PeerGalaxy

Oregon's Peer Support Directory

PeerGalaxy Calendar

Welcome to PeerGalaxy Calendar featuring over 82,000 monthly offerings of FREE telephone- and online-accessible peer support, recovery support + wellness activities!

Over 30+ warmlines plus webinars, workshops, job postings, special events, consumer input opportunities and more.

WE ARE PEER FOR YOU!

Click the Accessibility Button on the right side, halfway down in the middle, for enhanced viewing and/or access options!  Click the Translate Button in the lower left corner for language options. 

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If you have an event to add, email us: webmail@peergalaxy.com

How Events are Sorted:

First, at the top of the list: Disaster Hotline & Oregon Safe + Strong Helpline.

Next in the list: Bundled “All Day” Events for organizations with events happening at multiple times throughout the day and/or in many formats or locations; these are bundled into a single listing to prevent endless scrolling.  Usually these offer a lookup by zip code or other criteria. 

Lastly, Time-Specific Events listed by start time from 12:01am early morning to 11:59pm late night.  Warmlines and places east of Oregon’s time zone tend to start earlier (e.g. 4am in Oregon is 7am in New York).

Dec
4
Sun
02 – OPEC – Oregon Parenting Education Collaborative – Parenting Education Resources
Dec 4 all-day

 

PARENTING EDUCATION RESOURCES

OPEC has a new website! Visit health.oregonstate.edu/opec for the most update OPEC information. ORParenting.org will be phased out by the end of 2022.

OPEC HUBS IN OREGON

About OPEC Hubs

The Oregon Parenting Education Collaborative (OPEC) supports a statewide network of parenting “Hubs.” As part of their role, OPEC Hubs:

  • Provide infrastructure to support parenting education efforts across their region, serving as a “go-to” place for families and community partners related to parenting resources and programs, support professional development opportunities for parenting education professionals, and collect data
  • Foster community collaboration to coordinate parenting programs across community partners, build relationships between cross-sector partners, and leverage available resources in support of families
  • Expand access to and normalize parenting education programs through a combination of direct service and mini-grants to partner organizations to meet the needs of all families in their communities. OPEC Hubs support a blend of universal and targeted parenting programs that are evidence-/research-based and culturally-responsive

The OPEC Logic Model illustrates the strategies, outputs, and outcomes of this work.

Ready to get connected? Your local OPEC Hub can connect you with in-person and remote parenting classes, workshops, resources, and family events in your community.

OPEC Facebook Page

https://www.facebook.com/OPECParentingEd/

Select From the Counties listed below to fund your HUB

FOR PARENTING EDUCATORS

Resource Tip Sheets

Parenting Education Curricula Resources

 Training Opportunities

Research

Program Fidelity Rating Tools

Additional Resources

OPEC GRANTEE SITES

Grantee Directory

Contact information for each of the OPEC Parenting Education Hubs is listed below.


OPEC Parenting Hubs



Building Healthy Families:
Baker, Malheur, Wallowa

Maria Weer
Executive Director
541.426.9411
mweer@oregonbhf.org

Clackamas Parenting Together:
Clackamas

Chelsea Hamilton
Clackamas OPEC Hub Coordinator
503.367.9116
chamilton@co.clackamas.or.us

The Family Connection:
Jackson, Josephine

Bethanee Grace
Program Co-Coordinator
541.734.5150 ext. 1042
bgrace@socfc.org

Diana Bennington
Program Co-Coordinator
541.734.5150 ext.1050
Diana.Bennington@socfc.org

Family Resource Center of Central Oregon:
Crook, Deschutes, Jefferson

Dee Ann Lewis
Executive Director
541.389.5468
deeannl@frconline.org

Kim Pitts
Program Logistics Coordinator
541.389.5468
kimp@frconline.org

First 5 Siskiyou:
Siskiyou, CA

Karen Pautz
Executive Director
First 5 Siskiyou
530.918.7222
karenpautz@first5siskiyou.org

Four Rivers Early Learning & Parenting Hub:
Gilliam, Hood River, Sherman, Wasco, Wheeler

Christa Rude
Regional Coordinator
541.506.2255
christa.rude@cgesd.k12.or.us

Shira Skybinskyy
Parenting Hub Assistant Director
sskybinskyy@cgesd.k12.or.us

Frontier Hub:
Grant, Harney

Donna Schnitker
Hub Director
541.573.6461
schnitkd@harneyesd.k12.or.us

Patti Wright
OPEC Grant Coordinator
541.620.0622
wrightp@harneyesd.k12.or.us

LaneKids:
Lane

Claire Hambly
Education Program Manager
541.741.6000 ext 141
chambly@unitedwaylane.org

Emily Reiter
Education Program Specialist
541.741.6000
ereiter@unitedwaylane.org

Marion & Polk Early Learning Hub, Inc.:
Marion

Lisa Harnisch
Executive Director
503.967.1187
lharnisch@earlylearninghub.org

Tiffany Miller
Communication Specialist and Parent Education Associate
503.485.3291
tmiller@earlylearninghub.org

Margie Lowe
Performance and Fiscal Officer
503.559.9610
mlowe@earlylearninghub.org

Mid-Valley Parenting:
Polk, Yamhill

Brent DeMoe
Director, Family & Community Outreach
503.623.9664 ext. 2118
demoe.brent@co.polk.or.us

Stephanie Gilbert
Early Learning and Family Engagement Coordinator
503.623.9664 ext. 2368
gilbert.stephanie@co.polk.or.us

