PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

Click the Accessibility Button on the right side, halfway down in the middle, for enhanced viewing and/or access options!  Click the Translate Button in the lower left corner for language options. 

Your use of this site is subject to the Privacy Policy, Terms and Conditions of Use.  Reminder: Fees or charges may be charged by your carrier for sending or receiving SMS text messaging, phone, or data.

If you have an event to add, email us: webmail@peergalaxy.com

Training Opportunities in July 2020
List Provided Courtesy of State of Oregon, Oregon Health Authority
Click here to download PDF Format, 16 pages

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Aug
12
Fri
04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Aug 12 all-day

 

Suicide Prevention Resource Center

 

Event Image

Rescource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 12 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

NSVRC – National Sexual Violence Resource Center – Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence
Aug 12 all-day

 

Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence

 

The following listing of survivor communities and hubs are intended to provide online support through the use of forums, chat rooms, self-help, and general resources to survivors of sexual violence. These resources are organized by the following: peer support, military service members and veterans, male survivors, culturally specific online support, and support for partners of sexual abuse survivors. Sexual Assault Programs should review these resources to become familiar with them before offering recommendations to survivors. Understanding the importance of internet safety and privacy will also help to educate and advocate for a safer virtual world as part of your program’s efforts to provide resources to survivors of sexual violence.

BIPOC Survivors seeking support may also find our Finding Mental Health Support for BIPOC Survivors page helpful.

 

PEER ONLINE SUPPORT

A Long Walk Home

A Long Walk Home (ALWH) uses art therapy and the visual and performing arts to end violence against girls and women. ALWH features testimonies and art by survivors and their allies in order to provide safe and entertaining forums through which the public can learn about healing from and preventing gender-based violence.

Adult Survivors of Child Abuse (ASCA) 

Adult Survivors of Child Abuse (ASCA) is an international self-help support group program designed specifically for adult survivors of neglect, physical, sexual, and/or emotional abuse. The ASCA program offers community-based self-help support groups, provider-based self-help support groups, web-based self-help support groups, and survivor to thriver workbooks.

Advocacy Center

The Advocacy Center offers online groups through the use of a secure platform. All groups are available to survivors of any gender identity or expression, sexual orientation, race or ethnicity, religion, ability, and immigration  status. Support groups have an expectation of strict confidentiality from both facilitators and participants.

After Silence 

After Silence seeks to support, empower, validate, and educate survivors of rape, sexual abuse and all types of sexual violence by providing a website where victims can find answers and support about sexual violence. After Silence provides a free and moderated online support group, chat room, and message board with over 30 different forums ranging from topics created to discuss specific areas of healing and recovery form rape and sexual violence to more general discussions and lighter topics. Survivors can connect with one another in real time, share their stories, and ask questions of each other. The After Silence website can also be viewed in Spanish.

Alexandra House

Alexandra House offer virtual support groups for survivors of domestic, sexual, and relationship  violence and elder abuse. These groups provide opportunities for survivors to   share personal experiences, discuss coping strategies, and find support.

Anxiety & Depression Association of America (ADAA)

ADAA’s anonymous peer-to-peer online anxiety and depression support group aims to be a friendly, safe and supportive place for individuals and their families to share information and experiences.

End the Silence

End the Silence is an online forum for prose, poetry, and visual art dedicated to ending the silence surrounding sexual violence. Their mission is to promote communication about sexual violence by empowering survivors and their loved ones to use creative expressions as a tool to reclaim their voices.

Finding Hope

Finding Hope Support Groups are a safe place for survivors of child sexual abuse to connect with and heal alongside fellow survivors in their own communities. The groups are run by survivors, for survivors, and have three priorities: safety, community, and education.

Fort Refuge

Fort Refuge is a community of abuse survivors offering peer support through online chats and forums. Fort Refuge also offers a library with resources to help confront some of the difficult issues faced by abuse survivors, as well as the opportunity to give support to others.

Gift from Within

Gift from Within is a non-profit organization dedicated to those who suffer from post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. The website develops and disseminates educational material, including videotapes, articles, books, and other resources including trauma support resources and an email pen-pal support network.

Incest Resources, INC.

This non-profit organization is operated solely by survivors and volunteers. The website offers various educational resources to survivors and professionals by mail for a minimal charge.

ISurvive

A volunteer-driven organization and team composed of people from all around the world, the mission is to reach out and offer hope to child abuse survivors. Open and private forums and resources are available to adult survivors of child sexual abuse and their loved ones.

Meetup

Meetup offers several online group meetings for survivors of domestic violence, sexual assault, childhood trauma, and more. Be sure to set the location to your local area to see what’s near you.

Our Wave

Our Wave is a space for survivors to share and tell their stories, as well as ask questions and connect with healing. Our Wave seeks to empower survivors, educate society, and strategize to develop smarter prevention methods.

Pandora’s Project 

Pandora’s Project offers peer support to anyone who has been a victim of rape, sexual assault, or sexual abuse through their online message board, chat room and blogs at Pandora’s Aquarium. The rape and sexual abuse online support group has specific forums for men and women, teens and older survivors, LGBTQ rape and sexual abuse survivors, and friends and family of survivors. Pandora’s Project also provides a resource list for International Crisis Centers and Hotlines.

Peace over Violence

Peace Over Violence provides a number of virtual resources, and  a safe place to connect with other  survivors who share similar experiences. Support groups are available for survivors of domestic and sexual violence and for men who have experience non-consensual sex, and also offer art therapies, trauma informed yoga, and resiliency strategies. All services are offered in English, Spanish, and ASL.

Safehouse

Safehouse offers support groups available via Zoom video and/or audio conference. Support groups include:

  • Sexual Assault Support Group – Mondays, 6-7:30 pm Central
  • Domestic Violence Support Group – Thursdays, 6-7:30 pm Central
  • Men’s Domestic Violence/Sexual Assault Support Group – Tuesdays, 6-7:30 pm Central
  • Spanish-Speaking Domestic Violence/Sexual Assault Support Group – Wednesdays, 6-7:30 pm Central
  • Black Women Support Group – Wednesdays, 6-7:30 pm Central
  • Safe Connections – a 10 week curriculum based program for allies against harmful or unhealthy relationships and survivors of sexual assault or domestic violence with I/DD (Intellectual and Developmental Disabilities), Thursdays, 2:30-4:30 pm Central
Support Groups Central

Support Groups Central hosts a selection of Virtual support group meetings including the  “Tattered Flower” group for survivors of sexual abuse, which can be found under the ‘Women’ group category.

Survivors Chat

Survivors Chat is a community providing a place where survivors can come together through chats, forums, resources and Tumblr to help support each other and in times of need.

Survivors of Incest Anonymous (SIA)

SIA is a global network of survivors of incest and their supporters who host groups and meetings for with other survivors to find mutual support.

Survivors Manual

Survivors Manual is an online space created by Angela Shelton, born from her years of traveling with the documentary Searching for Angela Shelton, and includes resources, a healing podcast, articles, videos, workbooks, mental health techniques, and more.

Survivor’s Network of those Abused by Priests (SNAP)

SNAP is an independent network of survivors of religious sexual abuse and their supporters who connect with other survivors and work to create policies and practices to end sexual abuse.

The Lamplighter Movement 

The Lamplighter Movement is an international movement for incest and child sexual abuse recovery. Their website hosts a list of “The Repair Program” group chapters, book recommendations, resources, poetry, and more.

Trauma Survivors Network

The Trauma Survivors Network offers a list of online support groups which cover an array of intersectional positions and experiences which are potentially useful for survivors.

Turningpoint for Victims of Domestic and Sexual Violence, INC.  

Turningpoint hosts The Creative Healing Support Group (also known as the Sexual Assault Support Group) as well as other supportive networks for survivors.

The Voices and Faces Project 

The Voices and Faces Project is a documentary initiative created to bring the names, faces and stories of survivors of sexual violence and trafficking to the attention of the public. It offers a speakers bureau, additional websites for resources, sexual violence survivor story archive, and a series of documentary and creative projects—including the country’s first creative writing workshop for survivors of sexual and domestic violence and trafficking.

Voices of Courage (Free E-Book and audio book)

Voices of Courage include chapters written by 12 survivors sharing personal stories of their resiliency of surviving sexual violence.

Access the free book here:

7 Cups of Tea

7 Cups of Tea is an online emotional support service. By using  secure and technology, this anonymous service is available 24/7 to anyone worldwide by chat or phone. Connections to listeners are private, one-on-one conversations initiated on demand. Listeners only know what is disclosed to them by the person they are helping. Contact information used to connect the call or chat is kept strictly confidential.

 

MALE SURVIVORS

Male Survivor

Male Survivor provides resources and support for men who were sexually victimized as children, adolescents, or adults.

