate in positive activities such as art, music, community organizing, open mic nights, drag shows, and support groups and receive services including case management, resource referral, counseling, and education. Through Bridge 13, SMYRC provides LGBTQ trainings, educational workshops and consultations for social support staff, health professionals, youth providers, and educators.

TransActive Gender Project
A program at Lewis & Clark that provides services and support for transgender and gender diverse children, youth, and families, including support groups for children and youth (ages 4-18), caregivers and families, as well as advocacy, counseling and referrals.

POLK COUNTY

Dallas High School GSA
A Dallas High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion. https://www.facebook.com/Dallas-High-School-GSA-702785019853083

PFLAG Salem
A Salem chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Rainbow Youth
Organization that provides safe and welcoming spaces for LGBTQIA+ youth and their friends to find connection, support, and friendship in Marion and Polk Counties. Provides support meetings for middle and high-school aged youth, ages 18 and under.

UMATILLA COUNTY

PFLAG Pendelton
Pendelton chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

UNION COUNTY

PFLAG Union County
Union County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents. https://www.facebook.com/PflagUnionCounty

WALLOWA COUNTY

Safe Harbors
Community organization that provides education and outreach with crisis intervention and advocacy services for survivors of domestic, sexual and dating violence for youth and adults.

WASHINGTON COUNTY

Beaverton High School GSA
A Beaverton High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Hillsboro High School GSA
A Hillsboro High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Sherwood High School Sexuality & Gender Alliance (SAGA)
A Sherwood High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

 

 

Research-Based Publications for Families withLGBTQ Children

EVIDENCE-BASED FAMILY GUIDANCE RESOURCES

The evidence-based resources included here were developed by the Family Acceptance Project (FAP) and are rooted in FAP’s groundbreaking research with LGBTQ youth, young adults and families. This research and guidance from the lived experiences of ethnically, racially and religiously diverse families with LGBTQ young people enabled FAP to develop the first evidence-based family support model to prevent health risks and promote well-being for LGBTQ children and youth. FAP continues to produce a series of evidence-based resources to help to decrease health risks and promote well-being for LGBTQ children and youth.

FAMILY EDUCATION BOOKLETS

“Best Practice” Resources for Suicide Prevention for LGBTQ Youth
(English, Spanish & Chinese and a growing series of faith-based versions)

Key information from FAP’s research on how families can help support their lesbian, gay, bisexual and transgender (LGBTQ) children to reduce health risks and support positive development. These family education booklets have been designated as “Best Practice” resources for suicide prevention for LGBTQ young people by the Best Practices Registry for Suicide Prevention.

HEALTHY FUTURES POSTER SERIES

Available from FAP in 10 languages, including English, Spanish, Chinese (traditional and simplified), Hindi, Korean, Japanese, Punjabi, Tagalog and Vietnamese. Other versions are in development.

Series of 3 posters that tell the “story” of family accepting and rejecting behaviors and show how these behaviors contribute to serious health risks including suicidal behavior and drug use and how they help protect against risk and promote well-being. Each poster includes common accepting and rejecting behaviors that are expressed across diverse cultures. The posters are available to download free in 4 sizes and include the camera-ready art to take to a commercial printer.

DEVELOPING THE FIELD OF FAMILY SUPPORT FOR LGBTQ CHILDREN & YOUTH

Providing Services & Support

Although it may seem surprising to many people who are concerned about the health and well-being of children and youth, before the Family Acceptance Project was established 20 years ago, no one had studied LGBTQ young people and families. As a result, many mainstream services, including government agencies, have not included services and support for diverse families with LGBTQ children. As the Family Acceptance Project has shown, families can learn to support their LGBTQ children when services are provided in ways that are culturally relevant for them. Culturally appropriate services are needed to help families learn to support their LGBTQ children to reduce serious health risks, strengthen families and support positive development. Use this website to learn about these issues to provide support for LGBTQ children, youth and families – urgently needed now as LGBTQ young people and families are coping with the losses from Covid-19.

FAITH COMMUNITIES AND THE WELL-BEING OF LGBTQ YOUTH

A publication for faith communities and families on supporting LGBTQ youth to prevent mental health risks and to increase support, published by the Group for the Advancement of Psychiatry. GAP is a professional organization of thought leaders in the field of psychiatry who provide guidance on addressing critical emerging mental health issues.

Selected National LGBTQ Services& Support

NATIONAL LGBTQ RESOURCES & SUPPORTS

Selected resources listed on this website focus on providing services and support to reduce mental health risks and promote well-being for LGBTQ young people.

ACCESS TO LGBTQ COMMUNITY CENTERS & LOCAL RESOURCES ACROSS THE U.S.

CenterLink
CenterLink is a nonprofit organization that provides capacity building and connects more than 270 LGBTQ community centers across the U.S. in 45 states, Puerto Rico and the District of Columbia, as well as several other countries. CenterLink provides a searchable database of LGBTQ centers where LGBTQ people, families, providers and others can find and access LGBTQ services in their communities, including counseling and support services.

Family Acceptance Project
The Family Acceptance Project (FAP) is a research, education and training program that helps ethnically, racially and religiously diverse families to support their LGBTQ children. FAP conducted the first research on LGBTQ youth and families and developed the first evidence-based family support model to help families to decrease rejection and health risks and to increase support and well-being for LGBTQ young people. FAP provides training for agencies, families, providers and religious leaders on increasing family support to reduce risk for suicide, homelessness and other serious health risks and using FAP’s multilingual educational materials and family support framework, also available online.

PFLAG
PFLAG is a national organization with 400 chapters across the U.S. that provides education and support for parents, families, and friends of LGBTQ people through individual and peer support groups, public education and advocacy. Parents and others can search PFLAG’s website to find chapters and support in local communities, in person and online. Local Oregon PFLAG chapters are listed by county under Oregon-Based LGBTQ Services & Support.

TransFamilies
TransFamilies provides support services and education for transgender people and their families, including an annual conference for families and their transgender children (Gender Odyssey). Formerly called Gender Diversity, TransFamilies provides online parent support groups in English & Spanish, a transgender youth leadership program and youth support groups, as well as training for schools and organizations.

Gender Spectrum 
Gender Spectrum provides education and support for families with transgender and gender diverse children and youth, support groups and an annual conference for children, youth and families. Gender Spectrum also provides training for schools and organizations working with children and teens.

SCHOOL-BASED RESOURCES

GSA Network – Genders & Sexualities Alliance (GSA) Network
GSA Network is a national youth-led organization that provides networking and support for GSAs – school clubs that provide education, peer support and activities to promote safer schools. GSA Network connects LGBTQ+ youth and school-based GSA clubs through peer support, leadership development, community organizing and advocacy and works with a network of 40 statewide organizations representing more than 4,000 GSA clubs across the country. GSAs in Oregon schools are listed by county under Oregon-Based LGBTQ Services & Support.

GLSEN
GLSEN is a national network of educators, students, and local GLSEN Chapters that work to promote safe schools for LGBTQ students. GLSEN provides resources for educators and students, conducts school climate research, provides guidance on comprehensive school policies and information on bullying and school safety.

Safe Schools Coalition
The Safe Schools Coalition is a public-private partnership in Washington State that was among the first school-based initiatives to support LGBTQ students. The Coalition hosts a longstanding website with resources to help promote safe schools and to implement its mission of “helping schools become safe places where every family can belong, where every educator can teach, and where every child can learn, regardless of gender, gender identity or sexual orientation.”

Campus Pride
Campus Pride is a national organization working to create a safer college environment for LGBTQ students by developing resources, programs and services to support LGBTQ and ally students on college campuses across the U.S. This includes hosting Camp Pride, a summer leadership camp for LGBTQ and ally students to learn campus strategies to develop supportive campus environments and leadership skills, LGBTQ college fairs and information on the campus safety, visibility and affirmation for LGBTQ students.

FAITH-BASED ORGANIZATIONS

Affirmation LGBTQ Mormons Families & Friends
An international organization that promotes understanding, acceptance, and self-determination for individuals with diverse sexual orientations, gender identities and expressions for current and former members of the Church of Jesus Christ of Latter-day Saints. Provides allyship, ministering, and educational resources and an annual international conference.

Beloved Arise
An organization that provides resources and support to empower LGBTQ teens across Christian denominations through youth programs, advocacy and ally engagement opportunities and resources for other faith-based organizations.

Brethren Mennonite Council
A nonprofit group that is committed to providing mutual support for families with gay, lesbian, bisexual, transgender and intersex members. This includes LGBTQ people, families and allies, to worship, educate and provide mutual support

DignityUSA
A national Catholic organization that provides support for people of all sexual orientations, genders, and gender identities—especially gay, lesbian, bisexual, and transgender persons. Provides opportunities for worship, service, education and social justice.

Equally Blessed
A coalition of Call to Action, DignityUSA, and New Ways Ministry that seeks to educate and inspire Catholics to take action on behalf of LGBTQ and intersex people, their families and friends.

Eshel
An organization that works with individuals, families, and the Orthodox Jewish community to support LGBTQ members. Eshel has chapters in cities in the U.S. and Canada that provide activities, parent retreats, a speakers bureau and access to LGBTQ resources in the U.S. and Israel.

Freed Hearts
A Christian organization that helps parents, LGBTQ people, educators, therapists, and churches to create safe spaces, inspiration and encouragement. Provides resources ranging from books, podcasts, video courses and social media, including a YouTube Channel.

Friends for Lesbian, Gay, Bisexual, Transgender, and Queer Concerns
A North American Quaker faith community that holds online gatherings and worship.

Fortunate Families
A national Catholic organization and parent network that supports LGBTQ family members and facilitates conversations with bishops, pastors and Catholic Church leadership through sharing personal stories and working to establish Catholic LGBTQ Ministries in dioceses, parishes, educational institutions, and communities.

Galva – 108
An international, nonprofit religious organization – Gay & Lesbian Vaishnava Association – that provides information and support to LGBTI Vaishnavas and Hindus, their friends, and other interested persons.

Jewish Queer Youth
A group that supports and empowers LGBTQ youth in the Jewish community with a focus on teens and young adults from Orthodox, Chasidic, and Sephardic communities. Provides Drop-In Center, and services for parents, teens, and families.

Keshet
An organization that works for the full equality of LGBTQ Jews and families. Helps Jewish organizations with the skills to build LGBTQ-affirming communities, spaces for queer Jewish youth, and advances for LGBTQ rights. Offers professional development, training and consultation, youth initiatives, programs for LGBTQ Jews of Color, leadership projects and community learning.

Many Voices
A Black church movement for gay and transgender justice. Equips and brings forward Black leaders that support LGBT equality and justice through educational workshops, seminars, and dialogues – in-person and online.

Mama Dragons
An organization founded by Mormon mothers with LGBTQ children that supports, educates, and empowers mothers of LGBTQ children through a private Facebook and regional groups to support and advocate for their LGBTQ children.

Muslim Alliance for Sexual and Gender Diversity
An organization that works to support, empower and connect LGBTQ Muslims. Provides educational classes, retreats, advocacy, and resources including lectures, films video, podcasts, and blogs.

Muslims for Progressive Values
An organization that reflects Islam as a source of dignity, justice, compassion, and love for all. Offers spiritual counseling, chaplain endorsement and lectures and speaking engagements. Provides support for LGBTQ people and access to resources.

Q Christian Fellowship
An organization that cultivates radical belonging among LGBTQ+ people and allies through an annual conference, community groups, Parent Summit, and a variety of resources.

United Church of Christ LGBT Ministries
Christian religious organization that includes local churches and a global ministry. Has a specific ministry to LGBTQ people and families.

Unity Fellowship Church Movement
Unity Fellowship Church Movement is the first affirming and welcoming Black church for lesbian, gay, bisexual and transgender persons with several congregations across the U.S. Members of the public can RSVP to attend services online.