Northwest Parenting:
Clatsop, Columbia, Tillamook 

Dorothy Spence
Early Learning & Parenting Education Hub Coordinator
503.614.1682
dspence@nwresd.k12.or.us 

Elena Barreto
Regional Coordinator
503.614.1443
ebarreto@nwresd.k12.or.us

Parenting Success Network:
Benton, Linn

Mike Jerpbak
Department Chair, Parenting Education
541.917.4891
wolfej@linnbenton.edu

Sommer McLeish
Coordinator (Lincoln County)
541.557.6215
smcleish@samhealth.org

Parenting Together Washington County:
Washington

Leslie Moguil
Senior Program Coordinator
503.846.4556
leslie_moguil@co.washington.or.us

Pathways to Positive Parenting:
Coos, Curry

Charity Grover
Parenting Lead
541.266.3909
charityg@scesd.k12.or.us 

Take Root:
Douglas, Klamath, Lake

Julie Hurley
Parenting Education Coordinator
Douglas/Lake/Klamath
541.492.6607
julie.hurley@douglasesd.k12.or.us

Susan Stiles-Sumstine
Assistant Parenting Hub Coordinator
Douglas/Lake/Klamath
541.492.6604
susan.stiles-sumstine@douglasesd.k12.or.us

Sanora Hoggarth
Parenting Education Coordinator for Klamath County
sanora.hoggarth@douglasesd.k12.or.us

Umatilla Morrow Head Start, Inc.:
Morrow, Umatilla, Union

Aaron Treadwell
Executive Director
541.564.6878
atreadwe@umchs.org

Mary Lou Gutierrez
Parenting Education Coordinator
541.667.6091
mgutierr@umchs.org

Jen Goodman
Family and Community Partnership Manager (Union County)
541.786.5535
goodmajd@eou.edu

OPEC Funded Parenting Education Curriculum



Abriendo Puertas /Opening Doors

Suicide Prevention for Parents
A guide for parents and caregivers while at the hospital emergency department

 

PARENTING EDUCATION BOOK LISTS

CUTTING OUT SCREENTIME: OUR FAMILY’S EXPERIMENT January/February 2022 

Run Wild 

by David Covell 

Daniel Finds a Poem 

by Micha Archer 

What to do with a Box 

by Jane Yolen & Chris Sheban

GETTING IN TOUCH 

WITH NATURE 

March 2022 

Green Green: A Community Gardening Story by Marie Lamba 

Lola Plants a Garden / Lola planta un jardín by Anna McQuinn 

Up in the Air: Butterflies, Birds, and 

Everything Up Above 

by Zoe Armstrong 

Greenie grows a garden / Verdecito cultiva un jardín (bilingual) 

by Harriet Ziefert 

Hasta Las Rodillas / Up to My Knees 

by Grace Lin (bilingual 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


GETTING MESSY 

AND BEING HANDS-ON April 2022 

Mix It Up! 

by Hervé Tullet 

Pinta Ratones 

by Ellen Stoll Walsh 

Edward Gets Messy 

by Rita Meade 

Ultimate Slime: 100 new recipes and projects for oddly satisying, Borax-free slime 

by Alyssa Jagan 

Mud 

by Mary Lyn Ray 

SIBLINGS & FRIENDS 

May 2022 

How Do Dinosaurs Stay Friends? / Cómo son buenos amigos los dinosaurios 

by Jane Yolen 

The Evil Princess vs. The Brave Knight by Jennifer Holm 

How to Apologize 

by David LaRochelle 

Maple & Willow Together / Arce y Sauce juntas 

by Lori Nichols 

Meesha Makes Friends 

by Tom Percival

GETTING CREATIVE WITH RECYCLABLES 

June 2022 

Recycle and Remake, 

edited by Hélene Hilton 

Rainbow Weaver / Tejedora del arcoíris (bilingual) 

by Linda Elovitz Marshall 

Out of the Box 

by Jemma Westing 

100 Easy STEAM Activities: awesome 

hands-on projects for aspiring artists and engineers 

by Andrea Scalzo Yi 

Recycling Crafts by Annalees Lim 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


BUILDING EMPATHY USING STORYBOOKS 

July 2022 

A Kids Book About Epathy 

by Daron K. Roberts 

I am Human: A Book of Empathy 

by Susan Verde 

Caring with Bert and Ernie: A Book 

About Empathy 

by Marie-Therese Miller 

Empatía: una guia para padres e hijos by Patricia Fernández Bieberach 

Everyone… 

by Christopher Silas Neal 

GOING TO THE DENTIST August 2022 

ABC Dentist 

by Harriet Ziefert 

Does a Tiger Go to the Dentist? 

by Harriet Ziefert 

Max va al dentista 

by Adria F. Klein 

What to Expect When You Go to the Dentist by Heidi Eisenberg Murkoff 

Vamos al Dentista 

ALL ABOUT STRESS 

September 2022 

How Big Are Your Worries Little Bear? By Jayneen Sanders 

The Rabbit Listened 

by Cori Doerrfeld 

Breath Like a Bear: 30 Mindful 

Moments For Kids to Feel Calm and 

Focused Anytime, Anywhere 

by Kira Wiley 

Plantando semillas : la práctica del 

mindfulness con niños 

by Nhá̂t Hạnh 

Scaredy Squirrel 

by Melanie Watt

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

ALL ABOUT CALM 

October 2022 

Mindfulness Moments for Kids: 

Hot Cocoa Calm 

by Kira Willey 

Calm Monsters, Kind Monsters: a Sesame Street Guide to Mindfulness 

by Karen Latchana Kenney 

You Are a Lion!: And Other Fun Yoga Poses / Eres un león!: posturas de yoga para niños 

s

GET INTO THE KITCHEN November 2022 

Thank You, Omu! / ¡Gracias, Omu! 