Male Survivors Trust 

This website provides a web forum for male survivors of child sexual abuse or adult rape, and includes an alphabetized collection of terms and empowerment statements.

The Bristlecone Project 

This is a project of 1 in 6 that supports male survivors to provide their portraits, biographies and stories of healing.

Survivors & Mates Support Network (SAMSN)

SAMSN runs groups for men who were sexually assaulted as young boys or adolescents. The groups run for eight weeks and are two hours in length. Any male who was  sexually assaulted during his childhood can contact  SAMSN about joining one of our groups, and there is no cost to attend.

1 in 6

The mission of 1in6 is to help men who have had unwanted or abusive sexual experiences in childhood live healthier, happier lives. 1in6 also provides information and support resources on the web and in the community for family members, friends, partners and professionals.

 

See also Safehouse in the above ‘Peer Support’ Section

 

 

MILITARY SERVICE MEMBERS AND VETERANS

Make the Connection

Make the Connection is an online resource for veterans to share experiences and obtain resources about sexual violence.

Safe HelpRoom

Safe HelpRoom allows sexual assault survivors in the military to connect with and support one another in a moderated and secure online group chat environment.

Service Women’s Action Network (SWAN)

Service Women Action Network’s (SWAN) mission is to transform military culture by securing equal opportunity and freedom to serve without discrimination, harassment or assault; and to reform veterans’ services to ensure high quality health care and benefits for women veterans and their families.

 

CULTURALLY SPECIFIC

Arte Sana

Arte Sana provides bilingual training on sexual assault, cyber advocacy and survivor activism opportunities, and survivor empowerment through the arts.

Battered Women Support Services (BWSS)

BWSS provides a list of important resources for LGBTQ2S and non-binary survivors of violence including non-heteronormative centered approaches at violence and healing theory, safety planning, courses, and virtual outreach resources.

Center for the Pacific Asian Family (CPAF)

Center for the Pacific Asian Family (CPAF) was founded to help address domestic violence and sexual assault in the Asian and Pacific Islander communities. Their mission is to build healthy and safe communities by addressing the root causes and the consequences of family violence and violence against women. Their site is offered in ten different languages.

Diversity Center Trans Program

The Diversity Center’s Trans Program offers ongoing Virtual Support Groups During COVID-19. The support and discussion group is for people (of any age) who identify on the spectrum of trans/nonbinary/agender/genderfluid and more.

Gender Spectrum 

Gender Spectrum hosts free online groups for pre-teens, teens, parents, caregivers, and other family members and adults. These groups provide an opportunity to connect with others on topics of gender, share experiences, and feel the comfort of a supportive community.

Minnesota Indian Women’s Sexual Assault Coalition

Minnesota Indian Women’s Sexual Assault Coalition’s provides online resources and additional links to helpful information. Their mission is to create awareness and build resources to influence social change and reclaim traditional values of Native women.

National Organization of Asian and Pacific Islanders Ending Sexual Violence  (NAPIESV)

The National Organization of Asian and Pacific Islanders Ending Sexual Violence (NAPIESV) provides support to local/community-based programs and governmental organizations in enhancing their services to victims of sexual violence from the Asian and Pacific Islander communities nationally and in the U.S. territories.

The Deaf Hotline

The Deaf hotline offers safe, confidential advocacy  services for Deaf survivors and service providers. We also provide resources and education about the need for Deaf abuse outreach programs. The NDVH has partnered with the Abused Deaf Women’s Advocacy Services (ADWAS) to provide advocacy for Deaf people through email, live chat, and video phone, and also offer an interactive safety plan.

The GLBT National Help Center

GLBT National Help Center provides free and confidential telephone and internet peer- counseling, information, and local resources for LGBTQ callers throughout the U.S.

The Network/La Red

Support groups offered by The Network La Red gives LGBTQIA+ survivors the opportunity to express themselves, honor their experiences, and develop community connections with other survivors at their own pace. Their website has several other online resources in service to the LGBTQIA+ community.

 

LOVED ONES OF SEXUAL ABUSE SURVIVORS

Mothers of Sexually Abused Children (MOSAC)

MOSAC hosts  online discussions and support groups for mothers of sexually abused children, and has links to other talking groups on their website.

Support for Partners

Support for Partners provides support for partners of those who have been sexually abused as children. This website provides an online forum and a library of resources to develop skills that help partners in their relationships and provide information about abuse and its effects.

 

YOUTH AND HEALTHY SEXUALITY

Advocates for Youth

Advocates for Youth works to help young people make informed and responsible decisions about their reproductive and sexual health.

Answer

Answer is a national organization dedicated to providing and promoting comprehensive sexual education to young people and the adults who teach them.

Ask Trevor 

Ask Trevor offers TrevorChat — a free, “confidential and secure” online messaging service that provides live help through this website to LGTBQ youth. TrevorChat is only intended to assist those who are not at risk for suicide. The site also offers TrevorSpace (https://www.trevorspace.org/) a social networking site for LGTBQ youth ages 13 through 24 and their friends and allies.

I Wanna Know

Iwannaknow.org, by the American Social Health Association (ASHA), offers information on sexual health, sexually transmitted infections (STIs), and healthy relationships for teens.

Power to Decide

PowerToDecide.org offers information on sex, relationships and contraception for teens.

Relationship Status

This online booklet by the Vermont Network Against Domestic and Sexual Violence uses comic book illustrations and activities to discuss healthy relationships and sexuality for teens.

Safer Society Foundation

Safer Society Foundation has two major initiatives: New Circle Mentoring and Safer Society Press. New Circle Mentoring helps at-risk children overcome unique obstacles in their paths to healthy adulthood. Safer Society Press provides free digital literature and “The New Circle” magazine for people who work with and care for at-risk children and teens.

Sex, Etc. 

Sex, Etc. is part of the Teen-to-Teen Sexuality Education Project developed by Answer, a national organization dedicated to providing and promoting comprehensive sexuality education to young people and the adults in their lives.

Starvista Crisis Center

Starvista holds  a Teen Crisis Services chat from Monday to Thursday 4:30-9:30pm PST. Support  is peer-to-peer under staff supervision.  The chat serves ages 13+ but will not turn away any youth on the basis of age.

The Line Campaign 

The Line Campaign empowers young leaders to create a world without sexual violence. This campaign creates dialogues around sexuality, relationships, consent and sexual violence by using film, social media, and community building.

Your Life Your Voice

Your Life Your Voice provides online forums, live chats, and hotline support for youth who have experienced sexual violence. The website also offers additional self-help and self-care resources.

 

COVID-19 SPECIFIC ONLINE RESOURCES

The Dinner Party 

The Dinner Party is building a worldwide community of 20- and 30-somethings who have each experienced the loss of a parent, partner, child, sibling, other close family member, or close friend. Members are invited to virtual dinners to share and support each other.

Mental Health Match

Mental Health Match provides a collection of virtual support groups which are specific to both COVID-19 and sexual violence.

The Global Healthy Living Foundation 

The Global Healthy Living Foundation is a non-profit  whose mission is to improve the quality of life by advocating for improved access to health care at  the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework. The Global Healthy Living Foundation provides resources to help cope with mental health concerns during the coronavirus pandemic

The National Coalition Against Domestic Violence  (NCADV) 

The National Coalition Against Domestic Violence (NCADV) provides a treasure chest of online materials on COVID-19, including a Resource List, Virtual Education Events,  Legislative updates & Action Alerts, and more.

We are Body Politic 

The Body Politic COVID-19 Support Group is open to people experiencing COVID-19 symptoms, COVID-19 survivors people recovering from COVID-19 or dealing with post-viral syndromes as a result of the virus people who have tested positive for COVID-19 and caretakers and immediate family of COVID-19  patients who are currently too sick to actively participate in the group.

 

ADDITIONAL RESOURCES

Rape, Abuse, and Incest National Network (RAINN)

RAINN provides the national hotline for sexual violence survivors (1-800-656-HOPE) as well as provides a website with information on topics related to sexual assault. RAINN also provides confidential crisis counseling online for rape and sexual abuse survivors in the U.S. and internationally.