AM – All Month – Sexual Assault Action Month – Domestic/sexual violence materials, resources, and actions happening across Oregon
Aug 12 all-day
AM - All Month - Sexual Assault Action Month - Domestic/sexual violence materials, resources, and actions happening across Oregon

 

Sexual Assault Action Month

 

Domestic/sexual violence materials, resources, and actions happening across Oregon

Oregon State Proclamation of Sexual Assault Action Month from the Office of Governor Brown

Presidential Proclamation of Sexual Assault Awareness and Prevention Month

VALOR 2022 SAAM Toolkit
“ValorUS (VALOR) leads with prevention of sexual violence. For 2022 Sexual Assault Awareness Month (SAAM), we have released this free toolkit to empower you to lead your own community. With the theme of “Collective Action for Equity,” these resources support you to spread the message of prevention of sexual violence.”
Download in English and Spanish here

Caja De Herramientas Yo Soy SAAM 2022– A collection of 39 original and curated resources for bililngual advocates from ALAS members and allies

Reclaim/Reclama 2022 – SARC’s annual art magazine, highlighting the art of those who have been impacted by sexual violence, will be shared digitally this year at sarcoregon.org and on social media (Facebook and Instagram) through the month of April at @sarcoregon.

Events

Domestic Violence for Mental Health Providers

The first three sessions, Understanding, Screening for, and Intervening in Domestic Violence is available right now to view on demand, the recording of our fourth session will be on our YouTube channel Thursday April 21st.

Open House and Art Gallery at the Family Justice Center 

Take a tour of the Family Justice Center in Washington County (FJC) and meet the other organizations co-located at FJC supporting folks who have experienced violence. View art created by people impacted by violence, collected through the Sexual Assault Resource Center’s Reclaim/Reclama Magazine. Join us on April 24th, 2022 from 2:00 pm to 5:00 pm at 735 SW 158th Ave Suite 100 Beaverton, OR 97006. Reading of the Proclamations and some speaking from survivors of violence will start at 4:00 pm. This event is free and open to the public!

Yo Soy SAAM Webinarios offered by Alianza Latina en contra la Agresión Sexual

Talking Healthy Relationships: A Conversation Guide for Parents & Caregivers

Victim Rights Law Center When Rape Results in Pregnancy: The intersection of Rape and Abortion    

Virtual April 27th at 3pm PST

Hosted by the Victim Rights Law Center (VRLC), “When Rape Results in Pregnancy: The Intersection of Sexual Violence and Abortion,” will examine the intersection of abortion laws and rape and bring together a diversity of speakers in the medical, legal, legislative, and academic fields. Listen to experts share their insights on this complex issue, and learn how you can support survivors who become pregnant resulting from an assault.  100% of proceeds will go towards supporting survivors of rape and sexual assault. Visit our website to learn more about our panelists and the event.

Ask an Expert Series Webinar: Male Victims and Human Trafficking

April 28th at 3pm EST (12pm PST)

What services and support are needed for men and boys who are victims of human trafficking? How are these services different from their female counterparts? Ensuring equity and inclusion of services for all victims of human trafficking means addressing the needs of male victims. Join three national experts for this discussion on male victims’ experiences with sex and labor trafficking. Panelists will share their insight on needed services, how to talk about human trafficking and develop outreach materials in ways that are inclusive of males, and where to find additional resources on this topic.

Events

Rose Haven Open House Event

Virtual Mental Health First Aid

Tuesday April 26th at 9am PST

Offered by Lines for Life, mental Health First Aid (MHFA) teaches people to identify, understand, and respond to signs and symptoms of mental health and substance use challenges.

Register here

Exploring the Incidence and Impact of Economic Abuse Among Teens

Tuesday, April 26th at 11am PST

Offered by Futures Without Violence. Despite the potential lifetime impacts, economic abuse has been long overlooked among teen dating partnerships. Knowing what is at stake, Futures Without Violence in partnership with The Allstate Foundation and University of Pittsburgh Medical Center surveyed nearly 3,000 teens to explore how economic abuse – from disrupting education to interfering with employment to financial control – shows up in their relationships. The findings are eye-opening.

Register here

Interrupting Anti-Blackness Workshop

Tuesday, April 26th & Wednesday, April 27th at 2:30pm PST

This two-part workshop series with Washington Nonprofits is a case study centered workshop for Community leaders, Accountants, Front line workers, Middle Management Professionals, Executive Directors, Nonprofit Professionals, Educators, Board Members and co-conspirators who are committed to deepening their understanding of why Black liberation practices are crucial in interrupting anti-Black racism, macroaggressions, and white supremacist systems. This webinar will not be recorded.

Learn more here

Ask an Expert Series Webinar: Male Victims and Human Trafficking

Thursday, April 28th at 12pm PST
What services and support are needed for men and boys who are victims of human trafficking? How are these services different from their female counterparts? Ensuring equity and inclusion of services for all victims of human trafficking means addressing the needs of male victims. Join three national experts for this discussion on male victims’ experiences with sex and labor trafficking. Panelists will share their insight on needed services, how to talk about human trafficking and develop outreach materials in ways that are inclusive of males, and where to find additional resources on this topic.

Register here

NNEDV Advocacy Days 

June 7th- June 8th 
Trainings June 1st & 2nd

Register here

 

 

Opportunities and things to know about

 

Oregon DOJ launched Sanctuary Promise Hotline

Today, Oregon Department of Justice launches our Sanctuary Promise Hotline!  This program is designed to receive reports from and provide support to individuals and families targeted in violation of Oregon’s longstanding sanctuary laws.  Victims, witnesses, concerned community members, and whistleblowers can report violations to these laws, access culturally responsive support, and request a DOJ investigation into any violations of the laws.

Allstate Foundation Moving Ahead Grant Program

$1.5 Million in Funding for State Domestic Violence Coalitions Committed to Providing Financial Empowerment Services for Survivors
Over the past 16 years, The Allstate Foundation has invested more than $85 million to end relationship abuse. As part of this national effort, The Allstate Foundation is proud to continue the Moving Ahead Grant Program – a competitive grant program for U.S. state and territory domestic violence coalitions committed to the development, acceleration, and implementation of financial empowerment services for relationship abuse survivors.
This year, up to $1.5 million in Moving Ahead grants will support innovative financial empowerment programs that provide financial education services to survivors, through the implementation of The Allstate Foundation Moving Ahead Curriculum and asset-building activities in at least one of the following categories: job readiness and job training; survivor matched savings programs; micro-loans; credit building and/or repair; and micro-enterprise programs.
Eligible state and territory domestic violence coalitions are invited to apply. Grant applications will be accepted March 28 – April 25, 2022. Visit the Moving Ahead Grant Program landing page to learn more about the funding opportunity and requirements, and to register for an informational webinar.

Learn about The Allstate Foundation’s mission and our 70-year history of improving communities across the country.

NNEDV and GNWS launches Lila.Help

Advocates around the world have been discussing the need for a vetted global directory for many years and the pandemic has made the need for online resources even more clear. As a founding member of the GNWS, NNEDV has worked with the Global Network of Women’s Shelters to bring together advocates from across the globe. Since Lila.Help was conceptualized in 2019, NNEDV has partnered in its development and worked closely with other regional and national networks to bring Lila.help to fruition. This directory is a great step toward ensuring survivors around the world are connected to help, including having NNEDV’s resources.

Learn more here

OVW Grants Solicitation Announcements

Check out some of these opportunities for OVW funding

Grants.gov Deadline: April 19
JustGrants Deadline: April 21

Grants.gov Deadline: April 21
JustGrants Deadline: April 26

Grants.gov Deadline: April 26
JustGrants Deadline: April 28th

Recent Job Openings

Sexual Assault Support Services
(Eugene) 
Resiliency Skills Coordinator

Shelter from the Storm
(LaGrande)
Executive Director

OASIS
(Gold Beach)
Program Manager
Systemic Navigator (Co-Located Advocate)

YWCA
(Portland)
Resident Services

Helping Hands Against Violence
(Hood River) 
Outreach Coordinator

Raphael House
(Portland) 
Primary Advocate (Bilingual)
View all available Raphael House positions

NAYA
(Portland)
Domestic Violence Advocate
Click here to view all available NAYA positions

Clackamas Women’s Services
(Clackamas) 
Case Manager
Latina Counselor

Sexual Assault Task Force 
(Keizer)
Executive Director

Portland Community College
(Cascade)
Criminal Justice Faculty Instructor

Self Enhancement Inc.
(Portland)
Domestic Violence Advocate
Domestic Violence Program Manager

Familias En Acción
(Portland + Salem Metro)
HIV/STI Program Coordinator

University of Oregon
(Eugene)
Staff Attorney, DV Clinic

Douglas County Task Force
(Douglas County) 
Family Violence Coordinator

Ohio Domestic Violence Network
(Ohio)
Administrative Coordinator

California Partnership to End Domestic Violence
(California)
Director of Prevention Strategies
Spanish Language Interpreter/Translator Specialist
Lead Spanish Language Interpreter/ Translator Specialist

Futures without Violence
(San Francisco, CA) 
Program Specialist- Health and Workplace

Utah Domestic Violence Coalition
(Utah)
Communications and Engagement Specialist

Violence Free Minnesota
(Minnesota) 
Technology Justice Project Program Manager

Illinois Coalition Against Domestic Violence
(Illinois)
Administrative Assistant
Director of Fatality Review/ Fatality Review Coordinator
Strategic Partnerships Coordinator
Fiscal Technical Assistance Coordinator

North Carolina Coalition Against Domestic Violence
(North Carolina) 
Finance Director

NNEDV
(Washington D.C.)
Capacity Technical Assistance (CTA) Coordinator
Vice President of External Affairs
Transitional Housing and Positively Safe Coordinator

Is your organization hiring? Attach the job listing document in an email to Rowan@ocadsv.org to be sent along our listservs and to be in the next digest!

Submit Job Posting!

 

Our Work Groups and Caucuses

Advocates! Did you know that we have work groups and caucuses for you to connect with other advocates and get support for struggles you may be experiencing?

Click here to get involved!

AM – All Month – Veteran Quick Resource List by NAMI Multnomah – Weekdays & Weekends
Aug 12 all-day

Oregon Veterans Resources may include but not be limited to:

>> DROP IN RESOURCE LIST

 

VA Community Resource & Referral Center (CRRC)

308 SW 1st Ave

Portland, OR 97204

503- 808-1256 or 800-949-1004 Ext: 51256

WEEKDAYS 8 A.M. TO 3 P.M.

THURSDAYS 10 A.M. TO 3 P.M.

Transition Projects Day Center at Bud Clark Commons

650 NW Irving Street

Portland, OR 97209

MONDAY – FRIDAY 7 A.M. TO 7 P.M.

WEEKENDS 8 A.M. TO 4 P.M.

Multnomah County Veterans’ Services Offices (VSO)*

Lincoln Building

421 SW Oak Street, Room 100

Portland, OR 97204

EVERY TUESDAY: 9 A.M. TO 12:00 P.M.

EVERY FRIDAY: 9 A.M. TO 12:00 P.M.

 

East Area Office

600 NE 8th Street, Room 100\

Gresham, OR 97030

EVERY THURSDAY 9:00 A.M. TO 11:30 A.M.

 

North / Northeast Area Office

5325 NE Martin Luther King Blvd

Portland, OR 97239

EVERY FRIDAY 2:00 P.M. TO 4:00 P.M.

Portland VA Medical Center

3710 SW U.S. Veterans Hospital Road

Portland, OR 97239

EVERY TUESDAY, WEDNESDAY, AND THURSDAY 1:00 P.M. TO 3:30 P.M.

*Walk-ins are unavailable at all Multnomah County VSO locations on the last working day of every month due to VA claims deadlines.