by Oge Mora 

Cooking Class: 57 Fun Recipes Kids 

will Love to Make (and Eat!) 

by Deanna F. Cook 

Plaza Sésamo: C es de cocinar – recetas de nuestra comunidad 

by Susan McQuillan 

Kalamata’s Kitchen 

by Sarah Thomas 

FAMILY CELEBRATIONS December 2022 

Dumpling Day 

by Meera Sriram 

Alma and How She Got Her Name / Alma y cómo obtuvo su nombre 

by Juana Martinez-Neal 

The Heart of Mi Familia 

by Carrie Lara 

Mango, Abuela, and Me / Mango, Abuela y yo by Meg Medina 

We Are Family 

by Patricia Hegarty 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

 

02 – Urgent Info – Services and Resources in Response to the War in Ukraine
Dec 4 all-day

 

Resources in Response to the War on Ukraine

The recent attack on Ukraine has impacted many families in the United States, especially our military and veteran families and those who have family living in the region. The NCTSN and our partners have resources for those families who may need support during this time:
 

Military and Veteran Family Resources
 
Working Effectively with Military Families: 10 Key Concepts All Providers Should Know
 
Understanding Child Trauma & Resilience: For Military Parents and Caregivers
 
Honoring Our Babies and Toddlers: Supporting Young Children Affected by a Military Parent’s Deployment, Injury, or Death (Zero to Three)
 
Sesame Street for Military Families
 
Community Support for Military Children and Families Throughout the Deployment Cycle (Center for Study of Traumatic Stress, CSTS)
 
Strengthening Military Families to Support Children’s Well-Being
 
Helping Children Cope During Deployment
 
Military Children and Families: Supporting Health and Managing Risk (webinar)
 
Impact of the Military Mission & Combat Deployment on the Service Members
 
Understanding Deployment Related Stressors & Long-term Health in Military Service Members & Veterans:

The Millennium Cohort Study (webinar)
 
An Overview of the Military Family Experience and Culture
 
Talking to Children about War
 
Age-Related Reactions to a Traumatic Event
 
Psychological First Aid for Displaced Children and Families

Traumatic Separation and Refugee and Immigrant Children: Tips for Current Caregivers

Understanding Refugee Trauma:

For School Personnel For Mental Health Professionals  and For Primary Care Providers

Coping in Hard Times: Fact Sheet for Parents

Youth and School Personnel

Helping Children with Traumatic Grief: Young Children

School-Age Children and Teens
 

 

Military Child Education Coalition Resources to Support Ukrainian Military Children & Their Families

As the situation on the ground in Ukraine continues to evolve, and military families deal with potential deployments, we are reminded of the many uncertainties military-connected children experience as a part of the military lifestyle. We are also reminded of the stress and insecurity that can accompany such unpredictable circumstances.

For 24 years, MCEC® has worked to establish programs and resources for parents, educators, and students to help them navigate unique challenges associated with the military lifestyle. Programs like our Student 2 Student® peer-to-peer support system, parent workshops, and professional development for educators all work together to more effectively respond to the unique emotional needs of military children.

MCEC® is also answering the call from our allies. Upon a request from the National Association of Ukrainian Psychologists, seeking resources for serving military families, the American Psychological Association and the Uniformed Services University of the Health Sciences reached out to MCEC®.

We responded with the tools listed below, which, we believe, can be immediately helpful to families during these extremely trying times.

Developing Positive Coping Strategies

Fostering Resilience in Children

Helping Military-Connected Children with Daily Stress & Frustration

Raising a Confident Child in an Uncertain World

Supporting Children through Natural Disasters & Loss

Turning Stress into Strength

Anxiety in Young Children

Depression in Youth

Community Crises & Disasters

Activity Web of Support

MCEC Webinar Resources

National Child Traumatic Stress Network Resources

A one-on-one English program for Ukrainian Youth

ENGin is a nonprofit organization that pairs Ukrainian youth with English-speakers for free online conversation practice and cross-cultural connection. We work with students age 13-30 and volunteers age 14+.

ENGin pairs English learners with volunteers from around the world to conduct weekly online speaking sessions. Every learner and volunteer is screened to ensure their fit for the program. Participants are then matched based on preferences, interests, and availability to ensure an effective and mutually enjoyable communication experience. After a match is made, ENGin supports learners and volunteers throughout their participation in the program with tips, resources, and problem resolution.  

Students Join Here

Volunteer Apply Here

 

Helpline Resources
 

SAMHSA Disaster Distress Helpline – call or text 1-800-985-5990 (for Spanish, press “2”) to be connected to a trained counselor 24/7/365.
 
Military OneSource – call 1-800-342-9647 for eligible DOD service members and their families.
 
Veterans Crisis Line – call 1-800-273-8255, press “1” or text 838255 for all service members.
 
PTSD Consultation Program – for providers who treat Veterans. Ask a question by calling 866-948-7880<tel:866-948-7880> or emailing PTSDconsult@va.gov<mail to:PTSDconsult@va.gov>.
 

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

Dr. Greg Leskin gleskin@mednet.ucla.edu<mailto:gleskin@mednet.ucla.edu> for Military and Veteran Family resource questions and

Dr. Melissa Brymer at mbrymer@mednet.ucla.edu<mailto:mbrymer@mednet.ucla.edu> for all other questions.