 

  • Facebook Groups:

(NSVRC does not endorse any of the following groups)

Abuse & Trauma Survivors Support Group for Women
Confessions of Abuse Survivors
Domestic Abuse Survivors
Domestic Violence Survivors
Empower Survivors- Closed Support Group for Adult Survivors of CSA
Feminist Voices (An Anthology for Justice Against Rape and Sexual Abuses)
Healing from Child Sexual Abuse (Women’s Support Group)
Healthy Healing for Female Abuse and Trauma Survivors
Rape Survivors
Sequoias: PTSD, Sexual Assault & Rape Support Group
Still I Stand Rape Victims Support Group
Survivors of Childhood Trauma
Survivors of Domestic Violence & Abuse
Support Group for Male Survivors of Abuse
TARape (Victims/Survivors Corner)
Warriors & Survivors of Abuse, Trauma, Sexual Assault, and Mental Illness
We are Survivors
We are Victims & Survivors of Domestic Violence and Ending the Cycle

 

EN ESPAÑOL

After Silence

After Silence busca apoyar, empoderar, validar y educar a victimas de violación, abuso sexual y todo tipo de violencia sexual al proporcionar un sitio web donde las víctimas pueden encontrar respuestas y apoyo sobre la violencia sexual. After Silence ofrece un grupo de apoyo en línea gratuito y moderado, una sala de chat y un tablero de mensajes con más de 30 foros diferentes que van desde temas creados para discutir áreas específicas de curación y recuperación de la violación y la violencia sexual hasta discusiones más generales y temas más ligeros. Las víctimas pueden conectarse entre sí en tiempo real, compartir sus historias y hacerse preguntas entre ellos. El sitio web de After Silence también se puede ver en español

Gender Spectrum 

Gender Spectrum ofrece el Grupo de padres en Español Este grupo en el “Lounge,” de la comunidad en línea de Gender Spectrum, será de gran ayuda para adultos de habla hispana y que se encuentran lidiando con el constante desarrollo de la identidad de género de un menor o adolescente en sus vidas. Adicionalmente al grupo del Lounge, en el cual los padres pueden conocer a otros padres por medio de mensajes que escriban en línea, este grupo también cuenta con la posibilidad de unirse al grupo de apoyo vía telefónica de Gender Spectrum el cual, se lleva a cabo mediante una conferencia  telefónica en español una vez al mes. espanol@genderspectrum.org.

La Ventanilla de Attencion Integral Para la Mujer (VAIM)

La Ventanilla de Atención Integral para la Mujer (VAIM) ofrece este servicio a través de la aplicación Zoom  una vez por semana, ante el aumento de estos casos durante la pandemia del coronavirus. Las clases se ofrecen todos los martes, entre las 4 y 6 p.m. Los interesados deben enviar un correo a proteccionconlan3@sre.gob.mx para registrarse. Las sesiones son completamente gratuitas.

Mujeres Latinas en Accion

Para la recuperación y/o prevención en casos de violencia doméstica Mujeres Latinas en Acción ofrecen servicios de intervención  en crisis, una línea de ayuda disponible las 24 horas, proporcionamos consejería individual y de grupo, terapia para adultos y niños, asesoría legal, educación comunitaria, y capacitaciones para profesionales y voluntariado, y otros recursos de ayuda. Línea de Crisis de Violencia Domestica de 24 horas: 312-738-5358.

Peace over Violence 

Servicios ofrecidos de Peace Over Violence son para sobrevivientes de Violencia Doméstica, Abuso Sexual y Acoso, y apoyan con  problemas emocionales, información, acompañamientos, referencias, y abogacia las 24 horas ,7 dias a la semana.Los grupos de apoyo proveen un lugar seguro para conectarse con otros sobrevivientes, quienes comparten  experiencias similares. Consejeras entrenadas co-facilitan los grupos en un ambiente confortable.

Safehouse

Safehouse ofrece grupos de apoyo en español disponibles a través de video o audio conferencia de Zoom. ‘Esperanza y Empoderamiento’-  El grupo de habla hispana se reúne los miércoles de 6 a 7:30 p.m. Tambien tienen una Linea de Apoyo de 24 horas: 734-995-5444

Si tiene preguntas acerca del grupo o necesita mas información, envíenos un correo electrónico a supportgroups@safehousecenter.org o llame a Anna Chum al 734-973-0242 ext. 270.

RAINN

RAINN ofrece apoyo gratuito las 24 horas al día, 7 días por semana para los sobrevivientes de la violencia sexual y sus seres queridos. Los recursos incluyen una Línea de Ayuda Nacional Online de Asalto Sexual y una opción de chat en vivo que es gratis, confidencial y segura.

The Hotline

La línea directa ofrece chat en línea y apoyo para  víctimas de violencia y abuso doméstico.

The Network/ La Red

The Network/La Red es una organización de justicia social dirigida por sobrevivientes que trabaja para eliminar el abuso de pareja en las comunidades lesbianas, gay, bisexuales, transgénero, SM, poliamorosas  y cuir. Ofrecen muchos recursos al servicio de la  comunidad de habla hispana.

Woman, INC. 

El Programa Latina de Woman Inc.  ofrece manejo de casos a profundidad para sobrevivientes de violencia doméstica de habla hispana y trabaja para apoyar sobrevivientes en un ambiente culturalmente apropiado.

 

4th Dimension O’Rourke Center – 4DOC – Recovery In Process – Darkness To Light Woman’s Meeting – Hybrid Narcotics Anonymous – Fridays @ Hybred Event Register for Details
Aug 12 @ 4:30 pm – 5:30 pm

 

 

 

 

 

4D Recovery – O’Rourke Center

 

DARKNESS TO LIGHT WOMEN’S MEETING

 

Fridays – 4:30 PM to 5:30 PM PST

4D Recovery is a RCO providing a variety of substance use recovery support services that target young people 18 – 35. Services include recovery mentoring, recovery community centers and recovery housing.

 

Woman’s Hybrid Narcotics Anonymous Literature Meeting!

Zoom ID:  821 – 5973 – 2567

Password: Recovery

 

 

4th Dimension Recovery
Website:     http://4drecovery.org
Phone:        (971) 703-4623
Email:         support@4drecovery.org
Aug
13
Sat
04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Aug 13 all-day

 

Suicide Prevention Resource Center

 

Event Image

Rescource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 13 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

NSVRC – National Sexual Violence Resource Center – Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence
Aug 13 all-day

 

Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence

 

The following listing of survivor communities and hubs are intended to provide online support through the use of forums, chat rooms, self-help, and general resources to survivors of sexual violence. These resources are organized by the following: peer support, military service members and veterans, male survivors, culturally specific online support, and support for partners of sexual abuse survivors. Sexual Assault Programs should review these resources to become familiar with them before offering recommendations to survivors. Understanding the importance of internet safety and privacy will also help to educate and advocate for a safer virtual world as part of your program’s efforts to provide resources to survivors of sexual violence.

BIPOC Survivors seeking support may also find our Finding Mental Health Support for BIPOC Survivors page helpful.

 

PEER ONLINE SUPPORT

A Long Walk Home

A Long Walk Home (ALWH) uses art therapy and the visual and performing arts to end violence against girls and women. ALWH features testimonies and art by survivors and their allies in order to provide safe and entertaining forums through which the public can learn about healing from and preventing gender-based violence.

Adult Survivors of Child Abuse (ASCA) 

Adult Survivors of Child Abuse (ASCA) is an international self-help support group program designed specifically for adult survivors of neglect, physical, sexual, and/or emotional abuse. The ASCA program offers community-based self-help support groups, provider-based self-help support groups, web-based self-help support groups, and survivor to thriver workbooks.

Advocacy Center

The Advocacy Center offers online groups through the use of a secure platform. All groups are available to survivors of any gender identity or expression, sexual orientation, race or ethnicity, religion, ability, and immigration  status. Support groups have an expectation of strict confidentiality from both facilitators and participants.

After Silence 

After Silence seeks to support, empower, validate, and educate survivors of rape, sexual abuse and all types of sexual violence by providing a website where victims can find answers and support about sexual violence. After Silence provides a free and moderated online support group, chat room, and message board with over 30 different forums ranging from topics created to discuss specific areas of healing and recovery form rape and sexual violence to more general discussions and lighter topics. Survivors can connect with one another in real time, share their stories, and ask questions of each other. The After Silence website can also be viewed in Spanish.

Alexandra House

Alexandra House offer virtual support groups for survivors of domestic, sexual, and relationship  violence and elder abuse. These groups provide opportunities for survivors to   share personal experiences, discuss coping strategies, and find support.

Anxiety & Depression Association of America (ADAA)

ADAA’s anonymous peer-to-peer online anxiety and depression support group aims to be a friendly, safe and supportive place for individuals and their families to share information and experiences.

End the Silence

End the Silence is an online forum for prose, poetry, and visual art dedicated to ending the silence surrounding sexual violence. Their mission is to promote communication about sexual violence by empowering survivors and their loved ones to use creative expressions as a tool to reclaim their voices.

Finding Hope

Finding Hope Support Groups are a safe place for survivors of child sexual abuse to connect with and heal alongside fellow survivors in their own communities. The groups are run by survivors, for survivors, and have three priorities: safety, community, and education.