>> CALL RESOURCE LIST

 

211Info
Dial: 2-1-1

Transition Projects Veterans Hotline
855-425-5544

Multnomah County Veterans’ Services
503-988-VETS (8387)

   Email: veteran.services@multco.us

   Call or email any time to schedule an appointment or see VSO drop-in hours.

Veterans Crisis Line
800-273-8255

Call Center for Homeless Veterans
877-424-3838

Multnomah County Veterans’ Services Aging, Disability & Veteran Services Helpline
503-988-3646

 

>>WEB RESOURCE LIST

https://www.quickresourceguide.veteran 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

QuickResourceGuide.Veteran

HLAAOR – Hearing Loss Association of America/Oregon – Meetings and Resources @ Online Register for Details
Aug 12 all-day

 

 

Hearing Loss Association of America/Oregon Meetings and Resources, 2021

HLAA of Portland meets the third Saturday each month (except June, July, and August) 10 am, in the Wistar Morris Conference Room in the Main Hospital Building on the Legacy Good Samaritan Campus, 1015 NW 22nd Ave. (at Marshall), Portland, 97210. Contact Mark Foster, president; email: hlaportland@gmail.com. Write P.O. Box 2112, Portland, OR 97208-2112; http://www.hlaa-or.org/portlandchapter.html.

HLAA of Lane County meets quarterly: second Thursday in March, June, Sept., and Dec., at 7 p.m. at the Hilyard Community Center, 2580 Hilyard St., Eugene. Right now we are scheduled to meet in person June 10 unless COVID-19 infections mandate otherwise.

Mail: P.O. Box 22501, Eugene, OR 97402. Clark Anderson; email: clarkoa@msn.com

HLAA of Linn and Benton counties meets the last Wednesday each month (except June, July, & Dec.) at 6:30 p.m. at the Reimar Building, next to Albany General Hospital, 1085 6th Ave. SW, Albany, OR 97321. Contact: John Hood-Fysh, email: jhoodfysh@gmail.com; 541/220-8541 (cell – call or text), 818 Broadalbin St. SW, Albany, OR 97321.

Note: HLAA of Douglas County no longer meets the requirements for a 501(c)(3) nonprofit. Reinstatement may occur, but right now, this group meets as a support group. Contacts: Vincent Portulano, president, email: HLAADC@outlook. com; or Ann Havens, secretary, 541/673-3119. Check with them for location for meetings and time.

NATIONAL HLAA EVENT CALENDARS

HLAA Calendar

https://www.hearingloss.org/programs-events/calendar/

HLAA Leaders Calendar

https://hlaagroups.hearingloss.org/g/HLAALeaders/calendar

HLAA Subgroups

https://hlaagroups.hearingloss.org/g/HLAALeaders/subgroups

HLAA Virtual Meetings / Captioned Recordings

https://www.hearingloss.org/hearing-help/communities/hlaa-national-virtual-meetings/

 

MORE RESOURCES

Hands and Voices
https://www.handsandvoicesor.org

Supports families and children who are deaf and hard of hearing, by connecting parents, mentorship, educational advocacy, community development and support programs. Collaborates with professionals to support families.

FACT Oregon
https://www.factoregon.org/

Supports, empowers and advocates for families who experience disability.

Family to Family Health Information Center
Oregon Family-to-Family Health Information Center | OHSU

Supports families and caregivers of children with special health needs to navigate the healthcare system. Many resources on the website.

AG Bell Oregon 
https://www.agbell.org/Connect/Oregon-Chapter

  • Facebook page – AG Bell Oreoon
  • Instagram – aobelloreoon

Local chapter of a national organization. The focus is to promote listening and spoken language education, advocate for accessibility, educational services, and health-related rights, and create connections and memories together.

Oregon Early Hearing Detection and Intervention (EHDI) Program

https://www.oreown ov/oha/PDH/HeaIthvP eooleFamilies/Babies/HeaIthScreenino/He arinqscreenino/Paoes/index asox

For Providers: Information on EHDI Reporting, forms, protocols, facilities, OVERS Hearing Screening Module, 1-3-6 Newborn Hearing Screening Checklist For Parents: Information on hearing screening (what it involves and why it’s important), follow-up (what happens if a newborn doesn’t pass a screening), Early Intervention/Family Services, Guide By Your Side (a Hands & Voices program that matches trained parent guides with families who have recently found out their child has a hearing loss), and other resources for families

American Cochlear Implant Alliance

https://www.acialliance.org/

Facebook page

Twitter

Contains information about research, awareness, and advocacy around cochlear implants. Information about hearing loss and cochlear implants in general.

Oregon Association for Deaf
https://oad1921.org/

Advocates for the rights of people who are Deaf and Hard of Hearing in Oregon. The website contains articles, meeting and conference information, and youth opportunities.

Hearing Loss Association of America – Oregon State Association 
https://www.hlaa-or.org/about-us.html

Education, Information and Advocacy.

Early Hearing Detection and Intervention (EHDI)
https://www.cdc.oov/ncbddd/hearinqloss/e hdi-programs.html

Information about EHDI programs Information for families including:

     • Questions You May Want to Ask Your Child’s Audiologist

     • Just in Time for Pediatric Primary Care Providers

FACEBOOK EVENTS

ASL Social Chat:

EVERY SUNDAY @ 12:00noon to 2:00 pm

VANCOUVER MALL – Food Court [2nd floor]

Host by: Gary Holden

ASL Social Chat:

Host by: Gary Holden

PORTLAND OPEN-CAPTIONED MOVIES:

(See FB page for MORE information)

Order Tickets online @ bagdadmovies.com

Host by: Isaac Stone Dick

ASL NIGHT GAMES (announcing soon)

Every Second Saturday evening

ASL Game Night page for more information.

Host by: Stephen RodBjorn

World Deaf Timberfest

Camp Taloali

Contact for information: Andrea Albers

Pacific Northwest Deaf Golf Association (PNWDGA) and Portland Metro Deaf Golf Association (FB Page).

(See FB Page for MORE information)

Host by: Craig Marineau

Northwest Deaf Traveling League (NWDTL)

(Deaf/HOH Bowling Club)

Contact: Melody Kitty McDaniel and Andrea Albers

NW Deaf Poker Tournaments

Announcement in Jan/Feb 2022 !!!

Host by: James Forncrook

CYMASPACE: Announcement SOON

Host by: Myles de Bastion

Deaf Massage Therapist (see link below)

www.openhandhealth.com/book-now

Host by: Clara Bella Storry Parnell

(Email: clara@openhandhealth.com)

ASL Coffee Podcast – see announcements on regular posting:

https://www.facebook.com/groups/334857136618534/user/100069324005062/

ASL Coffee Chats @ 3pm on Fridays at Hidden Creek Community Center in Hillsboro

To find a Deaf ASL tutor or mentor, see ASL TUTORS AND MENTORS FB page.

Bridges in Oregon

https://www.facebook.com/BridgesOregon

Source: https://www.facebook.com/groups/portlandaslevents/

AG Bell Association for the Deaf and Hard of Hearing
AG Bell is another convenient resource for those seeking in-person hearing loss support groups, with 
41 active chapters across the United States and Puerto Rico. Specifically designed to support children with hearing loss and their families, AG Bell hosts everything from social events to informational sessions for individuals and families impacted by hearing loss; connect with your nearest chapter to learn more. You can also join the AG Bell Facebook group to connect with fellow members online.

DeafandHoH Forum

DeafandHoH is a website featuring hearing loss news, a discussion forum, resources for financial aid and other services, search directories for audiologists, hearing care facilities, speech-language pathologists, and more. The topics covered on the site include living with hearing loss, caring for a family member or friend with hearing loss, American Sign Language, and hearing loss products. You can also join open chat nights on select Wednesdays from 6pm-7pm PST / 9pm-10pm EST to enjoy live interaction!

 

CALL TO ACTION FOR PEER SUPPORT

https://www.nasmhpd.org/sites/default/files/Assessment-5_Deaf-and-Hard-of-Hearing-Peer-Support.pdf

https://www.transformation-center.org/home/community/deaf-and-hard-of-hearing-recovery-project/

https://www.nasmhpd.org/sites/default/files/BeingSeen.pdf

https://www.hearinglikeme.com/why-we-need-deaf-peer-support-in-our-communities/

https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1018&context=jadara

12-Step online for Deaf and Hard of Hearing

Sounds of Sobriety (SOS):  This online email group was formed to help us who have a hearing loss (deaf, deafened, or hard of hearing) to find a place to recover from alcoholism. For many of us, face-to-face AA meetings no longer work. All members of AA, or those who think they may have a problem with alcohol, are welcome.    SOS_online_group-subscribe@yahoogroups.com

Deaf Grateful:  This is a real-time open discussion meeting on Saturday at 4 pm (EST) for deaf & HOH people who have a desire to stop drinking. Meeting uses videoconferencing software (easily downloaded) that requires a high speed internet connection and a webcam. Our communication mode is ASL only (no audio). http://doda.omnijoin.com

Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support

https://pubmed.ncbi.nlm.nih.gov/23149648/

Is Telemental Health Services a Viable Alternative to Traditional Psychotherapy for Deaf Individuals?

https://pubmed.ncbi.nlm.nih.gov/27260308/

https://www.arundellodge.org/omhc/telemental-health-for-deaf-and-hard-of-hearing/

Deaf Centric Approach / Peer Support Program

https://www.minnpost.com/mental-health-addiction/2016/01/alison-aubrecht-peer-support-program-takes-deaf-centric-approach-men/

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Aug 12 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

YE – YouthERA – Open Registration – Uplift Peer Support Training for Young People @ Register for Details
Aug 12 all-day

 

Uplift Peer Support Training for Young People

Uplift Trainings registration is live!

 

Uplift by Youth Era is a virtual summit for young people ages 14-21. The event is designed to motivate, empower, and support you to change your life and the lives of those around you. The event is packed with engaging lectures, challenging discussions, and impactful activities. You will take yourself to the next level and make a commitment to bettering yourself and those around you.

With funding from OHA, youth aged 14-21 years old, across Oregon will have the opportunity to attend Uplift, a virtual mental health summit created by Youth Era and the University of Oxford. Registration is free and youth across Oregon can sign up  here

Aug
13
Sat
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 13 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – MHA – Mental Health America – Mental Health Month 2022 – Resources – American Indian/Alaska Native – Asian/Pacific – Arab/Muslim/Middle Eastern/South Asian – Black/African American – Latinix/Hispanic – Multiracial
Aug 13 all-day

A MESSAGE FROM MHA’S CEO

Mental Health America has long been at the forefront of progressive values in mental health care. We pride ourselves on being community-oriented and led by the voices of those with lived experience. Throughout our history, we have sought to lift the stories of individuals who are traumatized by discrimination or mistreatment.

MHA’s commitment began with our founder Clifford Beers, who sought to lead a social reform movement to end the inhumane institutionalization of those with mental illness. This undertaking changed the landscape of mental health care in America. Our Mental Health Bell, forged in 1953 from smelt-down shackles that used to bind “asylum patients,” is our proudest symbol. It rings out in hope for those oppressed by systemic injustices which undermine the mental health and well-being of marginalized and disenfranchised individuals and communities.

This month of July, we turn our hearts and minds to the mental health of individuals and communities of color with the release of this Toolkit.

Even as we look toward the future and prioritize the unique needs of the next generation, we must first look to the past to honor and learn from our history. July was first recognized as Bebe Moore Campbell National Minority Mental Health Awareness Month in 2008. Campbell was a pioneer, author, and commentator, whose writings and advocacy highlighted the mental health of diverse communities in the U.S. Without her tireless dedication to the unique needs of Black and minoritized communities, the month of July would not be dedicated to promoting the mental health of BIPOC people.

Working for equity requires ongoing reflection and evolution. We are continually learning in our quest to be consistently and accountably equitable, and we know we have a long way to go before we can claim equity in mental health. Compared to their white counterparts, Black, Indigenous, and people of color are less likely to seek or gain access to mental health services and are less likely to receive high quality care which is culturally responsive and reflective. Barriers such as a high likelihood of being uninsured, differences of communication styles and language, and well-founded mistrust of mental health treatment also contribute to the inequities.