 

Resources In Europe

eucap provides provides support for autistic people in crisis situations

Supporting autistic people in crisis situations

How can you deal with difficult situations if you have limited knowledge of autism? How to best support an autistic person in an acute crisis and challenging conditions? View brief basic information compiled by EUCAP and Autism Europe on this page or download as a pdf file here. More translated versions will be added as they become available.

 

Teenergizer support for Ukranian teens

 

Teenage peer-to-peer counselling service offers lifeline to youngsters in Ukraine

An online counselling service for teenagers has made the world of difference to one youngster who struggled to cope with grief.

Click Here For More Information

 

LiLi Center Logo

Ukraine Peer-to-Peer Support Group

The events happening in Ukraine have affected many in different ways. We want to support those affected directly or indirectly by offering a safe place to express their emotions in a supportive and safe environment. Our peer-to-peer networks are a way for people to support each other in a safe and secure space. If you are interested to express your feelings about the war, need guidance or resources The LiLi Centre is here for you.

For More Information Visit :  https://www.lilicentre.ch/en/home

Where: LiLi Centre
When:  
Wednesdays 09:30-11:30, and Thursdays 17:00-19:00

Who:    Anyone impacted by the situation in Ukraine seeking support and community
Cost:    Free, Sponsored by the LiLi Centre’s Mental Health Initiative (MHI)

NOTE: If you have a need to speak with a mental health professional privately about how you are coping, we are happy to put you in touch with our network of providers and/or connect you to our low-cost and no-cost counselling clinic.

AM – All Month – NCPM – National Cancer Prevention Month – FFLCSN – Friend for Life Cancer Support Network – Peer Support
Dec 4 all-day

 

 

National Cancer Prevention Month

February 2022

 

Friend for Life is a network of cancer survivors and caregivers who provide compassionate, one-on-one support to others diagnosed with cancer, and to their loved ones. At your request, Friend for Life will match you with a trained volunteer who has experienced a form of cancer and course of treatment similar to yours. To help persons diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment, and recovery by pairing them with a trained survivor of a similar experience, so they can face cancer with someone who’s been there.

Be Matched With A Volunteer

I can’t begin to tell you how comforting it was and is to have someone a phone call away.

If you have received a cancer diagnosis and would like to receive the support of a Friend for Life volunteer, use  the link below and please complete and submit our matching form. We ask that you describe your situation in as much detail as possible (type of cancer, stage, chemo drugs, alternative therapies, etc.) so that we can make an appropriate match. You may even include hobbies and interests. Please include what is most important to you from the match (particular diagnosis, chemo type, life situation, etc.).  If you are a family member, friend or co-worker who would like to receive the support of one of our volunteers, please provide what you know about the patient’s diagnosis, your relationship to that person, and what is concerning you at this time.

Use This Link

https://www.friend4life.org/get-matched/

Contact Us

Friend for Life Cancer Support Network
Phone: 502.893.0643
Toll-free: 866.374.3634
Fax: 502.896.3010
Email: staff@friend4life.org

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 4 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
5
Mon
02 – OPEC – Oregon Parenting Education Collaborative – Parenting Education Resources
Dec 5 all-day

 

PARENTING EDUCATION RESOURCES

OPEC has a new website! Visit health.oregonstate.edu/opec for the most update OPEC information. ORParenting.org will be phased out by the end of 2022.

OPEC HUBS IN OREGON

About OPEC Hubs

The Oregon Parenting Education Collaborative (OPEC) supports a statewide network of parenting “Hubs.” As part of their role, OPEC Hubs:

  • Provide infrastructure to support parenting education efforts across their region, serving as a “go-to” place for families and community partners related to parenting resources and programs, support professional development opportunities for parenting education professionals, and collect data
  • Foster community collaboration to coordinate parenting programs across community partners, build relationships between cross-sector partners, and leverage available resources in support of families
  • Expand access to and normalize parenting education programs through a combination of direct service and mini-grants to partner organizations to meet the needs of all families in their communities. OPEC Hubs support a blend of universal and targeted parenting programs that are evidence-/research-based and culturally-responsive

The OPEC Logic Model illustrates the strategies, outputs, and outcomes of this work.

Ready to get connected? Your local OPEC Hub can connect you with in-person and remote parenting classes, workshops, resources, and family events in your community.

OPEC Facebook Page

https://www.facebook.com/OPECParentingEd/

Select From the Counties listed below to fund your HUB

FOR PARENTING EDUCATORS

Resource Tip Sheets

Parenting Education Curricula Resources

 Training Opportunities

Research

Program Fidelity Rating Tools

Additional Resources

OPEC GRANTEE SITES

Grantee Directory

Contact information for each of the OPEC Parenting Education Hubs is listed below.


OPEC Parenting Hubs



Building Healthy Families:
Baker, Malheur, Wallowa

Maria Weer
Executive Director
541.426.9411
mweer@oregonbhf.org

Clackamas Parenting Together:
Clackamas

Chelsea Hamilton
Clackamas OPEC Hub Coordinator
503.367.9116
chamilton@co.clackamas.or.us

The Family Connection:
Jackson, Josephine

Bethanee Grace
Program Co-Coordinator
541.734.5150 ext. 1042
bgrace@socfc.org

Diana Bennington
Program Co-Coordinator
541.734.5150 ext.1050
Diana.Bennington@socfc.org

Family Resource Center of Central Oregon:
Crook, Deschutes, Jefferson

Dee Ann Lewis
Executive Director
541.389.5468
deeannl@frconline.org

Kim Pitts
Program Logistics Coordinator
541.389.5468
kimp@frconline.org

First 5 Siskiyou:
Siskiyou, CA

Karen Pautz
Executive Director
First 5 Siskiyou
530.918.7222
karenpautz@first5siskiyou.org