Fort Refuge

Fort Refuge is a community of abuse survivors offering peer support through online chats and forums. Fort Refuge also offers a library with resources to help confront some of the difficult issues faced by abuse survivors, as well as the opportunity to give support to others.

Gift from Within

Gift from Within is a non-profit organization dedicated to those who suffer from post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. The website develops and disseminates educational material, including videotapes, articles, books, and other resources including trauma support resources and an email pen-pal support network.

Incest Resources, INC.

This non-profit organization is operated solely by survivors and volunteers. The website offers various educational resources to survivors and professionals by mail for a minimal charge.

ISurvive

A volunteer-driven organization and team composed of people from all around the world, the mission is to reach out and offer hope to child abuse survivors. Open and private forums and resources are available to adult survivors of child sexual abuse and their loved ones.

Meetup

Meetup offers several online group meetings for survivors of domestic violence, sexual assault, childhood trauma, and more. Be sure to set the location to your local area to see what’s near you.

Our Wave

Our Wave is a space for survivors to share and tell their stories, as well as ask questions and connect with healing. Our Wave seeks to empower survivors, educate society, and strategize to develop smarter prevention methods.

Pandora’s Project 

Pandora’s Project offers peer support to anyone who has been a victim of rape, sexual assault, or sexual abuse through their online message board, chat room and blogs at Pandora’s Aquarium. The rape and sexual abuse online support group has specific forums for men and women, teens and older survivors, LGBTQ rape and sexual abuse survivors, and friends and family of survivors. Pandora’s Project also provides a resource list for International Crisis Centers and Hotlines.

Peace over Violence

Peace Over Violence provides a number of virtual resources, and  a safe place to connect with other  survivors who share similar experiences. Support groups are available for survivors of domestic and sexual violence and for men who have experience non-consensual sex, and also offer art therapies, trauma informed yoga, and resiliency strategies. All services are offered in English, Spanish, and ASL.

Safehouse

Safehouse offers support groups available via Zoom video and/or audio conference. Support groups include:

  • Sexual Assault Support Group – Mondays, 6-7:30 pm Central
  • Domestic Violence Support Group – Thursdays, 6-7:30 pm Central
  • Men’s Domestic Violence/Sexual Assault Support Group – Tuesdays, 6-7:30 pm Central
  • Spanish-Speaking Domestic Violence/Sexual Assault Support Group – Wednesdays, 6-7:30 pm Central
  • Black Women Support Group – Wednesdays, 6-7:30 pm Central
  • Safe Connections – a 10 week curriculum based program for allies against harmful or unhealthy relationships and survivors of sexual assault or domestic violence with I/DD (Intellectual and Developmental Disabilities), Thursdays, 2:30-4:30 pm Central
Support Groups Central

Support Groups Central hosts a selection of Virtual support group meetings including the  “Tattered Flower” group for survivors of sexual abuse, which can be found under the ‘Women’ group category.

Survivors Chat

Survivors Chat is a community providing a place where survivors can come together through chats, forums, resources and Tumblr to help support each other and in times of need.

Survivors of Incest Anonymous (SIA)

SIA is a global network of survivors of incest and their supporters who host groups and meetings for with other survivors to find mutual support.

Survivors Manual

Survivors Manual is an online space created by Angela Shelton, born from her years of traveling with the documentary Searching for Angela Shelton, and includes resources, a healing podcast, articles, videos, workbooks, mental health techniques, and more.

Survivor’s Network of those Abused by Priests (SNAP)

SNAP is an independent network of survivors of religious sexual abuse and their supporters who connect with other survivors and work to create policies and practices to end sexual abuse.

The Lamplighter Movement 

The Lamplighter Movement is an international movement for incest and child sexual abuse recovery. Their website hosts a list of “The Repair Program” group chapters, book recommendations, resources, poetry, and more.

Trauma Survivors Network

The Trauma Survivors Network offers a list of online support groups which cover an array of intersectional positions and experiences which are potentially useful for survivors.

Turningpoint for Victims of Domestic and Sexual Violence, INC.  

Turningpoint hosts The Creative Healing Support Group (also known as the Sexual Assault Support Group) as well as other supportive networks for survivors.

The Voices and Faces Project 

The Voices and Faces Project is a documentary initiative created to bring the names, faces and stories of survivors of sexual violence and trafficking to the attention of the public. It offers a speakers bureau, additional websites for resources, sexual violence survivor story archive, and a series of documentary and creative projects—including the country’s first creative writing workshop for survivors of sexual and domestic violence and trafficking.

Voices of Courage (Free E-Book and audio book)

Voices of Courage include chapters written by 12 survivors sharing personal stories of their resiliency of surviving sexual violence.

Access the free book here:

7 Cups of Tea

7 Cups of Tea is an online emotional support service. By using  secure and technology, this anonymous service is available 24/7 to anyone worldwide by chat or phone. Connections to listeners are private, one-on-one conversations initiated on demand. Listeners only know what is disclosed to them by the person they are helping. Contact information used to connect the call or chat is kept strictly confidential.

 

MALE SURVIVORS

Male Survivor

Male Survivor provides resources and support for men who were sexually victimized as children, adolescents, or adults.

Male Survivors Trust 

This website provides a web forum for male survivors of child sexual abuse or adult rape, and includes an alphabetized collection of terms and empowerment statements.

The Bristlecone Project 

This is a project of 1 in 6 that supports male survivors to provide their portraits, biographies and stories of healing.

Survivors & Mates Support Network (SAMSN)

SAMSN runs groups for men who were sexually assaulted as young boys or adolescents. The groups run for eight weeks and are two hours in length. Any male who was  sexually assaulted during his childhood can contact  SAMSN about joining one of our groups, and there is no cost to attend.

1 in 6

The mission of 1in6 is to help men who have had unwanted or abusive sexual experiences in childhood live healthier, happier lives. 1in6 also provides information and support resources on the web and in the community for family members, friends, partners and professionals.

 

See also Safehouse in the above ‘Peer Support’ Section

 

 

MILITARY SERVICE MEMBERS AND VETERANS

Make the Connection

Make the Connection is an online resource for veterans to share experiences and obtain resources about sexual violence.

Safe HelpRoom

Safe HelpRoom allows sexual assault survivors in the military to connect with and support one another in a moderated and secure online group chat environment.

Service Women’s Action Network (SWAN)

Service Women Action Network’s (SWAN) mission is to transform military culture by securing equal opportunity and freedom to serve without discrimination, harassment or assault; and to reform veterans’ services to ensure high quality health care and benefits for women veterans and their families.

 

CULTURALLY SPECIFIC

Arte Sana

Arte Sana provides bilingual training on sexual assault, cyber advocacy and survivor activism opportunities, and survivor empowerment through the arts.

Battered Women Support Services (BWSS)

BWSS provides a list of important resources for LGBTQ2S and non-binary survivors of violence including non-heteronormative centered approaches at violence and healing theory, safety planning, courses, and virtual outreach resources.

Center for the Pacific Asian Family (CPAF)

Center for the Pacific Asian Family (CPAF) was founded to help address domestic violence and sexual assault in the Asian and Pacific Islander communities. Their mission is to build healthy and safe communities by addressing the root causes and the consequences of family violence and violence against women. Their site is offered in ten different languages.

Diversity Center Trans Program

The Diversity Center’s Trans Program offers ongoing Virtual Support Groups During COVID-19. The support and discussion group is for people (of any age) who identify on the spectrum of trans/nonbinary/agender/genderfluid and more.

Gender Spectrum 

Gender Spectrum hosts free online groups for pre-teens, teens, parents, caregivers, and other family members and adults. These groups provide an opportunity to connect with others on topics of gender, share experiences, and feel the comfort of a supportive community.

Minnesota Indian Women’s Sexual Assault Coalition

Minnesota Indian Women’s Sexual Assault Coalition’s provides online resources and additional links to helpful information. Their mission is to create awareness and build resources to influence social change and reclaim traditional values of Native women.

National Organization of Asian and Pacific Islanders Ending Sexual Violence  (NAPIESV)

The National Organization of Asian and Pacific Islanders Ending Sexual Violence (NAPIESV) provides support to local/community-based programs and governmental organizations in enhancing their services to victims of sexual violence from the Asian and Pacific Islander communities nationally and in the U.S. territories.

The Deaf Hotline

The Deaf hotline offers safe, confidential advocacy  services for Deaf survivors and service providers. We also provide resources and education about the need for Deaf abuse outreach programs. The NDVH has partnered with the Abused Deaf Women’s Advocacy Services (ADWAS) to provide advocacy for Deaf people through email, live chat, and video phone, and also offer an interactive safety plan.

