PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

Click the Accessibility Button on the right side, halfway down in the middle, for enhanced viewing and/or access options!  Click the Translate Button in the lower left corner for language options. 

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If you have an event to add, email us: webmail@peergalaxy.com

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Oct
1
Sat
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 1 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 1 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 1 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Oct 1 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

Oct
2
Sun
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 2 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 2 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 2 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Oct 2 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

Oct
3
Mon
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 3 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 3 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 3 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Oct 3 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

ROCC – Recovery Outreach Community Center – Four Agreements – With Debra – Mondays @ Online via Zoom
Oct 3 @ 1:00 pm – 2:00 pm

logo

ROCC Salem presents this online peer support group

AWARENESS THROUGH LITERATURE WITH DEBRA

MONDAYS Online 1:00–2:00 PM (PST)

A group  where we study books designed to expand consciousness, such as “The Four Agreements”, and “The Power of Now.”

Use the Link Below to Register and Join Online:

https://us02web.zoom.us/meeting/register/tZcuc-6qqTMvHNfZnGNsddZjuE6XJla6vS1E

ZOOM Meeting ID: 892 6852 3422

ROCC has peer support by phone and other online groups, too!

Peer Support is now available on the phone Seven days a week, 11:00 am to 7:00 pm (PST) Peer support is about connecting with someone in a way that contributes to both people learning and growing.

There’s no assessment, diagnosis, or treatment. It’s about helping each other understand how we’ve come to know what we know, and moving toward what we want, instead of just getting away from what we don’t want.

One on One Peer support via phone is available with certified Peer Support Specialists

Peer Support Numbers 11 am-7 pm (PST)

971-718-8668 (Tuesday-Thursday)

971-718-8670 (Friday-Monday)

 

To learn about ROCC’s Online Groups visit:

ROCC Mission Statement

Recovery Outreach Community Center (ROCC), is a safe place for people recovering from or who are interested in mental health, addiction, trauma, or other related issues. Our mission is to empower and respect others through peer-led service and peer-to-peer support. We want to encourage self-direction, personal responsibility, and hope, by providing a safe place for people to share stories and heal.

ROCC Principles

Principle I

The source of ROCC’s power is peer-to-peer relations. By sharing stories and experiences, we lead each other into hope.

Principle II

Self-direction and personal recovery is ROCC’s goal. To be able to lead, control, and choose your own recovery path will achieve a self-determined life.

Principle III

ROCC requires respectful conduct and encourages the voice of all. We must instill hope in the individual while fulfilling the values of the group.

ROCC Website:

https://www.roccsalem.org

ROCC Facebook Page:

https://www.facebook.com/ROCCSALEM/

ROCC Facebook Group for Chat:

https://www.facebook.com/groups/232944234571700/

 

ROCC – Recovery Outreach Community Center Awareness Through Literature With Debra – Mondays @ Online via Zoom
Oct 3 @ 1:00 pm – 2:00 pm

logo

ROCC Salem presents this online peer support group

AWARENESS THROUGH LITERATURE WITH DEBRA

MONDAYS Online 1:00–2:00 PM (PST)

A group  where we study books designed to expand consciousness, such as “The Four Agreements”, and “The Power of Now.”

Use the Link Below to Register and Join Online:

https://us02web.zoom.us/meeting/register/tZcuc-6qqTMvHNfZnGNsddZjuE6XJla6vS1E

ZOOM Meeting ID: 892 6852 3422

ROCC has peer support by phone and other online groups, too!

Peer Support is now available on the phone Seven days a week, 11:00 am to 7:00 pm (PST) Peer support is about connecting with someone in a way that contributes to both people learning and growing.

There’s no assessment, diagnosis, or treatment. It’s about helping each other understand how we’ve come to know what we know, and moving toward what we want, instead of just getting away from what we don’t want.