Four Rivers Early Learning & Parenting Hub:
Gilliam, Hood River, Sherman, Wasco, Wheeler

Christa Rude
Regional Coordinator
541.506.2255
christa.rude@cgesd.k12.or.us

Shira Skybinskyy
Parenting Hub Assistant Director
sskybinskyy@cgesd.k12.or.us

Frontier Hub:
Grant, Harney

Donna Schnitker
Hub Director
541.573.6461
schnitkd@harneyesd.k12.or.us

Patti Wright
OPEC Grant Coordinator
541.620.0622
wrightp@harneyesd.k12.or.us

LaneKids:
Lane

Claire Hambly
Education Program Manager
541.741.6000 ext 141
chambly@unitedwaylane.org

Emily Reiter
Education Program Specialist
541.741.6000
ereiter@unitedwaylane.org

Marion & Polk Early Learning Hub, Inc.:
Marion

Lisa Harnisch
Executive Director
503.967.1187
lharnisch@earlylearninghub.org

Tiffany Miller
Communication Specialist and Parent Education Associate
503.485.3291
tmiller@earlylearninghub.org

Margie Lowe
Performance and Fiscal Officer
503.559.9610
mlowe@earlylearninghub.org

Mid-Valley Parenting:
Polk, Yamhill

Brent DeMoe
Director, Family & Community Outreach
503.623.9664 ext. 2118
demoe.brent@co.polk.or.us

Stephanie Gilbert
Early Learning and Family Engagement Coordinator
503.623.9664 ext. 2368
gilbert.stephanie@co.polk.or.us

Northwest Parenting:
Clatsop, Columbia, Tillamook 

Dorothy Spence
Early Learning & Parenting Education Hub Coordinator
503.614.1682
dspence@nwresd.k12.or.us 

Elena Barreto
Regional Coordinator
503.614.1443
ebarreto@nwresd.k12.or.us

Parenting Success Network:
Benton, Linn

Mike Jerpbak
Department Chair, Parenting Education
541.917.4891
wolfej@linnbenton.edu

Sommer McLeish
Coordinator (Lincoln County)
541.557.6215
smcleish@samhealth.org

Parenting Together Washington County:
Washington

Leslie Moguil
Senior Program Coordinator
503.846.4556
leslie_moguil@co.washington.or.us

Pathways to Positive Parenting:
Coos, Curry

Charity Grover
Parenting Lead
541.266.3909
charityg@scesd.k12.or.us 

Take Root:
Douglas, Klamath, Lake

Julie Hurley
Parenting Education Coordinator
Douglas/Lake/Klamath
541.492.6607
julie.hurley@douglasesd.k12.or.us

Susan Stiles-Sumstine
Assistant Parenting Hub Coordinator
Douglas/Lake/Klamath
541.492.6604
susan.stiles-sumstine@douglasesd.k12.or.us

Sanora Hoggarth
Parenting Education Coordinator for Klamath County
sanora.hoggarth@douglasesd.k12.or.us

Umatilla Morrow Head Start, Inc.:
Morrow, Umatilla, Union

Aaron Treadwell
Executive Director
541.564.6878
atreadwe@umchs.org

Mary Lou Gutierrez
Parenting Education Coordinator
541.667.6091
mgutierr@umchs.org

Jen Goodman
Family and Community Partnership Manager (Union County)
541.786.5535
goodmajd@eou.edu

OPEC Funded Parenting Education Curriculum



Abriendo Puertas /Opening Doors

Suicide Prevention for Parents
A guide for parents and caregivers while at the hospital emergency department

 

PARENTING EDUCATION BOOK LISTS

CUTTING OUT SCREENTIME: OUR FAMILY’S EXPERIMENT January/February 2022 

Run Wild 

by David Covell 

Daniel Finds a Poem 

by Micha Archer 

What to do with a Box 

by Jane Yolen & Chris Sheban

GETTING IN TOUCH 

WITH NATURE 

March 2022 

Green Green: A Community Gardening Story by Marie Lamba 

Lola Plants a Garden / Lola planta un jardín by Anna McQuinn 

Up in the Air: Butterflies, Birds, and 

Everything Up Above 

by Zoe Armstrong 

Greenie grows a garden / Verdecito cultiva un jardín (bilingual) 

by Harriet Ziefert 

Hasta Las Rodillas / Up to My Knees 

by Grace Lin (bilingual 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


GETTING MESSY 

AND BEING HANDS-ON April 2022 

Mix It Up! 

by Hervé Tullet 

Pinta Ratones 

by Ellen Stoll Walsh 

Edward Gets Messy 

by Rita Meade 

Ultimate Slime: 100 new recipes and projects for oddly satisying, Borax-free slime 

by Alyssa Jagan 

Mud 

by Mary Lyn Ray 

SIBLINGS & FRIENDS 

May 2022 

How Do Dinosaurs Stay Friends? / Cómo son buenos amigos los dinosaurios 

by Jane Yolen 

The Evil Princess vs. The Brave Knight by Jennifer Holm 

How to Apologize 

by David LaRochelle 

Maple & Willow Together / Arce y Sauce juntas 

by Lori Nichols 

Meesha Makes Friends 

by Tom Percival

GETTING CREATIVE WITH RECYCLABLES 

June 2022 

Recycle and Remake, 

edited by Hélene Hilton 

Rainbow Weaver / Tejedora del arcoíris (bilingual) 

by Linda Elovitz Marshall 

Out of the Box 

by Jemma Westing 

100 Easy STEAM Activities: awesome 

hands-on projects for aspiring artists and engineers 

by Andrea Scalzo Yi 

Recycling Crafts by Annalees Lim 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