The GLBT National Help Center

GLBT National Help Center provides free and confidential telephone and internet peer- counseling, information, and local resources for LGBTQ callers throughout the U.S.

The Network/La Red

Support groups offered by The Network La Red gives LGBTQIA+ survivors the opportunity to express themselves, honor their experiences, and develop community connections with other survivors at their own pace. Their website has several other online resources in service to the LGBTQIA+ community.

 

LOVED ONES OF SEXUAL ABUSE SURVIVORS

Mothers of Sexually Abused Children (MOSAC)

MOSAC hosts  online discussions and support groups for mothers of sexually abused children, and has links to other talking groups on their website.

Support for Partners

Support for Partners provides support for partners of those who have been sexually abused as children. This website provides an online forum and a library of resources to develop skills that help partners in their relationships and provide information about abuse and its effects.

 

YOUTH AND HEALTHY SEXUALITY

Advocates for Youth

Advocates for Youth works to help young people make informed and responsible decisions about their reproductive and sexual health.

Answer

Answer is a national organization dedicated to providing and promoting comprehensive sexual education to young people and the adults who teach them.

Ask Trevor 

Ask Trevor offers TrevorChat — a free, “confidential and secure” online messaging service that provides live help through this website to LGTBQ youth. TrevorChat is only intended to assist those who are not at risk for suicide. The site also offers TrevorSpace (https://www.trevorspace.org/) a social networking site for LGTBQ youth ages 13 through 24 and their friends and allies.

I Wanna Know

Iwannaknow.org, by the American Social Health Association (ASHA), offers information on sexual health, sexually transmitted infections (STIs), and healthy relationships for teens.

Power to Decide

PowerToDecide.org offers information on sex, relationships and contraception for teens.

Relationship Status

This online booklet by the Vermont Network Against Domestic and Sexual Violence uses comic book illustrations and activities to discuss healthy relationships and sexuality for teens.

Safer Society Foundation

Safer Society Foundation has two major initiatives: New Circle Mentoring and Safer Society Press. New Circle Mentoring helps at-risk children overcome unique obstacles in their paths to healthy adulthood. Safer Society Press provides free digital literature and “The New Circle” magazine for people who work with and care for at-risk children and teens.

Sex, Etc. 

Sex, Etc. is part of the Teen-to-Teen Sexuality Education Project developed by Answer, a national organization dedicated to providing and promoting comprehensive sexuality education to young people and the adults in their lives.

Starvista Crisis Center

Starvista holds  a Teen Crisis Services chat from Monday to Thursday 4:30-9:30pm PST. Support  is peer-to-peer under staff supervision.  The chat serves ages 13+ but will not turn away any youth on the basis of age.

The Line Campaign 

The Line Campaign empowers young leaders to create a world without sexual violence. This campaign creates dialogues around sexuality, relationships, consent and sexual violence by using film, social media, and community building.

Your Life Your Voice

Your Life Your Voice provides online forums, live chats, and hotline support for youth who have experienced sexual violence. The website also offers additional self-help and self-care resources.

 

COVID-19 SPECIFIC ONLINE RESOURCES

The Dinner Party 

The Dinner Party is building a worldwide community of 20- and 30-somethings who have each experienced the loss of a parent, partner, child, sibling, other close family member, or close friend. Members are invited to virtual dinners to share and support each other.

Mental Health Match

Mental Health Match provides a collection of virtual support groups which are specific to both COVID-19 and sexual violence.

The Global Healthy Living Foundation 

The Global Healthy Living Foundation is a non-profit  whose mission is to improve the quality of life by advocating for improved access to health care at  the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework. The Global Healthy Living Foundation provides resources to help cope with mental health concerns during the coronavirus pandemic

The National Coalition Against Domestic Violence  (NCADV) 

The National Coalition Against Domestic Violence (NCADV) provides a treasure chest of online materials on COVID-19, including a Resource List, Virtual Education Events,  Legislative updates & Action Alerts, and more.

We are Body Politic 

The Body Politic COVID-19 Support Group is open to people experiencing COVID-19 symptoms, COVID-19 survivors people recovering from COVID-19 or dealing with post-viral syndromes as a result of the virus people who have tested positive for COVID-19 and caretakers and immediate family of COVID-19  patients who are currently too sick to actively participate in the group.

 

ADDITIONAL RESOURCES

Rape, Abuse, and Incest National Network (RAINN)

RAINN provides the national hotline for sexual violence survivors (1-800-656-HOPE) as well as provides a website with information on topics related to sexual assault. RAINN also provides confidential crisis counseling online for rape and sexual abuse survivors in the U.S. and internationally.

 

  • Facebook Groups:

(NSVRC does not endorse any of the following groups)

Abuse & Trauma Survivors Support Group for Women
Confessions of Abuse Survivors
Domestic Abuse Survivors
Domestic Violence Survivors
Empower Survivors- Closed Support Group for Adult Survivors of CSA
Feminist Voices (An Anthology for Justice Against Rape and Sexual Abuses)
Healing from Child Sexual Abuse (Women’s Support Group)
Healthy Healing for Female Abuse and Trauma Survivors
Rape Survivors
Sequoias: PTSD, Sexual Assault & Rape Support Group
Still I Stand Rape Victims Support Group
Survivors of Childhood Trauma
Survivors of Domestic Violence & Abuse
Support Group for Male Survivors of Abuse
TARape (Victims/Survivors Corner)
Warriors & Survivors of Abuse, Trauma, Sexual Assault, and Mental Illness
We are Survivors
We are Victims & Survivors of Domestic Violence and Ending the Cycle

 

EN ESPAÑOL

After Silence

After Silence busca apoyar, empoderar, validar y educar a victimas de violación, abuso sexual y todo tipo de violencia sexual al proporcionar un sitio web donde las víctimas pueden encontrar respuestas y apoyo sobre la violencia sexual. After Silence ofrece un grupo de apoyo en línea gratuito y moderado, una sala de chat y un tablero de mensajes con más de 30 foros diferentes que van desde temas creados para discutir áreas específicas de curación y recuperación de la violación y la violencia sexual hasta discusiones más generales y temas más ligeros. Las víctimas pueden conectarse entre sí en tiempo real, compartir sus historias y hacerse preguntas entre ellos. El sitio web de After Silence también se puede ver en español

Gender Spectrum 

Gender Spectrum ofrece el Grupo de padres en Español Este grupo en el “Lounge,” de la comunidad en línea de Gender Spectrum, será de gran ayuda para adultos de habla hispana y que se encuentran lidiando con el constante desarrollo de la identidad de género de un menor o adolescente en sus vidas. Adicionalmente al grupo del Lounge, en el cual los padres pueden conocer a otros padres por medio de mensajes que escriban en línea, este grupo también cuenta con la posibilidad de unirse al grupo de apoyo vía telefónica de Gender Spectrum el cual, se lleva a cabo mediante una conferencia  telefónica en español una vez al mes. espanol@genderspectrum.org.

La Ventanilla de Attencion Integral Para la Mujer (VAIM)

La Ventanilla de Atención Integral para la Mujer (VAIM) ofrece este servicio a través de la aplicación Zoom  una vez por semana, ante el aumento de estos casos durante la pandemia del coronavirus. Las clases se ofrecen todos los martes, entre las 4 y 6 p.m. Los interesados deben enviar un correo a proteccionconlan3@sre.gob.mx para registrarse. Las sesiones son completamente gratuitas.

Mujeres Latinas en Accion

Para la recuperación y/o prevención en casos de violencia doméstica Mujeres Latinas en Acción ofrecen servicios de intervención  en crisis, una línea de ayuda disponible las 24 horas, proporcionamos consejería individual y de grupo, terapia para adultos y niños, asesoría legal, educación comunitaria, y capacitaciones para profesionales y voluntariado, y otros recursos de ayuda. Línea de Crisis de Violencia Domestica de 24 horas: 312-738-5358.

Peace over Violence 

Servicios ofrecidos de Peace Over Violence son para sobrevivientes de Violencia Doméstica, Abuso Sexual y Acoso, y apoyan con  problemas emocionales, información, acompañamientos, referencias, y abogacia las 24 horas ,7 dias a la semana.Los grupos de apoyo proveen un lugar seguro para conectarse con otros sobrevivientes, quienes comparten  experiencias similares. Consejeras entrenadas co-facilitan los grupos en un ambiente confortable.

Safehouse

Safehouse ofrece grupos de apoyo en español disponibles a través de video o audio conferencia de Zoom. ‘Esperanza y Empoderamiento’-  El grupo de habla hispana se reúne los miércoles de 6 a 7:30 p.m. Tambien tienen una Linea de Apoyo de 24 horas: 734-995-5444

Si tiene preguntas acerca del grupo o necesita mas información, envíenos un correo electrónico a supportgroups@safehousecenter.org o llame a Anna Chum al 734-973-0242 ext. 270.