One on One Peer support via phone is available with certified Peer Support Specialists

Peer Support Numbers 11 am-7 pm (PST)

971-718-8668 (Tuesday-Thursday)

971-718-8670 (Friday-Monday)

 

To learn about ROCC’s Online Groups visit:

ROCC Mission Statement

Recovery Outreach Community Center (ROCC), is a safe place for people recovering from or who are interested in mental health, addiction, trauma, or other related issues. Our mission is to empower and respect others through peer-led service and peer-to-peer support. We want to encourage self-direction, personal responsibility, and hope, by providing a safe place for people to share stories and heal.

ROCC Principles

Principle I

The source of ROCC’s power is peer-to-peer relations. By sharing stories and experiences, we lead each other into hope.

Principle II

Self-direction and personal recovery is ROCC’s goal. To be able to lead, control, and choose your own recovery path will achieve a self-determined life.

Principle III

ROCC requires respectful conduct and encourages the voice of all. We must instill hope in the individual while fulfilling the values of the group.

ROCC Website:

https://www.roccsalem.org

ROCC Facebook Page:

https://www.facebook.com/ROCCSALEM/

ROCC Facebook Group for Chat:

https://www.facebook.com/groups/232944234571700/

 

Oct
4
Tue
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 4 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 4 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 4 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Oct 4 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

Oct
5
Wed
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 5 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 5 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 5 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

Human Trafficking – Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support
Oct 5 all-day
Human Trafficking - Crisis Line - Trafficking Survivors - Resources - Articles - Peer Support

 

 

Human Trafficking

Crisis Line – Trafficking Survivors – Resources – Articles – Peer Support

National Human Trafficking Resource Center

The National Human Trafficking Resource Center (NHTRC) is a national, toll-free hotline available to answer calls from anywhere in the country, 24 hours a day, 7 days a week, every day of the year.

Toll Free Phone:

1-888-373-7888

Text:

“Help” or “Info” to 233733 (BeFree)

Live chat:

Referral directory:

National Survivor Network has Peer to Peer Mentors: https://nationalsurvivornetwork.org/membership/

Child Welfare Information Gateway

Sex Trafficking Prevention and Intervention Organizations

Call to Safety Line (Portland, Oregon)

Phone: 503.235.5333

Toll Free: 888-235-5333

Multnomah County Resources andHotline for victims / survivors:

OREGON RESOURCE LIST (PDF) for Survivors

Rebecca Bender (Grants Pass, OR)

Resources Page

REBECCA BENDER IS CEO OF THE REBECCA BENDER INITIATIVE AND FOUNDER OF ELEVATE ACADEMY

Rebecca is a thought leader, advocate, and consultant who equips individuals and organizations to identify and fight human trafficking in their own back yards. She was appointed to the U.S. Department of Health and Human Services, regularly testifies as an expert witness in court, and has trained over 100,000 professionals, including FBI, Homeland Security, regional law enforcement and medical personnel. She works closely with the Oregon Department of Justice and is a leading voice in the fight against trafficking nationally.

The U.S. INSTITUTE AGAINST HUMAN TRAFFICKING LAUNCHED

PROJECT: REACH OUT

TO REACH AND PROVIDE SERVICES TO HUMAN TRAFFICKING VICTIMS.

Project REACH

Phone: (617) 232–1303 ex. 211

Fax: (617) 232-1280

Email: ehopper@jri.org

http://www.traumacenter.org/clients/reach_svcs.php

General Scope: Project REACH provides consultation and brief mental health services to trafficking victims throughout the United States. Project REACH provides case consultation to local health providers regarding individuals who have been trafficked, offering expertise on trauma and mental health to local providers.
UPDATE: The Trauma Center at JRI has closed. In 2017 Dr. Bessel van der Kolk was terminated due to allegations of creating a hostile environment that allowed the then ED to engage in abusive practices.