BUILDING EMPATHY USING STORYBOOKS 

July 2022 

A Kids Book About Epathy 

by Daron K. Roberts 

I am Human: A Book of Empathy 

by Susan Verde 

Caring with Bert and Ernie: A Book 

About Empathy 

by Marie-Therese Miller 

Empatía: una guia para padres e hijos by Patricia Fernández Bieberach 

Everyone… 

by Christopher Silas Neal 

GOING TO THE DENTIST August 2022 

ABC Dentist 

by Harriet Ziefert 

Does a Tiger Go to the Dentist? 

by Harriet Ziefert 

Max va al dentista 

by Adria F. Klein 

What to Expect When You Go to the Dentist by Heidi Eisenberg Murkoff 

Vamos al Dentista 

ALL ABOUT STRESS 

September 2022 

How Big Are Your Worries Little Bear? By Jayneen Sanders 

The Rabbit Listened 

by Cori Doerrfeld 

Breath Like a Bear: 30 Mindful 

Moments For Kids to Feel Calm and 

Focused Anytime, Anywhere 

by Kira Wiley 

Plantando semillas : la práctica del 

mindfulness con niños 

by Nhá̂t Hạnh 

Scaredy Squirrel 

by Melanie Watt

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

ALL ABOUT CALM 

October 2022 

Mindfulness Moments for Kids: 

Hot Cocoa Calm 

by Kira Willey 

Calm Monsters, Kind Monsters: a Sesame Street Guide to Mindfulness 

by Karen Latchana Kenney 

You Are a Lion!: And Other Fun Yoga Poses / Eres un león!: posturas de yoga para niños 

s

GET INTO THE KITCHEN November 2022 

Thank You, Omu! / ¡Gracias, Omu! 

by Oge Mora 

Cooking Class: 57 Fun Recipes Kids 

will Love to Make (and Eat!) 

by Deanna F. Cook 

Plaza Sésamo: C es de cocinar – recetas de nuestra comunidad 

by Susan McQuillan 

Kalamata’s Kitchen 

by Sarah Thomas 

FAMILY CELEBRATIONS December 2022 

Dumpling Day 

by Meera Sriram 

Alma and How She Got Her Name / Alma y cómo obtuvo su nombre 

by Juana Martinez-Neal 

The Heart of Mi Familia 

by Carrie Lara 

Mango, Abuela, and Me / Mango, Abuela y yo by Meg Medina 

We Are Family 

by Patricia Hegarty 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

 

02 – Urgent Info – Services and Resources in Response to the War in Ukraine
Dec 5 all-day

 

Resources in Response to the War on Ukraine

The recent attack on Ukraine has impacted many families in the United States, especially our military and veteran families and those who have family living in the region. The NCTSN and our partners have resources for those families who may need support during this time:
 

Military and Veteran Family Resources
 
Working Effectively with Military Families: 10 Key Concepts All Providers Should Know
 
Understanding Child Trauma & Resilience: For Military Parents and Caregivers
 
Honoring Our Babies and Toddlers: Supporting Young Children Affected by a Military Parent’s Deployment, Injury, or Death (Zero to Three)
 
Sesame Street for Military Families
 
Community Support for Military Children and Families Throughout the Deployment Cycle (Center for Study of Traumatic Stress, CSTS)
 
Strengthening Military Families to Support Children’s Well-Being
 
Helping Children Cope During Deployment
 
Military Children and Families: Supporting Health and Managing Risk (webinar)
 
Impact of the Military Mission & Combat Deployment on the Service Members
 
Understanding Deployment Related Stressors & Long-term Health in Military Service Members & Veterans:

The Millennium Cohort Study (webinar)
 
An Overview of the Military Family Experience and Culture
 
Talking to Children about War
 
Age-Related Reactions to a Traumatic Event
 
Psychological First Aid for Displaced Children and Families

Traumatic Separation and Refugee and Immigrant Children: Tips for Current Caregivers

Understanding Refugee Trauma:

For School Personnel For Mental Health Professionals  and For Primary Care Providers

Coping in Hard Times: Fact Sheet for Parents

Youth and School Personnel

Helping Children with Traumatic Grief: Young Children

School-Age Children and Teens
 

 

Military Child Education Coalition Resources to Support Ukrainian Military Children & Their Families

As the situation on the ground in Ukraine continues to evolve, and military families deal with potential deployments, we are reminded of the many uncertainties military-connected children experience as a part of the military lifestyle. We are also reminded of the stress and insecurity that can accompany such unpredictable circumstances.

For 24 years, MCEC® has worked to establish programs and resources for parents, educators, and students to help them navigate unique challenges associated with the military lifestyle. Programs like our Student 2 Student® peer-to-peer support system, parent workshops, and professional development for educators all work together to more effectively respond to the unique emotional needs of military children.

MCEC® is also answering the call from our allies. Upon a request from the National Association of Ukrainian Psychologists, seeking resources for serving military families, the American Psychological Association and the Uniformed Services University of the Health Sciences reached out to MCEC®.

We responded with the tools listed below, which, we believe, can be immediately helpful to families during these extremely trying times.