RAINN

RAINN ofrece apoyo gratuito las 24 horas al día, 7 días por semana para los sobrevivientes de la violencia sexual y sus seres queridos. Los recursos incluyen una Línea de Ayuda Nacional Online de Asalto Sexual y una opción de chat en vivo que es gratis, confidencial y segura.

The Hotline

La línea directa ofrece chat en línea y apoyo para  víctimas de violencia y abuso doméstico.

The Network/ La Red

The Network/La Red es una organización de justicia social dirigida por sobrevivientes que trabaja para eliminar el abuso de pareja en las comunidades lesbianas, gay, bisexuales, transgénero, SM, poliamorosas  y cuir. Ofrecen muchos recursos al servicio de la  comunidad de habla hispana.

Woman, INC. 

El Programa Latina de Woman Inc.  ofrece manejo de casos a profundidad para sobrevivientes de violencia doméstica de habla hispana y trabaja para apoyar sobrevivientes en un ambiente culturalmente apropiado.

 

4th Dimension O’Rourke Center – 4DOC – Miracles Start Here – Hybrid Narcotics Anonymous – Saturdays @ Hybred Event Register for Details
Aug 13 @ 3:00 pm – 4:00 pm

 

 

 

 

 

4D Recovery – O’Rourke Center

 

MIRACLES STAT HERE

 

Saturdays – 3:00PM to 4:00PM PST

4D Recovery is a RCO providing a variety of substance use recovery support services that target young people 18 – 35. Services include recovery mentoring, recovery community centers and recovery housing.

 

An open hybrid meeting of Narcotics Anonymous

Zoom ID:  829 – 2247 – 9059

Password: recovery

 

 

 

 

4th Dimension Recovery
Website:     http://4drecovery.org
Phone:        (971) 703-4623
Email:         support@4drecovery.org
Aug
14
Sun
04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Aug 14 all-day

 

Suicide Prevention Resource Center

 

Event Image

Rescource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 14 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

NSVRC – National Sexual Violence Resource Center – Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence
Aug 14 all-day

 

Resources – Survivor Communities and Hubs for Survivors of Domestic and Sexual Violence

 

The following listing of survivor communities and hubs are intended to provide online support through the use of forums, chat rooms, self-help, and general resources to survivors of sexual violence. These resources are organized by the following: peer support, military service members and veterans, male survivors, culturally specific online support, and support for partners of sexual abuse survivors. Sexual Assault Programs should review these resources to become familiar with them before offering recommendations to survivors. Understanding the importance of internet safety and privacy will also help to educate and advocate for a safer virtual world as part of your program’s efforts to provide resources to survivors of sexual violence.

BIPOC Survivors seeking support may also find our Finding Mental Health Support for BIPOC Survivors page helpful.

 

PEER ONLINE SUPPORT

A Long Walk Home

A Long Walk Home (ALWH) uses art therapy and the visual and performing arts to end violence against girls and women. ALWH features testimonies and art by survivors and their allies in order to provide safe and entertaining forums through which the public can learn about healing from and preventing gender-based violence.

Adult Survivors of Child Abuse (ASCA) 

Adult Survivors of Child Abuse (ASCA) is an international self-help support group program designed specifically for adult survivors of neglect, physical, sexual, and/or emotional abuse. The ASCA program offers community-based self-help support groups, provider-based self-help support groups, web-based self-help support groups, and survivor to thriver workbooks.

Advocacy Center

The Advocacy Center offers online groups through the use of a secure platform. All groups are available to survivors of any gender identity or expression, sexual orientation, race or ethnicity, religion, ability, and immigration  status. Support groups have an expectation of strict confidentiality from both facilitators and participants.

After Silence 

After Silence seeks to support, empower, validate, and educate survivors of rape, sexual abuse and all types of sexual violence by providing a website where victims can find answers and support about sexual violence. After Silence provides a free and moderated online support group, chat room, and message board with over 30 different forums ranging from topics created to discuss specific areas of healing and recovery form rape and sexual violence to more general discussions and lighter topics. Survivors can connect with one another in real time, share their stories, and ask questions of each other. The After Silence website can also be viewed in Spanish.

Alexandra House

Alexandra House offer virtual support groups for survivors of domestic, sexual, and relationship  violence and elder abuse. These groups provide opportunities for survivors to   share personal experiences, discuss coping strategies, and find support.

Anxiety & Depression Association of America (ADAA)

ADAA’s anonymous peer-to-peer online anxiety and depression support group aims to be a friendly, safe and supportive place for individuals and their families to share information and experiences.

End the Silence

End the Silence is an online forum for prose, poetry, and visual art dedicated to ending the silence surrounding sexual violence. Their mission is to promote communication about sexual violence by empowering survivors and their loved ones to use creative expressions as a tool to reclaim their voices.

Finding Hope

Finding Hope Support Groups are a safe place for survivors of child sexual abuse to connect with and heal alongside fellow survivors in their own communities. The groups are run by survivors, for survivors, and have three priorities: safety, community, and education.

Fort Refuge

Fort Refuge is a community of abuse survivors offering peer support through online chats and forums. Fort Refuge also offers a library with resources to help confront some of the difficult issues faced by abuse survivors, as well as the opportunity to give support to others.

Gift from Within

Gift from Within is a non-profit organization dedicated to those who suffer from post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. The website develops and disseminates educational material, including videotapes, articles, books, and other resources including trauma support resources and an email pen-pal support network.

Incest Resources, INC.

This non-profit organization is operated solely by survivors and volunteers. The website offers various educational resources to survivors and professionals by mail for a minimal charge.

ISurvive

A volunteer-driven organization and team composed of people from all around the world, the mission is to reach out and offer hope to child abuse survivors. Open and private forums and resources are available to adult survivors of child sexual abuse and their loved ones.

Meetup

Meetup offers several online group meetings for survivors of domestic violence, sexual assault, childhood trauma, and more. Be sure to set the location to your local area to see what’s near you.

Our Wave

Our Wave is a space for survivors to share and tell their stories, as well as ask questions and connect with healing. Our Wave seeks to empower survivors, educate society, and strategize to develop smarter prevention methods.

Pandora’s Project 

Pandora’s Project offers peer support to anyone who has been a victim of rape, sexual assault, or sexual abuse through their online message board, chat room and blogs at Pandora’s Aquarium. The rape and sexual abuse online support group has specific forums for men and women, teens and older survivors, LGBTQ rape and sexual abuse survivors, and friends and family of survivors. Pandora’s Project also provides a resource list for International Crisis Centers and Hotlines.

Peace over Violence

Peace Over Violence provides a number of virtual resources, and  a safe place to connect with other  survivors who share similar experiences. Support groups are available for survivors of domestic and sexual violence and for men who have experience non-consensual sex, and also offer art therapies, trauma informed yoga, and resiliency strategies. All services are offered in English, Spanish, and ASL.

Safehouse

Safehouse offers support groups available via Zoom video and/or audio conference. Support groups include:

  • Sexual Assault Support Group – Mondays, 6-7:30 pm Central
  • Domestic Violence Support Group – Thursdays, 6-7:30 pm Central
  • Men’s Domestic Violence/Sexual Assault Support Group – Tuesdays, 6-7:30 pm Central
  • Spanish-Speaking Domestic Violence/Sexual Assault Support Group – Wednesdays, 6-7:30 pm Central
  • Black Women Support Group – Wednesdays, 6-7:30 pm Central
  • Safe Connections – a 10 week curriculum based program for allies against harmful or unhealthy relationships and survivors of sexual assault or domestic violence with I/DD (Intellectual and Developmental Disabilities), Thursdays, 2:30-4:30 pm Central
Support Groups Central

Support Groups Central hosts a selection of Virtual support group meetings including the  “Tattered Flower” group for survivors of sexual abuse, which can be found under the ‘Women’ group category.

Survivors Chat

Survivors Chat is a community providing a place where survivors can come together through chats, forums, resources and Tumblr to help support each other and in times of need.

Survivors of Incest Anonymous (SIA)

SIA is a global network of survivors of incest and their supporters who host groups and meetings for with other survivors to find mutual support.

Survivors Manual

Survivors Manual is an online space created by Angela Shelton, born from her years of traveling with the documentary Searching for Angela Shelton, and includes resources, a healing podcast, articles, videos, workbooks, mental health techniques, and more.

Survivor’s Network of those Abused by Priests (SNAP)

SNAP is an independent network of survivors of religious sexual abuse and their supporters who connect with other survivors and work to create policies and practices to end sexual abuse.