We acknowledge these serious inequities, and we are taking action to push for increased access to mental health care and improvements in culturally and linguistically responsive community-based approaches to healthcare. This includes bringing new voices, perspectives and representation to the table, increasing the amount of diverse educational materials, translating resources, and creating an equity-driven strategy to guide all of our work in public education, research, community-based care, and policy and advocacy.

We are using the term “BIPOC” to encompass all people and communities of color. We know that inclusive language and respect for individual self-identification is critical. We are listening to the voices of lived experience and evolving with them.

MHA hopes that each of you reading this will join us on this journey of learning and action as we move forward, together.

President & CEO, Mental Health America

Download the Full BIPOC Mental Health Month Toolkit

Full Toolkit (PDF)

Rescource page header

 

WEBPAGES:

●  BIPOC Communities and COVID-19: https://mhanational.org/bipoc-communities-and-covid-19

●  BIPOC Mental Health: https://www.mhanational.org/bipoc-mental-health

●  Health Care Disparities Among Black, Indigenous, and People of Color:

https://www.mhanational.org/issues/healthcare-disparities-among-black-indigenous-and-people-color

●  How to Be An Ally in the Fight Against Racial Justice: https://mhanational.org/blog/how-be-ally-

fight-against-racial-injustice-and-better-mental-health-all

●  How to Find an Anti-Racist Therapist: https://screening.mhanational.org/content/how-find-anti-

racist-therapist/?layout=actions_ah_topics

●  I’m Angry About the Injustices I See Around Me: https://screening.mhanational.org/content/im-

angry-about-injustices-i-see-around-me/?layout=actions_ah_topics

●  Infographic- BIPOC and LGBTQ: https://www.mhanational.org/infographic-bipoc-and-lgbtq-

mental-health

●  Is My Therapist Being Racist?: https://screening.mhanational.org/content/my-therapist-being-

racist/?layout=actions_ah_topicsMental Health

●  Racial Trauma: https://mhanational.org/racial-trauma

●  Racism and Mental Health: https://mhanational.org/racism-and-mental-health

●  Take a Mental Health Screening: https://screening.mhanational.org/screening-tools

WEBINARS:

●  Back To Basics: Impact Of Culture On Mental Health Conversations:

https://mhanational.org/events/back-basics-impact-culture-mental-health-conversations

●  Racial Trauma and Communities of Color: Assessment and Treatment: https://mhanational.org/events/racial-trauma-and-communities-color-assessment-and- treatment

EN ESPAÑOL:

●  Prueba de Ansiedad: https://screening.mhanational.org/screening-tools/test-de-ansiedad/

●  Prueba de Depresión: https://screening.mhanational.org/screening-tools/test-de-depresion/

●  Recursos En Español: https://mhanational.org/recursos-en-espan

 

AMERICAN INDIAN/ALASKA NATIVE RESOURCES

●  All My Relations Podcast: https://www.allmyrelationspodcast.com/

●  American Indian Health and Family Services: https://aihfs.org/about/

●  Anxiety and Depression Association of America: Native and Indigenous Communities:

https://adaa.org/find-help/by-demographics/native-indigenous-communities

●  Behavioral Health Services for American Indians and Alaska Natives For Behavioral Health Service Providers, Administrators, and Supervisors: https://store.samhsa.gov/sites/default/files/d7/priv/tip_61_aian_full_document_020419_0.pdf

●  Center for Native American Youth: https://www.cnay.org/

●  Healthy Native Youth: https://www.healthynativeyouth.org/

●  Indian Health Service: https://www.ihs.gov/

●  Indigenous Story Studio: https://istorystudio.com/

●  MHA: Native and Indigenous Communities and Mental Health:

https://www.mhanational.org/issues/native-and-indigenous-communities-and-mental-health

●  National American Indian and Alaska Native Mental Health Technology Transfer Center Network: https://mhttcnetwork.org/centers/national-american-indian-and-alaska-native-mhttc/home

●  National Indian Health Board: https://www.nihb.org/index.php

●  Native Americans for Community Action: https://nacainc.org/

●  Native Hope: https://www.nativehope.org/

●  One Sky Center- The American Indian/Alaska Native National Resource Center for Health, Education,

and Research: https://www.oneskycenter.org/

●  SAMHSA Circles of Care: https://www.samhsa.gov/tribal-ttac/circles-care

●  SAMHSA Tribal Affairs: https://www.samhsa.gov/tribal-affairs

●  StrongHearts Native Help Line: https://strongheartshelpline.org/

●  WeRNative: https://www.wernative.org/

 

ASIAN/PACIFIC RESOURCES

● Asian American Health Initiative: https://aahiinfo.org/

○ Asian American Health Initiative Mental Health Resources: https://aahiinfo.org/aahi-

resources/#mental-health-resources

●  Asian American Psychological Association: https://aapaonline.org/

●  Asian Americans with Disabilities Initiative: https://www.aadinitiative.org/

○ The Asian Americans with Disabilities Initiative Resource Guide: https://static1.squarespace.com/static/60cfe519bb807927ef5c9cd0/t/61e05e61718a1e76a5b848b 2/1642094184561/AADI%2B2022%2BResource%2BGuide-011222.pdf

●  Asian and Pacific Islander American Health Forum: https://www.apiahf.org/

●  Asian Mental Health Collective: https://www.asianmhc.org/

●  Asian Pacific Community In Action: https://apcaaz.org/

●  Asian Pacific Institute on Gender Based Violence: https://www.api-gbv.org/

●  Asian Pride Project: http://asianprideproject.org/

●  Coming Out Living Authentically as LGBTQ+ Asian and Pacific Islander Americans: https://assets2.hrc.org/files/assets/resources/HRC-Coming_Out-API-FINAL-web-2018.pdf

●  Mental Health Association For Chinese Communities: https://www.mhacc-usa.org/

●  Mustard Seed Generation: https://www.mustardseedgeneration.org/

●  National Asian American Pacific Islander Mental Health Association: https://www.naapimha.org/

●  National Queer Asian Pacific Islander Alliance: https://www.nqapia.org/

●  Stop AAPI Hate: https://stopaapihate.org/

●  Viet Care: https://www.viet-care.org/

 

ARAB/MUSLIM/MIDDLE EASTERN/SOUTH ASIAN RESOURCES

●  Arab-American Family Support Center: https://www.aafscny.org/

●  Desi/LGBTQ+ Helpline: https://www.deqh.org/

●  Institute for Muslim Mental Health: https://muslimmentalhealth.com/

●  Islamic Relief USA: https://irusa.org/

●  Khalil Center: https://khalilcenter.com/

●  Mannmukti: https://mannmukti.org/

●  Muslim Mental Health Toolkit: https://www.ispu.org/mental-health/

●  Resources for Muslim Mental Health Advocates: https://muslimmentalhealth.com/

●  My Mantra: https://www.mymantrawellness.com/

●  Naseeha Mental Health Helpline: https://naseeha.org/

●  Sakhi for South Asian Women: http://sakhi.org

●  South Asian Americans Leading Together (SAALT): https://saalt.org/

●  South Asian Mental Health Initiative & Network (SAMHIN): https://samhin.org/

●  South Asian Network: https://www.southasiannetwork.org/

●  South Asian Sexual and Mental Health Alliance: https://www.sasmha.org/

●  South Asian Therapists: https://southasiantherapists.org/

●  The South Asian Public Health Association: https://joinsapha.org/

●  What Does Islam Say About Mental Health?: https://www.amaliah.com/post/62822/mental-health-

in-islam-quran-and-hadith-mental-health-depression-in-islam

●  Yalla! Let’s Talk: https://yallaletstalk.com/

 

BLACK/AFRICAN AMERICAN RESOURCES

●  AAKOMA Project: https://aakomaproject.org/

●  Black Emotional Mental Health (BEAM): https://beam.community/

●  Black Men Heal: https://blackmenheal.org/

●  Black Women’s Health Imperative: https://bwhi.org/

●  Eustress: https://www.eustressinc.org/

●  GirlTrek: https://www.girltrek.org/

●  MHA: Reimagining Self-Care for Black Folks: https://www.mhanational.org/blog/reimagining-self-

care-black-folks

●  National Black Justice Coalition: https://nbjc.org/

●  Ourselves Black: https://ourselvesblack.com/

●  Sista Afya: https://www.sistaafya.com/

●  The Black Mental Wellness Lounge: https://www.facebook.com/TheBlackMentalWellnessLounge/

●  The Boris Lawrence Henson Foundation: https://borislhensonfoundation.org/

●  The Confess Project: https://www.theconfessproject.com/

●  The Loveland Foundation: https://thelovelandfoundation.org/

●  Therapy for Black Girls: https://therapyforblackgirls.com/

●  Therapy for Black Men: https://therapyforblackmen.org/

●  Tips for Self-Care for Black Families: https://www.onoursleeves.org/mental-health-

resources/minority-mental-health/self-care-for-black-families

 

LATINX/HISPANIC RESOURCES

●  American Society of Hispanic Psychiatry: https://www.americansocietyhispanicpsychiatry.com/

●  Caminar Latino: https://caminarlatino.org/

●  Esperanza United: https://esperanzaunited.org/en/

●  Estoy Aqui: https://estoy-aqui.org/

●  Latino Equality Alliance: https://www.somoslea.org/

●  Latinx Therapists Action Network: https://latinxtherapistsactionnetwork.org/

○ Latinx Therapy Podcast: https://latinxtherapy.com/podcast/

●  Latinx Therapy: https://latinxtherapy.com/

●  MHA- Latinx/Hispanic Communities- Información Y Materiales De Salud Mental En Español:

https://mhanational.org/latinxhispanic-communities-informacion-y-materiales-de-salud-

mental-en-espanol

●  NAMI: Compartiendo Esperanza: https://www.nami.org/Support-Education/Mental-Health-

Education/NAMI-Compartiendo-Esperanza-Mental-Wellness-in-the-Latinx-Community

●  National Alliance for Hispanic Health: https://www.healthyamericas.org/

●  National Latino Behavioral Health Association: http://www.nlbha.org/

●  Sad Girls Club: https://sadgirlsclub.org/

●  The Latinx Mental Health Podcast: https://www.latinxmhpodcast.com/

●  Therapy for Latinx: https://www.therapyforlatinx.com/

●  UnidosUS: https://www.unidosus.org/

●  Yo Soy Ella: https://www.yosoyella.org/

 

MULTIRACIAL RESOURCES

●  American Association for Marriage and Family Therapy: Multiracial Families: https://www.aamft.org/Consumer_Updates/Multiracial_Families.aspx

●  APA Bill of Rights For People Of Mixed Heritage: https://www.apa.org/pubs/videos/4310742- rights.pdf

●  For Multiracial People Toolkit: https://thetoolkit.wixsite.com/toolkit/for-multiracial-people-families

●  Mandala Center for Change: Multi-Heritage and Mixed Race Resources: https://www.mandalaforchange.com/resources/articles/multi-heritage-mixed-race-resources/

●  Mixed in America: https://www.mixedinamerica.org/

○ Mixed Identity Workbook: https://www.mixedinamerica.org/free-workbook/

●  Mixed Life Media: https://www.mixedlife.net/

●  NPR Code Switch Team: https://www.npr.org/sections/codeswitch/

○ Racial Imposter Syndrome- Here are your stories: https://www.npr.org/sections/codeswitch/2018/01/17/578386796/racial-impostor-syndrome- here-are-your-stories

●  Resources That Explore Identity for Multicultural or Mixed-Race Families: https://socialworklicensemap.com/blog/resources-explore-multicultural-identity-mixed-race- families/

●  The Wholeness of Being a Mixed Race Person: https://www.inclusivetherapists.com/blog/the- wholeness-of-being-a-mixed-race-person

●  Toward Racial Justice- Multiracial Family Dynamics: https://www.youtube.com/watch?v=z9K_tyymNp0

●  Why Imposter Syndrome Goes Deep for Multiracial People: https://mhanational.org/blog/why- imposter-syndrome-goes-deep-multiracial-people

 

AM – All Month – OAPS – Oregon Alliance to Prevent Suicide – Oregon LGBTQ2SIA+ Suicide Prevention – Youth Resources – Family Resources
Aug 13 all-day

The Oregon Alliance to Prevent Suicide has created a county-based LGBTQ+ Youth Resource List.  ( 14 Pages in PDF Format) 

>>> Check it out here <<<

and share with partners.