Developing Positive Coping Strategies

Fostering Resilience in Children

Helping Military-Connected Children with Daily Stress & Frustration

Raising a Confident Child in an Uncertain World

Supporting Children through Natural Disasters & Loss

Turning Stress into Strength

Anxiety in Young Children

Depression in Youth

Community Crises & Disasters

Activity Web of Support

MCEC Webinar Resources

National Child Traumatic Stress Network Resources

A one-on-one English program for Ukrainian Youth

ENGin is a nonprofit organization that pairs Ukrainian youth with English-speakers for free online conversation practice and cross-cultural connection. We work with students age 13-30 and volunteers age 14+.

ENGin pairs English learners with volunteers from around the world to conduct weekly online speaking sessions. Every learner and volunteer is screened to ensure their fit for the program. Participants are then matched based on preferences, interests, and availability to ensure an effective and mutually enjoyable communication experience. After a match is made, ENGin supports learners and volunteers throughout their participation in the program with tips, resources, and problem resolution.  

Students Join Here

Volunteer Apply Here

 

Helpline Resources
 

SAMHSA Disaster Distress Helpline – call or text 1-800-985-5990 (for Spanish, press “2”) to be connected to a trained counselor 24/7/365.
 
Military OneSource – call 1-800-342-9647 for eligible DOD service members and their families.
 
Veterans Crisis Line – call 1-800-273-8255, press “1” or text 838255 for all service members.
 
PTSD Consultation Program – for providers who treat Veterans. Ask a question by calling 866-948-7880<tel:866-948-7880> or emailing PTSDconsult@va.gov<mail to:PTSDconsult@va.gov>.
 

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

Dr. Greg Leskin gleskin@mednet.ucla.edu<mailto:gleskin@mednet.ucla.edu> for Military and Veteran Family resource questions and

Dr. Melissa Brymer at mbrymer@mednet.ucla.edu<mailto:mbrymer@mednet.ucla.edu> for all other questions.

 

Resources In Europe

eucap provides provides support for autistic people in crisis situations

Supporting autistic people in crisis situations

How can you deal with difficult situations if you have limited knowledge of autism? How to best support an autistic person in an acute crisis and challenging conditions? View brief basic information compiled by EUCAP and Autism Europe on this page or download as a pdf file here. More translated versions will be added as they become available.

 

Teenergizer support for Ukranian teens

 

Teenage peer-to-peer counselling service offers lifeline to youngsters in Ukraine

An online counselling service for teenagers has made the world of difference to one youngster who struggled to cope with grief.

Click Here For More Information

 

LiLi Center Logo

Ukraine Peer-to-Peer Support Group

The events happening in Ukraine have affected many in different ways. We want to support those affected directly or indirectly by offering a safe place to express their emotions in a supportive and safe environment. Our peer-to-peer networks are a way for people to support each other in a safe and secure space. If you are interested to express your feelings about the war, need guidance or resources The LiLi Centre is here for you.

For More Information Visit :  https://www.lilicentre.ch/en/home

Where: LiLi Centre
When:  
Wednesdays 09:30-11:30, and Thursdays 17:00-19:00

Who:    Anyone impacted by the situation in Ukraine seeking support and community
Cost:    Free, Sponsored by the LiLi Centre’s Mental Health Initiative (MHI)

NOTE: If you have a need to speak with a mental health professional privately about how you are coping, we are happy to put you in touch with our network of providers and/or connect you to our low-cost and no-cost counselling clinic.

AM – All Month – NCPM – National Cancer Prevention Month – FFLCSN – Friend for Life Cancer Support Network – Peer Support
Dec 5 all-day

 

 

National Cancer Prevention Month

February 2022

 

Friend for Life is a network of cancer survivors and caregivers who provide compassionate, one-on-one support to others diagnosed with cancer, and to their loved ones. At your request, Friend for Life will match you with a trained volunteer who has experienced a form of cancer and course of treatment similar to yours. To help persons diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment, and recovery by pairing them with a trained survivor of a similar experience, so they can face cancer with someone who’s been there.

Be Matched With A Volunteer

I can’t begin to tell you how comforting it was and is to have someone a phone call away.

If you have received a cancer diagnosis and would like to receive the support of a Friend for Life volunteer, use  the link below and please complete and submit our matching form. We ask that you describe your situation in as much detail as possible (type of cancer, stage, chemo drugs, alternative therapies, etc.) so that we can make an appropriate match. You may even include hobbies and interests. Please include what is most important to you from the match (particular diagnosis, chemo type, life situation, etc.).  If you are a family member, friend or co-worker who would like to receive the support of one of our volunteers, please provide what you know about the patient’s diagnosis, your relationship to that person, and what is concerning you at this time.

Use This Link

https://www.friend4life.org/get-matched/

Contact Us

Friend for Life Cancer Support Network
Phone: 502.893.0643
Toll-free: 866.374.3634
Fax: 502.896.3010
Email: staff@friend4life.org

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 5 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Warmline – ROO – Reach Out Oregon w OFSN – Oregon Family Support Network – (833) REACH-OR / (833) 732-2467 – Weekdays – 12-7pm (PST) @ phone
Dec 5 @ 12:00 pm – 7:00 pm

 

roologo

Reach Out Oregon / Oregon Family Support Network

Toll-Free Parent Warmline: 1-833-REACH-OR / 1-833-732-2467

Weekdays 12pm-7pm PST except holidays

Welcome to Reach Out Oregon!

Parents know how it can be lonely, frightening and isolating to care for a young person experiencing emotional, behavioral and mental health challenges. It can be hard to figure out where and how to reach out for help and information. Most of us feel disoriented when trying to find needed support for what our family is facing.  Shame and stigma surrounding these issues can make it even more challenging.