FREE Training Video (Signup Required / eCourse) Utilizing Telehealth in Identifying and Resourcing Trafficking Victims

https://www.telementalhealthtraining.com/utilizing-telehealth-in-identifying-and-resourcing-trafficking-victims

US National Office for Victims of Crime

Upcoming events at:

https://ovc.ojp.gov/events

On-demand events at:

https://ovc.ojp.gov/events/on-demand-events

PREVENTING RETRAUMATIZATION: A MACRO SOCIAL WORK APPROACH

https://www.socialworker.com/feature-articles/practice/preventing-retraumatization-a-macro-social-work-approach-to-trauma-informed-practices-policies/

PEER-TO-PEER SUPPORT TOOLKIT DEVELOPMENT FOR SURVIVORS OF HUMAN TRAFFICKING:A WORK IN PROGRESS

https://fspeel.org/wp-content/uploads/2020/12/Peer-to-Peer_Support_Toolkit_for_HT_Survivors-Work_in_Progress_June2020.pdf

National Human Trafficking Training & Technical Assistance Center Publications

Peer Support Groups Exploratory Brief

https://nhttac.acf.hhs.gov/sites/default/files/2021-03/Peer%20Support%20Groups%20Exploratory%20Brief%20508c.pdf

 

CONDUCTING SEEKING SAFETY PEER LED PROGRAM WITH INDIVIDUALS WHO EXPERIENCE HUMAN TRAFFICKING AND SUD

https://nhttac.acf.hhs.gov/sites/default/files/2021-09/NHTTAC%20Peer%202%20Peer%20Factsheet_508-Ready%20for%20Website.pdf

Peer-Led Support Groups: Overview of the Empirical Research and Implications for Individuals Who Have Experienced Trafficking and Substance Use Disorder (Overview, Peer Support Outcomes, etc.)

https://static1.squarespace.com/static/5ee517995ce62276749898ed/t/608ac0a5899f45278fb958f0/1619706022880/NHTTAC+Peer+Support+Lit+Review_FINAL+resubmission_3.12.21.pdf

 

Toolkit for Building Survivor-Informed Organizations (February 2018)

https://nhttac.acf.hhs.gov/resources/toolkit-building-survivor-informed-organizations

 

Survivor-Informed Practice: Definition, Best Practices, and Recommendations (October 2017)

https://nhttac.acf.hhs.gov/resources/survivor-informed-practice-definition-best-practices-and-recommendations-october-2017

Survivor-Informed Practice: Self-Guided Assessment Tool (October 2017)
Human Trafficking Task Force eGuide: Using a Trauma Informed Approach
A WAY OUT – 23 ONLINE PEER SUPPORT GROUPS FOR SURVIVORS OF DV / SEXUAL ASSAULT

HOPE FOR JUSTICE

Spot the signs – several flyers:
Report a concern:
To report a concern of human trafficking or modern slavery
Call (615) 356-0946 on Monday-Friday, 9am-5pm CST
For general information:
USA
HOPE FOR JUSTICE
P.O. Box 280365
Nashville, TN 37228
(+1) 615-356-0946
Office Hours:
Monday – Friday, 9am – 5pm (Central Time)
Visit this link for more information and resources:
Upcoming events including a business lunch and learn, a conference and more:
Spot the signs (further details at this link):
[POTENTIAL] INDICATORS OF MODERN SLAVERY & HUMAN TRAFFICKING
  • Houses or flats with too many people, all picked up or dropped off at the same time

  • People who seem scared, confused or have untreated injuries

  • Few or no documents, or someone else in control of their documents / passport

  • No control over their own post/mail, no phone or phone held by someone else

  • Low or no pay

  • One person speaking on behalf of many others, who may avoid eye contact or conversation

  • Lights on at workplaces at strange times – are people living there?

  • Feel they are in debt to someone

  • Limited freedom of movement and dependency on others

  • Fear of police/authorities

  • Fear of a trafficker, believing their life or families’ lives are at risk if they escape or complain

  • Anxious and unwilling to tell others about their situation

  • Poor health, malnutrition or untreated dental conditions

  • Bruising; signs of other physical or psychological trauma including anxiety, confusion, memory loss

  • Less often, someone believing they are being controlled through witchcraft

Note: Those affected are unlikely to self-identify as a ‘victim’ and may not realize or accept they are being controlled

Oct
6
Thu
AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Oct 6 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

AM – All Month – Hispanic Heritage Month – AFSP – American Foundation for Suicide Prevention – An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources
Oct 6 all-day

 

 

 

Hispanic Heritage Month

AFSP – American Foundation for Suicide Prevention

An Introduction to Suicide Prevention For Latinx and Hispanic Communities – Resources

¡Feliz mes de la herencia hispana! Today, September 15, marks the start of National Hispanic Heritage Month, in which we celebrate the histories, cultures and contributions of Latinx and Hispanic people in the United States including Puerto Rico. It is also an opportunity to reflect on the progress we’ve made to advance mental health for Latinx and Hispanic communities.