The Oregon Alliance to Prevent Suicide

Statewide Suicide Prevention Liaison:
Annette Marcus
Email:amarcus@aocmhp.org
Phone: (503) 399-7201

Suicide Prevention Project Specialist:
Jennifer Fraga
Email: jfraga@aocmhp.org
Phone: (503) 399-7201

MORE OREGON RESCOURCES

Crisis & Support Lines

OREGON LGBTQ CRISIS LINES

Local, state, national and LGBTQ crisis and support resources.

CRISIS & SUPPORT LINES

If you are experiencing a life-threatening emergency, please call 911.

If you or a friend are experiencing suicidal thoughts or are having a crisis and need support, contact Oregon’s Lines for Life: 800-273-8255.

Lines for Life will connect you with 24-hr crisis lines that provide crisis intervention and targeted support for youth, families, older adults, military service members and veterans for mental health crises and support, suicide prevention, help with addiction and recovery and racial equity and support – in partnership with the Oregon Health Authority.

English: 800-273-8255
En español: 888-628-9454
TTY: 800-799-4TTY (4889)

Oregon YouthLine: 877-968-8491.

Oregon YouthLine is a peer crisis line for youth ages 21 and younger. Teens are available to help daily, 4 to 10 p.m. Pacific Time (off-hour calls answered by adult call counselors) or chat online at the YouthLine website.

Text:teen2teen” to 839863
Chat online: at YouthLine website

24/7 Crisis Text Line: Text 741741 with the message “Home” for support any time, night or day.

National Suicide Prevention Lifeline – National suicide prevention support, available 24/7. Call: 800-273-8255.

Nacional de Prevención del Suicidioin Spanish call: 888-628-9454.

LGBTQ CRISIS LINES & ONLINE CHAT

Trevor Lifeline (for LGBTQ youth) 24 hours: 1-866-488-7386.

TrevorChat is available 24/7 days a week, or you can text the word “START” to 678-678, available 24/7.

CHAT SPACE FOR LGBTQ YOUTH

Q Chat Space is an online community chat for LGBTQ youth and teens who are questioning their identity, ages 13-19, facilitated by staff and volunteers from LGBTQ community centers around the country. Provides a place to connect and get access to information and resources. Q Chat Space is a program of CenterLink, the national organization for LGBTQ community centers.

Oregon Child Abuse Hotline – to report child abuse and neglect call: 855-503-SAFE (7233), available 24/7.

PARENT SUPPORT LINES

Reach Out Oregon WarmlineParent Support Line call: 833-732-2467, Monday – Friday 12-7 pm PST (except for holidays).

A parent / caregiver support service that provides peer support, access to services and referrals for parents and caregivers with a child or youth experiencing emotional, behavioral and mental health challenges. The warmline is a project of Reach Out Oregon and the Oregon Family Support Network.

 

Oregon-Based LGBTQ Services& Support

OREGON LGBTQ RESOURCES & SUPPORTS

Selected resources listed on this website focus on providing services and support to reduce mental health risks and promote well-being for LGBTQ young people.

RESOURCES FOR PEOPLE OF COLOR

Asian Pacific Island Pride
Non-profit organization that serves LGBTQ API communities in greater Portland and provides safe and supportive environments to celebrate, educate and bring communities together. apipride@gmail.com

Native American Youth and Family Center (NAYA)
A multi-service agency that provides a wide range of services and supports for Native American children, youth, adults and families, including Two-Spirit and LGBTQ support groups and events.

PDX Latinx Pride – Pride events in Portland for the Latinx LGBTQ community, families and allies. Central facebook page provides a space to connect throughout the year – www.facebook.com/PDXlatinxpride

Portland Two-Spirit Society
P2SS is a social, cultural, educational, resource group for the LGBTIQ Native American/Alaskan Natives and their families; to come together and share, connect, reclaim, and restore culture and community.

Sankofa Collective Northwest
Sankofa provides support, education and advocacy for Black families, friends and LGBTQ people through monthly support groups, faith outreach, mini-grants and an annual Portland Black Pride celebration. Sankofa began as the first African American chapter of PFLAG in the U.S. and relaunched as the Sankofa Collective Northwest in 2016.

Utopia PDX – United Territories of Pacific Islanders Alliance Portland
Portland chapter of a nonprofit organization by and for queer and trans Pacific Islanders that provides support, community organizing, political engagement, and cultural stewardship. https://www.facebook.com/utopiaportland

 

YOUTH RESOURCES – STATE ACCESS

SMYRC (Sexual & Gender Minority Youth Resource Center)
SMYRC’s on-site center in Portland provides a safe, supervised, harassment-free space for sexual and gender minority youth ages 13-23 who participate in positive activities such as art, music, community organizing, open mic nights, drag shows, and support groups and receive services including case management, resource referral, counseling, and education. Through Bridge 13, SMYRC provides LGBTQ trainings, educational workshops and consultations for social support staff, health professionals, youth providers, and educators. SMRYC also helps families and youth find local resources in their communities that support LGBTQ youth and families.

Oregon Queer Youth Summit
A conference held by and for queer and trans identified youth and their allies from the state of Oregon. Leadership development and organizing events happens year-round.

SCHOOL RESOURCES – STATEWIDE

Oregon Safe Schools & Communities Coalition (OSSCC)
A coalition of public and private organizations in Oregon that supports community efforts to reduce youth suicide and risk behaviors for LGBTQ youth. Provides education, data collection, and support services to create safe schools and communities for youth, teachers, and families.

GSA (Genders & Sexualities Alliance) School Clubs
GSA school clubs are available in many Oregon schools to provide support for LGBTQ students and allies and to provide education and events to promote safer schools and communities. Individual GSAs are listed by county and by school. (See National listings for information on GSA Network – a national organization that provides education and training to help students and local GSA clubs in schools to advocate for safer schools and policies to protect LGBTQ students from harassment and victimization.)

GLSEN Oregon
State chapter of the national organization that works to ensure safe schools for all students. GLSEN’s state chapter supports students and educators to adopt LGBTQ-affirming public policy, plan teacher trainings, and hold events for students, educators, parents, and allies.

FAMILY RESOURCES

Basic Rights Oregon Fierce Families Network
Advocates for public policy that meets the needs of a breadth of the LGBTQ communities. Provides and distributes resources to help families understand their LGBTQ+ children.

Pride Foundation Scholarship Program
Community foundation that funds LGBTQ programs and supports in the Northwest, and funds scholarships for LGBTQ student leaders.

YOUTH & FAMILY RESOURCES BY COUNTY

BENTON COUNTY

Cheldelin Middle School Pride Club
Cheldelin Middle School sponsored group that provides a confidential, safe space for students to support each other.

Corvallis High School Sexuality And Gender Alliance (SAGA)
A Corvallis High School sponsored GSA group that promotes understanding, acceptance and inclusion of all.

CLACKAMAS COUNTY

Clackamas High School GSA
A Clackamas High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Milwaukie High School & Milwaukie Academy of the Arts Queer-Straight Alliance
A Milwaukie High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

The Living Room
A safe space that provides peer support and youth drop-in services, resources to promote personal growth and leadership skills, to build relationships and promote positive development of LGBTQ youth and allies.

Youth ERA Clackamas
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

CLATSOP COUNTY

Astoria High School Rainbow Alliance (GSA)
An Astoria High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Lower Columbia Q Center
A community center that provides a range of resources and support activities for LGBTQ youth and adults, including youth support and educational activities.

Seaside High School GSA
A Seaside High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

COLUMBIA COUNTY

Scappoose High School FLATH/GSA
A Scappoose High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

COOS COUNTY

PFLAG Coos Bay/South Coast
A Coos Bay/South Coast chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Youth ERA Coos
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

CROOK COUNTY

PFLAG Central Oregon
A Central Oregon chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

PFLAG Prineville
A Prineville chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

CURRY COUNTY

Brookings-Harbor High School LGBTQ+ and Straight Alliance Club
A Brookings-Harbor High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Curry County
Curry County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

DESCHUTES COUNTY

PFLAG Central Oregon
A Central Oregon chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Mountain View High School GSA
A Mountain View High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

DOUGLAS COUNTY

PFLAG Douglas County
A Douglas County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

HOOD RIVER COUNTY

Hood River Valley High School GSA
A Hood River Valley High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

JACKSON COUNTY

Lotus Rising Project
A community organization in Southern Oregon that provides activities and services for LGBTQ youth and adults.

Phoenix High School GSA
A Phoenix High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Youth ERA Medford
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

JOSEPHINE COUNTY

Grants Pass High School Southern Oregon Pride (GSA)
A Grants Pass High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Grants Pass
A Grants Pass chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

LANE COUNTY

Churchill High School GSA
A Churchill High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Sheldon High School GSA
A Sheldon High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

South Eugene High School GSA
A South Eugene High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Trans*Ponder
A Lane County parent support group for families and caregivers with gender diverse children.

Willamette High School GSA
A Willamette High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion. https://www.facebook.com/Willamette-High-School-GSA-273630792665482

Youth ERA Eugene
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

LINCOLN COUNTY

Newport High School GSA
A Newport High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

PFLAG Oregon Central Coast
Oregon Central Coast chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

The Bravery Center
A resource center that provides a safe space for LGBTQ+ youth, ages 14-24, in Lincoln County.

LINN COUNTY

Intersection Connection via Zoom
A support group for area middle and high school students with regular meetings held on Zoom.

Out-N-About
A support group for high school-aged LGBTQ youth in Linn and Benton with regular meetings via Zoom.

MARION COUNTY

PFLAG Salem
Salem chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Rainbow Youth
Support groups for middle and high school students in Marion and Polk Counties. Services include social activities, and individual support.

Youth ERA Salem
A youth-focused program of services that includes a drop-in center, crisis services, online support, wrap around services, training and technical assistance for youth-serving groups and agencies.

MULTNOMAH COUNTY

Asian Pacific Island Pride
Non-profit organization that serves LGBTQ API communities in greater Portland and provides safe and supportive environments to celebrate, educate and bring communities together. apipride@gmail.com

Brave Space, LLC
An organization that provides counseling and support and facilitates access to knowledgeable providers for transgender and genderqueer young people, adults and their families.

Bridging Voices
A chorus for LGBTQ+ and allied youth, ages 13-21 in a safe, accessible place for youth to experience empowerment and unity through music. Bridging Voices is Portland’s first LGBTQ+ and Allied Youth Chorus and is one of the largest choruses of its kind.

Cascade AIDS Project (CAP)
A multi-service agency that provides a range of health, education housing and peer support services for adults. Also provides services for youth. Includes Prism Health that provides gender affirming care.

Native American Youth and Family Center (NAYA)
A multi-service agency that provides a wide range of services and supports for Native American children, youth, adults and families, including Two-Spirit and LGBTQ support groups and events.

OHSU Transgender Health Program
Health care services for transgender for gender diverse children, youth and adults at Oregon Health and Science University (OHSU). Provides information, referrals and access to resources.

Outside In Transgender Health Services
Health care and social services for youth experiencing homelessness and others. Provides an LGBTQ affirming medical clinic, transgender care, housing assistance, a Queer Zone group and a community drop-in center.