The Lamplighter Movement 

The Lamplighter Movement is an international movement for incest and child sexual abuse recovery. Their website hosts a list of “The Repair Program” group chapters, book recommendations, resources, poetry, and more.

Trauma Survivors Network

The Trauma Survivors Network offers a list of online support groups which cover an array of intersectional positions and experiences which are potentially useful for survivors.

Turningpoint for Victims of Domestic and Sexual Violence, INC.  

Turningpoint hosts The Creative Healing Support Group (also known as the Sexual Assault Support Group) as well as other supportive networks for survivors.

The Voices and Faces Project 

The Voices and Faces Project is a documentary initiative created to bring the names, faces and stories of survivors of sexual violence and trafficking to the attention of the public. It offers a speakers bureau, additional websites for resources, sexual violence survivor story archive, and a series of documentary and creative projects—including the country’s first creative writing workshop for survivors of sexual and domestic violence and trafficking.

Voices of Courage (Free E-Book and audio book)

Voices of Courage include chapters written by 12 survivors sharing personal stories of their resiliency of surviving sexual violence.

Access the free book here:

7 Cups of Tea

7 Cups of Tea is an online emotional support service. By using  secure and technology, this anonymous service is available 24/7 to anyone worldwide by chat or phone. Connections to listeners are private, one-on-one conversations initiated on demand. Listeners only know what is disclosed to them by the person they are helping. Contact information used to connect the call or chat is kept strictly confidential.

 

MALE SURVIVORS

Male Survivor

Male Survivor provides resources and support for men who were sexually victimized as children, adolescents, or adults.

Male Survivors Trust 

This website provides a web forum for male survivors of child sexual abuse or adult rape, and includes an alphabetized collection of terms and empowerment statements.

The Bristlecone Project 

This is a project of 1 in 6 that supports male survivors to provide their portraits, biographies and stories of healing.

Survivors & Mates Support Network (SAMSN)

SAMSN runs groups for men who were sexually assaulted as young boys or adolescents. The groups run for eight weeks and are two hours in length. Any male who was  sexually assaulted during his childhood can contact  SAMSN about joining one of our groups, and there is no cost to attend.

1 in 6

The mission of 1in6 is to help men who have had unwanted or abusive sexual experiences in childhood live healthier, happier lives. 1in6 also provides information and support resources on the web and in the community for family members, friends, partners and professionals.

 

See also Safehouse in the above ‘Peer Support’ Section

 

 

MILITARY SERVICE MEMBERS AND VETERANS

Make the Connection

Make the Connection is an online resource for veterans to share experiences and obtain resources about sexual violence.

Safe HelpRoom

Safe HelpRoom allows sexual assault survivors in the military to connect with and support one another in a moderated and secure online group chat environment.

Service Women’s Action Network (SWAN)

Service Women Action Network’s (SWAN) mission is to transform military culture by securing equal opportunity and freedom to serve without discrimination, harassment or assault; and to reform veterans’ services to ensure high quality health care and benefits for women veterans and their families.

 

CULTURALLY SPECIFIC

Arte Sana

Arte Sana provides bilingual training on sexual assault, cyber advocacy and survivor activism opportunities, and survivor empowerment through the arts.

Battered Women Support Services (BWSS)

BWSS provides a list of important resources for LGBTQ2S and non-binary survivors of violence including non-heteronormative centered approaches at violence and healing theory, safety planning, courses, and virtual outreach resources.

Center for the Pacific Asian Family (CPAF)

Center for the Pacific Asian Family (CPAF) was founded to help address domestic violence and sexual assault in the Asian and Pacific Islander communities. Their mission is to build healthy and safe communities by addressing the root causes and the consequences of family violence and violence against women. Their site is offered in ten different languages.

Diversity Center Trans Program

The Diversity Center’s Trans Program offers ongoing Virtual Support Groups During COVID-19. The support and discussion group is for people (of any age) who identify on the spectrum of trans/nonbinary/agender/genderfluid and more.

Gender Spectrum 

Gender Spectrum hosts free online groups for pre-teens, teens, parents, caregivers, and other family members and adults. These groups provide an opportunity to connect with others on topics of gender, share experiences, and feel the comfort of a supportive community.

Minnesota Indian Women’s Sexual Assault Coalition

Minnesota Indian Women’s Sexual Assault Coalition’s provides online resources and additional links to helpful information. Their mission is to create awareness and build resources to influence social change and reclaim traditional values of Native women.

National Organization of Asian and Pacific Islanders Ending Sexual Violence  (NAPIESV)

The National Organization of Asian and Pacific Islanders Ending Sexual Violence (NAPIESV) provides support to local/community-based programs and governmental organizations in enhancing their services to victims of sexual violence from the Asian and Pacific Islander communities nationally and in the U.S. territories.

The Deaf Hotline

The Deaf hotline offers safe, confidential advocacy  services for Deaf survivors and service providers. We also provide resources and education about the need for Deaf abuse outreach programs. The NDVH has partnered with the Abused Deaf Women’s Advocacy Services (ADWAS) to provide advocacy for Deaf people through email, live chat, and video phone, and also offer an interactive safety plan.

The GLBT National Help Center

GLBT National Help Center provides free and confidential telephone and internet peer- counseling, information, and local resources for LGBTQ callers throughout the U.S.

The Network/La Red

Support groups offered by The Network La Red gives LGBTQIA+ survivors the opportunity to express themselves, honor their experiences, and develop community connections with other survivors at their own pace. Their website has several other online resources in service to the LGBTQIA+ community.

 

LOVED ONES OF SEXUAL ABUSE SURVIVORS

Mothers of Sexually Abused Children (MOSAC)

MOSAC hosts  online discussions and support groups for mothers of sexually abused children, and has links to other talking groups on their website.

Support for Partners

Support for Partners provides support for partners of those who have been sexually abused as children. This website provides an online forum and a library of resources to develop skills that help partners in their relationships and provide information about abuse and its effects.

 

YOUTH AND HEALTHY SEXUALITY

Advocates for Youth

Advocates for Youth works to help young people make informed and responsible decisions about their reproductive and sexual health.

Answer

Answer is a national organization dedicated to providing and promoting comprehensive sexual education to young people and the adults who teach them.

Ask Trevor 

Ask Trevor offers TrevorChat — a free, “confidential and secure” online messaging service that provides live help through this website to LGTBQ youth. TrevorChat is only intended to assist those who are not at risk for suicide. The site also offers TrevorSpace (https://www.trevorspace.org/) a social networking site for LGTBQ youth ages 13 through 24 and their friends and allies.

I Wanna Know

Iwannaknow.org, by the American Social Health Association (ASHA), offers information on sexual health, sexually transmitted infections (STIs), and healthy relationships for teens.

Power to Decide

PowerToDecide.org offers information on sex, relationships and contraception for teens.

Relationship Status

This online booklet by the Vermont Network Against Domestic and Sexual Violence uses comic book illustrations and activities to discuss healthy relationships and sexuality for teens.

Safer Society Foundation

Safer Society Foundation has two major initiatives: New Circle Mentoring and Safer Society Press. New Circle Mentoring helps at-risk children overcome unique obstacles in their paths to healthy adulthood. Safer Society Press provides free digital literature and “The New Circle” magazine for people who work with and care for at-risk children and teens.

Sex, Etc. 

Sex, Etc. is part of the Teen-to-Teen Sexuality Education Project developed by Answer, a national organization dedicated to providing and promoting comprehensive sexuality education to young people and the adults in their lives.

Starvista Crisis Center

Starvista holds  a Teen Crisis Services chat from Monday to Thursday 4:30-9:30pm PST. Support  is peer-to-peer under staff supervision.  The chat serves ages 13+ but will not turn away any youth on the basis of age.

The Line Campaign 

The Line Campaign empowers young leaders to create a world without sexual violence. This campaign creates dialogues around sexuality, relationships, consent and sexual violence by using film, social media, and community building.

Your Life Your Voice

Your Life Your Voice provides online forums, live chats, and hotline support for youth who have experienced sexual violence. The website also offers additional self-help and self-care resources.

 

COVID-19 SPECIFIC ONLINE RESOURCES

The Dinner Party 

The Dinner Party is building a worldwide community of 20- and 30-somethings who have each experienced the loss of a parent, partner, child, sibling, other close family member, or close friend. Members are invited to virtual dinners to share and support each other.

Mental Health Match

Mental Health Match provides a collection of virtual support groups which are specific to both COVID-19 and sexual violence.