One of those ways is through partnerships. It is our privilege to be partnering with the National Latino Behavioral Health Association (NLBHA) and others for the 2022 National Latino Behavioral Health Conference taking place September 15 and 16, featuring remarks from AFSP’s Chief Medical Officer Dr. Christine Yu-Moutier, and Vice President of Public Relations María de los Ángeles Corral.

Another way in which we are making inroads is through new programming. We are thrilled to announce that this October, in collaboration with NLBHA, we will be launching Talk Saves Lives™ (TSL): An Introduction to Suicide Prevention for Latinx and Hispanic Communities, a much-needed and vital new resource for mental health and suicide awareness education for communities of Latinx and Hispanic heritage. The presentation will be available in English and Spanish, in person and virtually.

Join us this month as we shine a light on mental health resources for Latinx and Hispanic communities, as well as the stories and perspectives of individuals who have reflected on their cultural background and how it can impact their experiences with mental health through our Real Stories blog over the years. You can find those resources, stories, social shareables and more here. Another great resource is our website! It can be translated into Spanish by clicking on the “Accessibility” top right button, then “Choose language,” then “Spanish.”

National Hispanic Heritage Month is a time to celebrate and support Latinx and Hispanic communities.

We encourage you to share the resources above, this month and beyond.

 

FIND RESOURCES

 

AM – September is Suicide Prevention Month and National Recovery Month – Warmline – Resources
Oct 6 all-day

 

 

September is Suicide Prevention Month

and

National Recovery Month

This month, we share support and resources for suicide prevention and recovery from addiction.

SUICIDE PREVENTION MONTH

Every September, we strive to bring attention to suicide awareness and prevention. Suicide continues to be a leading cause of death in the United States; over 45,00 individuals lost their lives to suicide last year. Suicide rates across all populations have held consistently high since 2016, peaking in 2018. Some people report feeling that the topic of suicide is uncomfortable to talk about. Often after a suicide has occurred, loved ones and friends acknowledge that they thought something was wrong or saw signs they were concerned about but did not know what to do or felt uncomfortable saying or doing anything. Breaking that isolation and that discomfort can save lives, and we encourage engaging with the community around this, in events such as this education and discussion webinar on September 6 run by Mental Health America on identification and prevention of youth suicide.

Below is a list of organizations that contain helpful information and resources. Links provide signs to look for, tips on how best to support someone who could be at risk, as well as information on what to do in such a crisis. We continue to feel it is vital to share resources for immediate safety and long-term support, both for those suffering from suicidal thoughts and their families:

 


NATIONAL RECOVERY MONTH

Chronic alcohol use and drug use impact physical health and mental health, significantly reducing quality of life and shortening life spans.  Chronic addiction continues to be an ongoing national crisis, despite strong efforts in combating the disorder through expanded treatment access. Deaths due to addiction have increased, as well as a 59% increase in reports of alcohol abuse in 2020. There is some good news, overdose rates such as those caused by misuse of methadone have decreased, but we have a long way to go.

Isolation, boredom, frustration, and anxiety all contribute to increased substance use as an escape, as highlighted in this article. Recovery is a lengthy process and a lifetime of challenges for those who are successful in quitting drugs and alcohol. If you are struggling with a dependence on substances and feel like you cannot stop, or are watching someone you love or care about struggle with drugs or alcohol, we want you to know there is help, hope, and support. We wanted to highlight a list of major peer and professional support services that offer both in-person and remote connections, as well as other resources.

As always, please reach out to us here at the City of Boston Employee Assistance Program for immediate support and assistance. Have a safe and warm September.

 

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