P:ear
Organization that provides a safe space, food, recreation, and mentorship through art, barista, and bike mechanic programs for youth who are experiencing homelessness and unstable housing.

PFLAG Portland
Portland chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Portland Two-Spirit Society
P2SS is a social, cultural, educational, resource group for the LGBTIQ Native American/Alaskan Natives and their families; to come together and share, connect, reclaim, and restore culture and community.

Prism Healthcare Clinic
Health care agency that provides a wide range of services for LGBTQ people, including primary care and behavioral health services and counseling, gender-affirming care and STI testing.

Q Center
Portland’s LGBTQ community center. Provides a range of support groups, activities and a directory of local LGBTQ resources and referrals. Support groups are provided for adults related to gender identity, addiction recovery, veterans, seniors and a support group for youth under age 18.

Quest Center for Integrative Health
Health center that provides health and mental health care to youth and adults that includes counseling, LGBTQ health services, HIV services and wellness care.

Sankofa Collective Northwest
Sankofa provides support, education and advocacy for Black families, friends and LGBTQ people through monthly support groups, faith outreach, mini-grants and an annual Portland Black Pride celebration. Sankofa began as the first African American chapter of PFLAG in the U.S. and relaunched as the Sankofa Collective Northwest in 2016.

SMYRC (Sexual & Gender Minority Youth Resource Center)
SMYRC’s on-site center in Portland provides a safe, supervised, harassment-free space for sexual and gender minority youth ages 13-23 who participate in positive activities such as art, music, community organizing, open mic nights, drag shows, and support groups and receive services including case management, resource referral, counseling, and education. Through Bridge 13, SMYRC provides LGBTQ trainings, educational workshops and consultations for social support staff, health professionals, youth providers, and educators.

TransActive Gender Project
A program at Lewis & Clark that provides services and support for transgender and gender diverse children, youth, and families, including support groups for children and youth (ages 4-18), caregivers and families, as well as advocacy, counseling and referrals.

POLK COUNTY

Dallas High School GSA
A Dallas High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion. https://www.facebook.com/Dallas-High-School-GSA-702785019853083

PFLAG Salem
A Salem chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

Rainbow Youth
Organization that provides safe and welcoming spaces for LGBTQIA+ youth and their friends to find connection, support, and friendship in Marion and Polk Counties. Provides support meetings for middle and high-school aged youth, ages 18 and under.

UMATILLA COUNTY

PFLAG Pendelton
Pendelton chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents.

UNION COUNTY

PFLAG Union County
Union County chapter of PFLAG that provides education, advocacy, and support for families and friends of lesbian, gay, bisexual, and transgender (LGBTQ) persons, including ongoing support groups for parents. https://www.facebook.com/PflagUnionCounty

WALLOWA COUNTY

Safe Harbors
Community organization that provides education and outreach with crisis intervention and advocacy services for survivors of domestic, sexual and dating violence for youth and adults.

WASHINGTON COUNTY

Beaverton High School GSA
A Beaverton High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Hillsboro High School GSA
A Hillsboro High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

Sherwood High School Sexuality & Gender Alliance (SAGA)
A Sherwood High School sponsored student club that provides support for LGBTQ and all students to promote understanding, acceptance, and inclusion.

 

 

Research-Based Publications for Families withLGBTQ Children

EVIDENCE-BASED FAMILY GUIDANCE RESOURCES

The evidence-based resources included here were developed by the Family Acceptance Project (FAP) and are rooted in FAP’s groundbreaking research with LGBTQ youth, young adults and families. This research and guidance from the lived experiences of ethnically, racially and religiously diverse families with LGBTQ young people enabled FAP to develop the first evidence-based family support model to prevent health risks and promote well-being for LGBTQ children and youth. FAP continues to produce a series of evidence-based resources to help to decrease health risks and promote well-being for LGBTQ children and youth.

FAMILY EDUCATION BOOKLETS

“Best Practice” Resources for Suicide Prevention for LGBTQ Youth
(English, Spanish & Chinese and a growing series of faith-based versions)

Key information from FAP’s research on how families can help support their lesbian, gay, bisexual and transgender (LGBTQ) children to reduce health risks and support positive development. These family education booklets have been designated as “Best Practice” resources for suicide prevention for LGBTQ young people by the Best Practices Registry for Suicide Prevention.

HEALTHY FUTURES POSTER SERIES

Available from FAP in 10 languages, including English, Spanish, Chinese (traditional and simplified), Hindi, Korean, Japanese, Punjabi, Tagalog and Vietnamese. Other versions are in development.

Series of 3 posters that tell the “story” of family accepting and rejecting behaviors and show how these behaviors contribute to serious health risks including suicidal behavior and drug use and how they help protect against risk and promote well-being. Each poster includes common accepting and rejecting behaviors that are expressed across diverse cultures. The posters are available to download free in 4 sizes and include the camera-ready art to take to a commercial printer.

DEVELOPING THE FIELD OF FAMILY SUPPORT FOR LGBTQ CHILDREN & YOUTH

Providing Services & Support

Although it may seem surprising to many people who are concerned about the health and well-being of children and youth, before the Family Acceptance Project was established 20 years ago, no one had studied LGBTQ young people and families. As a result, many mainstream services, including government agencies, have not included services and support for diverse families with LGBTQ children. As the Family Acceptance Project has shown, families can learn to support their LGBTQ children when services are provided in ways that are culturally relevant for them. Culturally appropriate services are needed to help families learn to support their LGBTQ children to reduce serious health risks, strengthen families and support positive development. Use this website to learn about these issues to provide support for LGBTQ children, youth and families – urgently needed now as LGBTQ young people and families are coping with the losses from Covid-19.

FAITH COMMUNITIES AND THE WELL-BEING OF LGBTQ YOUTH

A publication for faith communities and families on supporting LGBTQ youth to prevent mental health risks and to increase support, published by the Group for the Advancement of Psychiatry. GAP is a professional organization of thought leaders in the field of psychiatry who provide guidance on addressing critical emerging mental health issues.

Selected National LGBTQ Services& Support

NATIONAL LGBTQ RESOURCES & SUPPORTS

Selected resources listed on this website focus on providing services and support to reduce mental health risks and promote well-being for LGBTQ young people.

ACCESS TO LGBTQ COMMUNITY CENTERS & LOCAL RESOURCES ACROSS THE U.S.

CenterLink
CenterLink is a nonprofit organization that provides capacity building and connects more than 270 LGBTQ community centers across the U.S. in 45 states, Puerto Rico and the District of Columbia, as well as several other countries. CenterLink provides a searchable database of LGBTQ centers where LGBTQ people, families, providers and others can find and access LGBTQ services in their communities, including counseling and support services.

Family Acceptance Project
The Family Acceptance Project (FAP) is a research, education and training program that helps ethnically, racially and religiously diverse families to support their LGBTQ children. FAP conducted the first research on LGBTQ youth and families and developed the first evidence-based family support model to help families to decrease rejection and health risks and to increase support and well-being for LGBTQ young people. FAP provides training for agencies, families, providers and religious leaders on increasing family support to reduce risk for suicide, homelessness and other serious health risks and using FAP’s multilingual educational materials and family support framework, also available online.

PFLAG
PFLAG is a national organization with 400 chapters across the U.S. that provides education and support for parents, families, and friends of LGBTQ people through individual and peer support groups, public education and advocacy. Parents and others can search PFLAG’s website to find chapters and support in local communities, in person and online. Local Oregon PFLAG chapters are listed by county under Oregon-Based LGBTQ Services & Support.

TransFamilies
TransFamilies provides support services and education for transgender people and their families, including an annual conference for families and their transgender children (Gender Odyssey). Formerly called Gender Diversity, TransFamilies provides online parent support groups in English & Spanish, a transgender youth leadership program and youth support groups, as well as training for schools and organizations.

Gender Spectrum 
Gender Spectrum provides education and support for families with transgender and gender diverse children and youth, support groups and an annual conference for children, youth and families. Gender Spectrum also provides training for schools and organizations working with children and teens.

SCHOOL-BASED RESOURCES

GSA Network – Genders & Sexualities Alliance (GSA) Network
GSA Network is a national youth-led organization that provides networking and support for GSAs – school clubs that provide education, peer support and activities to promote safer schools. GSA Network connects LGBTQ+ youth and school-based GSA clubs through peer support, leadership development, community organizing and advocacy and works with a network of 40 statewide organizations representing more than 4,000 GSA clubs across the country. GSAs in Oregon schools are listed by county under Oregon-Based LGBTQ Services & Support.

GLSEN
GLSEN is a national network of educators, students, and local GLSEN Chapters that work to promote safe schools for LGBTQ students. GLSEN provides resources for educators and students, conducts school climate research, provides guidance on comprehensive school policies and information on bullying and school safety.

Safe Schools Coalition
The Safe Schools Coalition is a public-private partnership in Washington State that was among the first school-based initiatives to support LGBTQ students. The Coalition hosts a longstanding website with resources to help promote safe schools and to implement its mission of “helping schools become safe places where every family can belong, where every educator can teach, and where every child can learn, regardless of gender, gender identity or sexual orientation.”

Campus Pride
Campus Pride is a national organization working to create a safer college environment for LGBTQ students by developing resources, programs and services to support LGBTQ and ally students on college campuses across the U.S. This includes hosting Camp Pride, a summer leadership camp for LGBTQ and ally students to learn campus strategies to develop supportive campus environments and leadership skills, LGBTQ college fairs and information on the campus safety, visibility and affirmation for LGBTQ students.

FAITH-BASED ORGANIZATIONS

Affirmation LGBTQ Mormons Families & Friends
An international organization that promotes understanding, acceptance, and self-determination for individuals with diverse sexual orientations, gender identities and expressions for current and former members of the Church of Jesus Christ of Latter-day Saints. Provides allyship, ministering, and educational resources and an annual international conference.

Beloved Arise
An organization that provides resources and support to empower LGBTQ teens across Christian denominations through youth programs, advocacy and ally engagement opportunities and resources for other faith-based organizations.

Brethren Mennonite Council
A nonprofit group that is committed to providing mutual support for families with gay, lesbian, bisexual, transgender and intersex members. This includes LGBTQ people, families and allies, to worship, educate and provide mutual support

DignityUSA
A national Catholic organization that provides support for people of all sexual orientations, genders, and gender identities—especially gay, lesbian, bisexual, and transgender persons. Provides opportunities for worship, service, education and social justice.

Equally Blessed
A coalition of Call to Action, DignityUSA, and New Ways Ministry that seeks to educate and inspire Catholics to take action on behalf of LGBTQ and intersex people, their families and friends.

Eshel
An organization that works with individuals, families, and the Orthodox Jewish community to support LGBTQ members. Eshel has chapters in cities in the U.S. and Canada that provide activities, parent retreats, a speakers bureau and access to LGBTQ resources in the U.S. and Israel.

Freed Hearts
A Christian organization that helps parents, LGBTQ people, educators, therapists, and churches to create safe spaces, inspiration and encouragement. Provides resources ranging from books, podcasts, video courses and social media, including a YouTube Channel.

Friends for Lesbian, Gay, Bisexual, Transgender, and Queer Concerns
A North American Quaker faith community that holds online gatherings and worship.

Fortunate Families
A national Catholic organization and parent network that supports LGBTQ family members and facilitates conversations with bishops, pastors and Catholic Church leadership through sharing personal stories and working to establish Catholic LGBTQ Ministries in dioceses, parishes, educational institutions, and communities.

Galva – 108
An international, nonprofit religious organization – Gay & Lesbian Vaishnava Association – that provides information and support to LGBTI Vaishnavas and Hindus, their friends, and other interested persons.

Jewish Queer Youth
A group that supports and empowers LGBTQ youth in the Jewish community with a focus on teens and young adults from Orthodox, Chasidic, and Sephardic communities. Provides Drop-In Center, and services for parents, teens, and families.