The Global Healthy Living Foundation 

The Global Healthy Living Foundation is a non-profit  whose mission is to improve the quality of life by advocating for improved access to health care at  the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework. The Global Healthy Living Foundation provides resources to help cope with mental health concerns during the coronavirus pandemic

The National Coalition Against Domestic Violence  (NCADV) 

The National Coalition Against Domestic Violence (NCADV) provides a treasure chest of online materials on COVID-19, including a Resource List, Virtual Education Events,  Legislative updates & Action Alerts, and more.

We are Body Politic 

The Body Politic COVID-19 Support Group is open to people experiencing COVID-19 symptoms, COVID-19 survivors people recovering from COVID-19 or dealing with post-viral syndromes as a result of the virus people who have tested positive for COVID-19 and caretakers and immediate family of COVID-19  patients who are currently too sick to actively participate in the group.

 

ADDITIONAL RESOURCES

Rape, Abuse, and Incest National Network (RAINN)

RAINN provides the national hotline for sexual violence survivors (1-800-656-HOPE) as well as provides a website with information on topics related to sexual assault. RAINN also provides confidential crisis counseling online for rape and sexual abuse survivors in the U.S. and internationally.

 

  • Facebook Groups:

(NSVRC does not endorse any of the following groups)

Abuse & Trauma Survivors Support Group for Women
Confessions of Abuse Survivors
Domestic Abuse Survivors
Domestic Violence Survivors
Empower Survivors- Closed Support Group for Adult Survivors of CSA
Feminist Voices (An Anthology for Justice Against Rape and Sexual Abuses)
Healing from Child Sexual Abuse (Women’s Support Group)
Healthy Healing for Female Abuse and Trauma Survivors
Rape Survivors
Sequoias: PTSD, Sexual Assault & Rape Support Group
Still I Stand Rape Victims Support Group
Survivors of Childhood Trauma
Survivors of Domestic Violence & Abuse
Support Group for Male Survivors of Abuse
TARape (Victims/Survivors Corner)
Warriors & Survivors of Abuse, Trauma, Sexual Assault, and Mental Illness
We are Survivors
We are Victims & Survivors of Domestic Violence and Ending the Cycle

 

EN ESPAÑOL

After Silence

After Silence busca apoyar, empoderar, validar y educar a victimas de violación, abuso sexual y todo tipo de violencia sexual al proporcionar un sitio web donde las víctimas pueden encontrar respuestas y apoyo sobre la violencia sexual. After Silence ofrece un grupo de apoyo en línea gratuito y moderado, una sala de chat y un tablero de mensajes con más de 30 foros diferentes que van desde temas creados para discutir áreas específicas de curación y recuperación de la violación y la violencia sexual hasta discusiones más generales y temas más ligeros. Las víctimas pueden conectarse entre sí en tiempo real, compartir sus historias y hacerse preguntas entre ellos. El sitio web de After Silence también se puede ver en español

Gender Spectrum 

Gender Spectrum ofrece el Grupo de padres en Español Este grupo en el “Lounge,” de la comunidad en línea de Gender Spectrum, será de gran ayuda para adultos de habla hispana y que se encuentran lidiando con el constante desarrollo de la identidad de género de un menor o adolescente en sus vidas. Adicionalmente al grupo del Lounge, en el cual los padres pueden conocer a otros padres por medio de mensajes que escriban en línea, este grupo también cuenta con la posibilidad de unirse al grupo de apoyo vía telefónica de Gender Spectrum el cual, se lleva a cabo mediante una conferencia  telefónica en español una vez al mes. espanol@genderspectrum.org.

La Ventanilla de Attencion Integral Para la Mujer (VAIM)

La Ventanilla de Atención Integral para la Mujer (VAIM) ofrece este servicio a través de la aplicación Zoom  una vez por semana, ante el aumento de estos casos durante la pandemia del coronavirus. Las clases se ofrecen todos los martes, entre las 4 y 6 p.m. Los interesados deben enviar un correo a proteccionconlan3@sre.gob.mx para registrarse. Las sesiones son completamente gratuitas.

Mujeres Latinas en Accion

Para la recuperación y/o prevención en casos de violencia doméstica Mujeres Latinas en Acción ofrecen servicios de intervención  en crisis, una línea de ayuda disponible las 24 horas, proporcionamos consejería individual y de grupo, terapia para adultos y niños, asesoría legal, educación comunitaria, y capacitaciones para profesionales y voluntariado, y otros recursos de ayuda. Línea de Crisis de Violencia Domestica de 24 horas: 312-738-5358.

Peace over Violence 

Servicios ofrecidos de Peace Over Violence son para sobrevivientes de Violencia Doméstica, Abuso Sexual y Acoso, y apoyan con  problemas emocionales, información, acompañamientos, referencias, y abogacia las 24 horas ,7 dias a la semana.Los grupos de apoyo proveen un lugar seguro para conectarse con otros sobrevivientes, quienes comparten  experiencias similares. Consejeras entrenadas co-facilitan los grupos en un ambiente confortable.

Safehouse

Safehouse ofrece grupos de apoyo en español disponibles a través de video o audio conferencia de Zoom. ‘Esperanza y Empoderamiento’-  El grupo de habla hispana se reúne los miércoles de 6 a 7:30 p.m. Tambien tienen una Linea de Apoyo de 24 horas: 734-995-5444

Si tiene preguntas acerca del grupo o necesita mas información, envíenos un correo electrónico a supportgroups@safehousecenter.org o llame a Anna Chum al 734-973-0242 ext. 270.

RAINN

RAINN ofrece apoyo gratuito las 24 horas al día, 7 días por semana para los sobrevivientes de la violencia sexual y sus seres queridos. Los recursos incluyen una Línea de Ayuda Nacional Online de Asalto Sexual y una opción de chat en vivo que es gratis, confidencial y segura.

The Hotline

La línea directa ofrece chat en línea y apoyo para  víctimas de violencia y abuso doméstico.

The Network/ La Red

The Network/La Red es una organización de justicia social dirigida por sobrevivientes que trabaja para eliminar el abuso de pareja en las comunidades lesbianas, gay, bisexuales, transgénero, SM, poliamorosas  y cuir. Ofrecen muchos recursos al servicio de la  comunidad de habla hispana.

Woman, INC. 

El Programa Latina de Woman Inc.  ofrece manejo de casos a profundidad para sobrevivientes de violencia doméstica de habla hispana y trabaja para apoyar sobrevivientes en un ambiente culturalmente apropiado.

 

4th Dimension O’Rourke Center – 4DOC – A LIFE WORTH LIVING- Narcotics Anonymous Meeting – Hybrid -Tuesdays, Thursdays, Sundays @ Online Via ZOOM
Aug 14 @ 8:30 pm – 9:30 pm

 

 

 

 

 

4D Recovery – O’Rourke Center

 

A LIFE WORTH LIVING

Narcotics Anonymous Hybrid Meeting

 

Tuesdays, Thursdays, Sundays – 8:30 PM to 9:30 PM PST

4D Recovery is a RCO providing a variety of substance use recovery support services that target young people 18 – 35. Services include recovery mentoring, recovery community centers and recovery housing.

 

NA Hybrid Meeting

Zoom ID:  503 – 119 – 2020

Password: Recovery

 

 

4th Dimension Recovery
Website:     http://4drecovery.org
Phone:        (971) 703-4623
Email:         support@4drecovery.org
Aug
15
Mon
04 – Resources – Resource Lists for First Responders, Educators, LGBTQ, Hispanic, Youth, Elderly, Parents and More
Aug 15 all-day

 

Suicide Prevention Resource Center

 

Event Image

Rescource Lists to Support Mental Health and Coping with the Coronavirus (COVID-19)

 

LISTS COURTESY OF THE SUICIDE PREVENTION RESCOURCE CENTER

 

GENERAL AUDIANCE

MENTAL HEALTH PROFESSIONALS

HEALTH CARE WORKERS AND FIRST RESPONDERS

 

COMMUNITY LEADERS

AMERICAN INDIANS AND ALASKA NATIVES

COLLEGES AND UNIVERSITES

 

SCHOOLS

PARENTS AND CARE GIVERS

TEENAGERS

OLDER ADULTS

HISPANICS/LATINOS

LGBTQ

FAITH COMMUNITIES

WORKPLACES

COVID-19 Resource Lists from Partners of the Suicide Prevention Resource Center

  • The National Action Alliance for Suicide Prevention (Action Alliance) has developed a list of resources on safe messaging and for some specific populations.
  • The Zero Suicide Institute (ZSI) has developed a resource list for health care leaders and mental health professionals that addresses safe suicide care.
  • The Substance Abuse and Mental Health Services Administration (SAMHSA) has developed a resource list for individuals, providers, communities, and states focused on behavioral health care.
  • Education Development Center (EDC) has developed a list of resources related to health, mental health, and education.

 

 

AM – All Month – Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Aug 15 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. W