Keshet
An organization that works for the full equality of LGBTQ Jews and families. Helps Jewish organizations with the skills to build LGBTQ-affirming communities, spaces for queer Jewish youth, and advances for LGBTQ rights. Offers professional development, training and consultation, youth initiatives, programs for LGBTQ Jews of Color, leadership projects and community learning.

Many Voices
A Black church movement for gay and transgender justice. Equips and brings forward Black leaders that support LGBT equality and justice through educational workshops, seminars, and dialogues – in-person and online.

Mama Dragons
An organization founded by Mormon mothers with LGBTQ children that supports, educates, and empowers mothers of LGBTQ children through a private Facebook and regional groups to support and advocate for their LGBTQ children.

Muslim Alliance for Sexual and Gender Diversity
An organization that works to support, empower and connect LGBTQ Muslims. Provides educational classes, retreats, advocacy, and resources including lectures, films video, podcasts, and blogs.

Muslims for Progressive Values
An organization that reflects Islam as a source of dignity, justice, compassion, and love for all. Offers spiritual counseling, chaplain endorsement and lectures and speaking engagements. Provides support for LGBTQ people and access to resources.

Q Christian Fellowship
An organization that cultivates radical belonging among LGBTQ+ people and allies through an annual conference, community groups, Parent Summit, and a variety of resources.

United Church of Christ LGBT Ministries
Christian religious organization that includes local churches and a global ministry. Has a specific ministry to LGBTQ people and families.

Unity Fellowship Church Movement
Unity Fellowship Church Movement is the first affirming and welcoming Black church for lesbian, gay, bisexual and transgender persons with several congregations across the U.S. Members of the public can RSVP to attend services online.

AM – All Month – Sexual Assault Action Month – Domestic/sexual violence materials, resources, and actions happening across Oregon
Aug 13 all-day
AM - All Month - Sexual Assault Action Month - Domestic/sexual violence materials, resources, and actions happening across Oregon

 

Sexual Assault Action Month

 

Domestic/sexual violence materials, resources, and actions happening across Oregon

Oregon State Proclamation of Sexual Assault Action Month from the Office of Governor Brown

Presidential Proclamation of Sexual Assault Awareness and Prevention Month

VALOR 2022 SAAM Toolkit
“ValorUS (VALOR) leads with prevention of sexual violence. For 2022 Sexual Assault Awareness Month (SAAM), we have released this free toolkit to empower you to lead your own community. With the theme of “Collective Action for Equity,” these resources support you to spread the message of prevention of sexual violence.”
Download in English and Spanish here

Caja De Herramientas Yo Soy SAAM 2022– A collection of 39 original and curated resources for bililngual advocates from ALAS members and allies

Reclaim/Reclama 2022 – SARC’s annual art magazine, highlighting the art of those who have been impacted by sexual violence, will be shared digitally this year at sarcoregon.org and on social media (Facebook and Instagram) through the month of April at @sarcoregon.

Events

Domestic Violence for Mental Health Providers

The first three sessions, Understanding, Screening for, and Intervening in Domestic Violence is available right now to view on demand, the recording of our fourth session will be on our YouTube channel Thursday April 21st.

Open House and Art Gallery at the Family Justice Center 

Take a tour of the Family Justice Center in Washington County (FJC) and meet the other organizations co-located at FJC supporting folks who have experienced violence. View art created by people impacted by violence, collected through the Sexual Assault Resource Center’s Reclaim/Reclama Magazine. Join us on April 24th, 2022 from 2:00 pm to 5:00 pm at 735 SW 158th Ave Suite 100 Beaverton, OR 97006. Reading of the Proclamations and some speaking from survivors of violence will start at 4:00 pm. This event is free and open to the public!

Yo Soy SAAM Webinarios offered by Alianza Latina en contra la Agresión Sexual

Talking Healthy Relationships: A Conversation Guide for Parents & Caregivers

Victim Rights Law Center When Rape Results in Pregnancy: The intersection of Rape and Abortion    

Virtual April 27th at 3pm PST

Hosted by the Victim Rights Law Center (VRLC), “When Rape Results in Pregnancy: The Intersection of Sexual Violence and Abortion,” will examine the intersection of abortion laws and rape and bring together a diversity of speakers in the medical, legal, legislative, and academic fields. Listen to experts share their insights on this complex issue, and learn how you can support survivors who become pregnant resulting from an assault.  100% of proceeds will go towards supporting survivors of rape and sexual assault. Visit our website to learn more about our panelists and the event.

Ask an Expert Series Webinar: Male Victims and Human Trafficking

April 28th at 3pm EST (12pm PST)

What services and support are needed for men and boys who are victims of human trafficking? How are these services different from their female counterparts? Ensuring equity and inclusion of services for all victims of human trafficking means addressing the needs of male victims. Join three national experts for this discussion on male victims’ experiences with sex and labor trafficking. Panelists will share their insight on needed services, how to talk about human trafficking and develop outreach materials in ways that are inclusive of males, and where to find additional resources on this topic.

Events

Rose Haven Open House Event

Virtual Mental Health First Aid

Tuesday April 26th at 9am PST

Offered by Lines for Life, mental Health First Aid (MHFA) teaches people to identify, understand, and respond to signs and symptoms of mental health and substance use challenges.

Register here

Exploring the Incidence and Impact of Economic Abuse Among Teens

Tuesday, April 26th at 11am PST

Offered by Futures Without Violence. Despite the potential lifetime impacts, economic abuse has been long overlooked among teen dating partnerships. Knowing what is at stake, Futures Without Violence in partnership with The Allstate Foundation and University of Pittsburgh Medical Center surveyed nearly 3,000 teens to explore how economic abuse – from disrupting education to interfering with employment to financial control – shows up in their relationships. The findings are eye-opening.

Register here

Interrupting Anti-Blackness Workshop

Tuesday, April 26th & Wednesday, April 27th at 2:30pm PST

This two-part workshop series with Washington Nonprofits is a case study centered workshop for Community leaders, Accountants, Front line workers, Middle Management Professionals, Executive Directors, Nonprofit Professionals, Educators, Board Members and co-conspirators who are committed to deepening their understanding of why Black liberation practices are crucial in interrupting anti-Black racism, macroaggressions, and white supremacist systems. This webinar will not be recorded.

Learn more here

Ask an Expert Series Webinar: Male Victims and Human Trafficking

Thursday, April 28th at 12pm PST
What services and support are needed for men and boys who are victims of human trafficking? How are these services different from their female counterparts? Ensuring equity and inclusion of services for all victims of human trafficking means addressing the needs of male victims. Join three national experts for this discussion on male victims’ experiences with sex and labor trafficking. Panelists will share their insight on needed services, how to talk about human trafficking and develop outreach materials in ways that are inclusive of males, and where to find additional resources on this topic.

Register here

NNEDV Advocacy Days 

June 7th- June 8th 
Trainings June 1st & 2nd

Register here

 

 

Opportunities and things to know about

 

Oregon DOJ launched Sanctuary Promise Hotline

Today, Oregon Department of Justice launches our Sanctuary Promise Hotline!  This program is designed to receive reports from and provide support to individuals and families targeted in violation of Oregon’s longstanding sanctuary laws.  Victims, witnesses, concerned community members, and whistleblowers can report violations to these laws, access culturally responsive support, and request a DOJ investigation into any violations of the laws.

Allstate Foundation Moving Ahead Grant Program

$1.5 Million in Funding for State Domestic Violence Coalitions Committed to Providing Financial Empowerment Services for Survivors
Over the past 16 years, The Allstate Foundation has invested more than $85 million to end relationship abuse. As part of this national effort, The Allstate Foundation is proud to continue the Moving Ahead Grant Program – a competitive grant program for U.S. state and territory domestic violence coalitions committed to the development, acceleration, and implementation of financial empowerment services for relationship abuse survivors.
This year, up to $1.5 million in Moving Ahead grants will support innovative financial empowerment programs that provide financial education services to survivors, through the implementation of The Allstate Foundation Moving Ahead Curriculum and asset-building activities in at least one of the following categories: job readiness and job training; survivor matched savings programs; micro-loans; credit building and/or repair; and micro-enterprise programs.
Eligible state and territory domestic violence coalitions are invited to apply. Grant applications will be accepted March 28 – April 25, 2022. Visit the Moving Ahead Grant Program landing page to learn more about the funding opportunity and requirements, and to register for an informational webinar.

Learn about The Allstate Foundation’s mission and our 70-year history of improving communities across the country.

NNEDV and GNWS launches Lila.Help

Advocates around the world have been discussing the need for a vetted global directory for many years and the pandemic has made the need for online resources even more clear. As a founding member of the GNWS, NNEDV has worked with the Global Network of Women’s Shelters to bring together advocates from across the globe. Since Lila.Help was conceptualized in 2019, NNEDV has partnered in its development and worked closely with other regional and national networks to bring Lila.help to fruition. This directory is a great step toward ensuring survivors around the world are connected to help, including having NNEDV’s resources.

Learn more here

OVW Grants Solicitation Announcements

Check out some of these opportunities for OVW funding

Grants.gov Deadline: April 19
JustGrants Deadline: April 21

Grants.gov Deadline: April 21
JustGrants Deadline: April 26

Grants.gov Deadline: April 26
JustGrants Deadline: April 28th

Recent Job Openings

Sexual Assault Support Services
(Eugene) 
Resiliency Skills Coordinator

Shelter from the Storm
(LaGrande)
Executive Director

OASIS
(Gold Beach)
Program Manager
Systemic Navigator (Co-Located Advocate)

YWCA
(Portland)
Resident Services

Helping Hands Against Violence
(Hood River) 
Outreach Coordinator

Raphael House
(Portland) 
Primary Advocate (Bilingual)
View all available Raphael House positions

NAYA
(Portland)
Domestic Violence Advocate
Click here to view all available NAYA positions

Clackamas Women’s Services
(Clackamas) 
Case Manager
Latina Counselor

Sexual Assault Task Force 
(Keizer)
Executive Director

Portland Community College
(Cascade)
Criminal Justice Faculty Instructor

Self Enhancement Inc.
(Portland)
Domestic Violence Advocate
Domestic Violence Program Manager

Familias En Acción
(Portland + Salem Metro)
HIV/STI Program Coordinator

University of Oregon
(Eugene)
Staff Attorney, DV Clinic

Douglas County Task Force
(Douglas County) 
Family Violence Coordinator

Ohio Domestic Violence Network
(Ohio)
Administrative Coordinator

California Partnership to End Domestic Violence
(California)
Director of Prevention Strategies
Spanish Language Interpreter/Translator Specialist
Lead Spanish Language Interpreter/ Translator Specialist

Futures without Violence
(San Francisco, CA) 
Program Specialist- Health and Workplace

Utah Domestic Violence Coalition
(Utah)
Communications and Engagement Specialist

Violence Free Minnesota
(Minnesota) 
Technology Justice Project Program Manager

Illinois Coalition Against Domestic Violence
(Illinois)
Administrative Assistant
Director of Fatality Review/ Fatality Review Coordinator
Strategic Partnerships Coordinator
Fiscal Technical Assistance Coordinator

North Carolina Coalition Against Domestic Violence
(North Carolina) 
Finance Director

NNEDV
(Washington D.C.)
Capacity Technical Assistance (CTA) Coordinator
Vice President of External Affairs
Transitional Housing and Positively Safe Coordinator

Is your organization hiring? Attach the job listing document in an email to Rowan@ocadsv.org to be sent along our listservs and to be in the next digest!

Submit Job Posting!

 

Our Work Groups and Caucuses

Advocates! Did you know that we have work groups and caucuses for you to connect with other advocates and get support for struggles you may be experiencing?

Click here to get involved!

AM – All Month – Veteran Quick Resource List by NAMI Multnomah – Weekdays & Weekends
Aug 13 all-day

Oregon Veterans Resources may include but not be limited to:

>> DROP IN RESOURCE LIST

 

VA Community Resource & Referral Center (CRRC)

308 SW 1st Ave

Portland, OR 97204

503- 808-1256 or 800-949-1004 Ext: 51256

WEEKDAYS 8 A.M. TO 3 P.M.

THURSDAYS 10 A.M. TO 3 P.M.

Transition Projects Day Center at Bud Clark Commons

650 NW Irving Street

Portland, OR 97209

MONDAY – FRIDAY 7 A.M. TO 7 P.M.

WEEKENDS 8 A.M. TO 4 P.M.

Multnomah County Veterans’ Services Offices (VSO)*

Lincoln Building

421 SW Oak Street, Room 100

Portland, OR 97204

EVERY TUESDAY: 9 A.M. TO 12:00 P.M.

EVERY FRIDAY: 9 A.M. TO 12:00 P.M.

 

East Area Office

600 NE 8th Street, Room 100\

Gresham, OR 97030

EVERY THURSDAY 9:00 A.M. TO 11:30 A.M.

 

North / Northeast Area Office

5325 NE Martin Luther King Blvd

Portland, OR 97239

EVERY FRIDAY 2:00 P.M. TO 4:00 P.M.

Portland VA Medical Center

3710 SW U.S. Veterans Hospital Road

Portland, OR 97239

EVERY TUESDAY, WEDNESDAY, AND THURSDAY 1:00 P.M. TO 3:30 P.M.

*Walk-ins are unavailable at all Multnomah County VSO locations on the last working day of every month due to VA claims deadlines.

>> CALL RESOURCE LIST

 

211Info
Dial: 2-1-1

Transition Projects Veterans Hotline
855-425-5544

Multnomah County Veterans’ Services
503-988-VETS (8387)

   Email: veteran.services@multco.us

   Call or email any time to schedule an appointment or see VSO drop-in hours.

Veterans Crisis Line
800-273-8255

Call Center for Homeless Veterans
877-424-3838

Multnomah County Veterans’ Services Aging, Disability & Veteran Services Helpline
503-988-3646

 

>>WEB RESOURCE LIST

https://www.quickresourceguide.veteran 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

QuickResourceGuide.Veteran

HLAAOR – Hearing Loss Association of America/Oregon – Meetings and Resources @ Online Register for Details
Aug 13 all-day

 

 

Hearing Loss Association of America/Oregon Meetings and Resources, 2021

HLAA of Portland meets the third Saturday each month (except June, July, and August) 10 am, in the Wistar Morris Conference Room in the Main Hospital Building on the Legacy Good Samaritan Campus, 1015 NW 22nd Ave. (at Marshall), Portland, 97210. Contact Mark Foster, president; email: hlaportland@gmail.com. Write P.O. Box 2112, Portland, OR 97208-2112; http://www.hlaa-or.org/portlandchapter.html.

HLAA of Lane County meets quarterly: second Thursday in March, June, Sept., and Dec., at 7 p.m. at the Hilyard Community Center, 2580 Hilyard St., Eugene. Right now we are scheduled to meet in person June 10 unless COVID-19 infections mandate otherwise.

Mail: P.O. Box 22501, Eugene, OR 97402. Clark Anderson; email: clarkoa@msn.com

HLAA of Linn and Benton counties meets the last Wednesday each month (except June, July, & Dec.) at 6:30 p.m. at the Reimar Building, next to Albany General Hospital, 1085 6th Ave. SW, Albany, OR 97321. Contact: John Hood-Fysh, email: jhoodfysh@gmail.com; 541/220-8541 (cell – call or text), 818 Broadalbin St. SW, Albany, OR 97321.

Note: HLAA of Douglas County no longer meets the requirements for a 501(c)(3) nonprofit. Reinstatement may occur, but right now, this group meets as a support group. Contacts: Vincent Portulano, president, email: HLAADC@outlook. com; or Ann Havens, secretary, 541/673-3119. Check with them for location for meetings and time.

NATIONAL HLAA EVENT CALENDARS

HLAA Calendar

https://www.hearingloss.org/programs-events/calendar/

HLAA Leaders Calendar

https://hlaagroups.hearingloss.org/g/HLAALeaders/calendar

HLAA Subgroups

https://hlaagroups.hearingloss.org/g/HLAALeaders/subgroups

HLAA Virtual Meetings / Captioned Recordings

https://www.hearingloss.org/hearing-help/communities/hlaa-national-virtual-meetings/

 

MORE RESOURCES

Hands and Voices
https://www.handsandvoicesor.org

Supports families and children who are deaf and hard of hearing, by connecting parents, mentorship, educational advocacy, community development and support programs. Collaborates with professionals to support families.

FACT Oregon
https://www.factoregon.org/

Supports, empowers and advocates for families who experience disability.

Family to Family Health Information Center
Oregon Family-to-Family Health Information Center | OHSU

Supports families and caregivers of children with special health needs to navigate the healthcare system. Many resources on the website.

AG Bell Oregon 
https://www.agbell.org/Connect/Oregon-Chapter

  • Facebook page – AG Bell Oreoon
  • Instagram – aobelloreoon

Local chapter of a national organization. The focus is to promote listening and spoken language education, advocate for accessibility, educational services, and health-related rights, and create connections and memories together.

Oregon Early Hearing Detection and Intervention (EHDI) Program

https://www.oreown ov/oha/PDH/HeaIthvP eooleFamilies/Babies/HeaIthScreenino/He arinqscreenino/Paoes/index asox

For Providers: Information on EHDI Reporting, forms, protocols, facilities, OVERS Hearing Screening Module, 1-3-6 Newborn Hearing Screening Checklist For Parents: Information on hearing screening (what it involves and why it’s important), follow-up (what happens if a newborn doesn’t pass a screening), Early Intervention/Family Services, Guide By Your Side (a Hands & Voices program that matches trained parent guides with families who have recently found out their child has a hearing loss), and other resources for families

American Cochlear Implant Alliance

https://www.acialliance.org/

Facebook page

Twitter

Contains information about research, awareness, and advocacy around cochlear implants. Information about hearing loss and cochlear implants in general.

Oregon Association for Deaf
https://oad1921.org/

Advocates for the rights of people who are Deaf and Hard of Hearing in Oregon. The website contains articles, meeting and conference information, and youth opportunities.

Hearing Loss Association of America – Oregon State Association 
https://www.hlaa-or.org/about-us.html

Education, Information and Advocacy.

Early Hearing Detection and Intervention (EHDI)
https://www.cdc.oov/ncbddd/hearinqloss/e hdi-programs.html

Information about EHDI programs Information for families including:

     • Questions You May Want to Ask Your Child’s Audiologist

     • Just in Time for Pediatric Primary Care Providers

FACEBOOK EVENTS

ASL Social Chat:

EVERY SUNDAY @ 12:00noon to 2:00 pm

VANCOUVER MALL – Food Court [2nd floor]

Host by: Gary Holden

ASL Social Chat:

Host by: Gary Holden

PORTLAND OPEN-CAPTIONED MOVIES:

(See FB page for MORE information)

Order Tickets online @ bagdadmovies.com

Host by: Isaac Stone Dick

ASL NIGHT GAMES (announcing soon)

Every Second Saturday evening

ASL Game Night page for more information.

Host by: Stephen RodBjorn

World Deaf Timberfest

Camp Taloali

Contact for information: Andrea Albers

Pacific Northwest Deaf Golf Association (PNWDGA) and Portland Metro Deaf Golf Association (FB Page).

(See FB Page for MORE information)

Host by: Craig Marineau

Northwest Deaf Traveling League (NWDTL)

(Deaf/HOH Bowling Club)

Contact: Melody Kitty McDaniel and Andrea Albers

NW Deaf Poker Tournaments

Announcement in Jan/Feb 2022 !!!

Host by: James Forncrook

CYMASPACE: Announcement SOON

Host by: Myles de Bastion

Deaf Massage Therapist (see link below)

www.openhandhealth.com/book-now

Host by: Clara Bella Storry Parnell

(Email: clara@openhandhealth.com)

ASL Coffee Podcast – see announcements on regular posting:

https://www.facebook.com/groups/334857136618534/user/100069324005062/

ASL Coffee Chats @ 3pm on Fridays at Hidden Creek Community Center in Hillsboro

To find a Deaf ASL tutor or mentor, see ASL TUTORS AND MENTORS FB page.

Bridges in Oregon

https://www.facebook.com/BridgesOregon

Source: https://www.facebook.com/groups/portlandaslevents/

AG Bell Association for the Deaf and Hard of Hearing
AG Bell is another convenient resource for those seeking in-person hearing loss support groups, with 
41 active chapters across the United States and Puerto Rico. Specifically designed to support children with hearing loss and their families, AG Bell hosts everything from social events to informational sessions for individuals and families impacted by hearing loss; connect with your nearest chapter to learn more. You can also join the AG Bell Facebook group to connect with fellow members online.

DeafandHoH Forum

DeafandHoH is a website featuring hearing loss news, a discussion forum, resources for financial aid and other services, search directories for audiologists, hearing care facilities, speech-language pathologists, and more. The topics covered on the site include living with hearing loss, caring for a family member or friend with hearing loss, American Sign Language, and hearing loss products. You can also join open chat nights on select Wednesdays from 6pm-7pm PST / 9pm-10pm EST to enjoy live interaction!

 

CALL TO ACTION FOR PEER SUPPORT

https://www.nasmhpd.org/sites/default/files/Assessment-5_Deaf-and-Hard-of-Hearing-Peer-Support.pdf

https://www.transformation-center.org/home/community/deaf-and-hard-of-hearing-recovery-project/

https://www.nasmhpd.org/sites/default/files/BeingSeen.pdf

https://www.hearinglikeme.com/why-we-need-deaf-peer-support-in-our-communities/

https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1018&context=jadara

12-Step online for Deaf and Hard of Hearing

Sounds of Sobriety (SOS):  This online email group was formed to help us who have a hearing loss (deaf, deafened, or hard of hearing) to find a place to recover from alcoholism. For many of us, face-to-face AA meetings no longer work. All members of AA, or those who think they may have a problem with alcohol, are welcome.    SOS_online_group-subscribe@yahoogroups.com

Deaf Grateful:  This is a real-time open discussion meeting on Saturday at 4 pm (EST) for deaf & HOH people who have a desire to stop drinking. Meeting uses videoconferencing software (easily downloaded) that requires a high speed internet connection and a webcam. Our communication mode is ASL only (no audio). http://doda.omnijoin.com

Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support

https://pubmed.ncbi.nlm.nih.gov/23149648/

Is Telemental Health Services a Viable Alternative to Traditional Psychotherapy for Deaf Individuals?

https://pubmed.ncbi.nlm.nih.gov/27260308/

https://www.arundellodge.org/omhc/telemental-health-for-deaf-and-hard-of-hearing/

Deaf Centric Approach / Peer Support Program

https://www.minnpost.com/mental-health-addiction/2016/01/alison-aubrecht-peer-support-program-takes-deaf-centric-approach-men/

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Aug 13 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

YE – YouthERA – Open Registration – Uplift Peer Support Training for Young People @ Register for Details
Aug 13 all-day

 

Uplift Peer Support Training for Young People

Uplift Trainings registration is live!

 

Uplift by Youth Era is a virtual summit for young people ages 14-21. The event is designed to motivate, empower, and support you to change your life and the lives of those around you. The event is packed with engaging lectures, challenging discussions, and impactful activities. You will take yourself to the next level and make a commitment to bettering yourself and those around you.

With funding from OHA, youth aged 14-21 years old, across Oregon will have the opportunity to attend Uplift, a virtual mental health summit created by Youth Era and the University of Oxford. Registration is free and youth across Oregon can sign up  here

Aug
14
Sun
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 14 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as