As caregivers ourselves, we have direct lived experience navigating challenges on behalf of our children and families. And as a community, we have much to offer one another. This is what Reach Out Oregon is all about, a supportive community where you will find:

  • Inspiration
  • Connection
  • Compassion
  • Support

  Family Self-Care during COVID-19

  • Have a special friendly online conversation about Family Self-Care during COVID-19.
  • More events coming, stay tuned.
  • Learn about fun activities to bring back to your family.
  • If you’d like to continue the Family Self-Care discussion or have ideas you’d like to share, please join our discussion forum: https://www.reachoutoregon.org/forums/forum/self-care/

Discussion Forum

https://www.reachoutoregon.org/discussions/

Family Self Care Discussion:

https://www.reachoutoregon.org/forums/forum/self-care/

Reach Out Oregon Website

https://www.reachoutoregon.org

Crisis Support

https://www.reachoutoregon.org/crisis-support/

Listening Support

https://www.reachoutoregon.org/listening-support/

Resource Support

https://www.reachoutoregon.org/resources/

Email

info@reachoutoregon.org

Dec
6
Tue
02 – OPEC – Oregon Parenting Education Collaborative – Parenting Education Resources
Dec 6 all-day

 

PARENTING EDUCATION RESOURCES

OPEC has a new website! Visit health.oregonstate.edu/opec for the most update OPEC information. ORParenting.org will be phased out by the end of 2022.

OPEC HUBS IN OREGON

About OPEC Hubs

The Oregon Parenting Education Collaborative (OPEC) supports a statewide network of parenting “Hubs.” As part of their role, OPEC Hubs:

  • Provide infrastructure to support parenting education efforts across their region, serving as a “go-to” place for families and community partners related to parenting resources and programs, support professional development opportunities for parenting education professionals, and collect data
  • Foster community collaboration to coordinate parenting programs across community partners, build relationships between cross-sector partners, and leverage available resources in support of families
  • Expand access to and normalize parenting education programs through a combination of direct service and mini-grants to partner organizations to meet the needs of all families in their communities. OPEC Hubs support a blend of universal and targeted parenting programs that are evidence-/research-based and culturally-responsive

The OPEC Logic Model illustrates the strategies, outputs, and outcomes of this work.

Ready to get connected? Your local OPEC Hub can connect you with in-person and remote parenting classes, workshops, resources, and family events in your community.

OPEC Facebook Page

https://www.facebook.com/OPECParentingEd/

Select From the Counties listed below to fund your HUB

FOR PARENTING EDUCATORS

Resource Tip Sheets

Parenting Education Curricula Resources

 Training Opportunities

Research

Program Fidelity Rating Tools

Additional Resources

OPEC GRANTEE SITES

Grantee Directory

Contact information for each of the OPEC Parenting Education Hubs is listed below.


OPEC Parenting Hubs



Building Healthy Families:
Baker, Malheur, Wallowa

Maria Weer
Executive Director
541.426.9411
mweer@oregonbhf.org

Clackamas Parenting Together:
Clackamas

Chelsea Hamilton
Clackamas OPEC Hub Coordinator
503.367.9116
chamilton@co.clackamas.or.us

The Family Connection:
Jackson, Josephine

Bethanee Grace
Program Co-Coordinator
541.734.5150 ext. 1042
bgrace@socfc.org

Diana Bennington
Program Co-Coordinator
541.734.5150 ext.1050
Diana.Bennington@socfc.org

Family Resource Center of Central Oregon:
Crook, Deschutes, Jefferson

Dee Ann Lewis
Executive Director
541.389.5468
deeannl@frconline.org

Kim Pitts
Program Logistics Coordinator
541.389.5468
kimp@frconline.org

First 5 Siskiyou:
Siskiyou, CA

Karen Pautz
Executive Director
First 5 Siskiyou
530.918.7222
karenpautz@first5siskiyou.org

Four Rivers Early Learning & Parenting Hub:
Gilliam, Hood River, Sherman, Wasco, Wheeler

Christa Rude
Regional Coordinator
541.506.2255
christa.rude@cgesd.k12.or.us

Shira Skybinskyy
Parenting Hub Assistant Director
sskybinskyy@cgesd.k12.or.us

Frontier Hub:
Grant, Harney

Donna Schnitker
Hub Director
541.573.6461
schnitkd@harneyesd.k12.or.us

Patti Wright
OPEC Grant Coordinator
541.620.0622
wrightp@harneyesd.k12.or.us

LaneKids:
Lane

Claire Hambly
Education Program Manager
541.741.6000 ext 141
chambly@unitedwaylane.org

Emily Reiter
Education Program Specialist
541.741.6000
ereiter@unitedwaylane.org

Marion & Polk Early Learning Hub, Inc.:
Marion

Lisa Harnisch
Executive Director
503.967.1187
lharnisch@earlylearninghub.org

Tiffany Miller
Communication Specialist and Parent Education Associate
503.485.3291
tmiller@earlylearninghub.org

Margie Lowe
Performance and Fiscal Officer
503.559.9610
mlowe@earlylearninghub.org

Mid-Valley Parenting:
Polk, Yamhill

Brent DeMoe
Director, Family & Community Outreach
503.623.9664 ext. 2118
demoe.brent@co.polk.or.us

Stephanie Gilbert
Early Learning and Family Engagement Coordinator
503.623.9664 ext. 2368
gilbert.stephanie@co.polk.or.us

Northwest Parenting:
Clatsop, Columbia, Tillamook 

Dorothy Spence
Early Learning & Parenting Education Hub Coordinator
503.614.1682
dspence@nwresd.k12.or.us 

Elena Barreto
Regional Coordinator
503.614.1443
ebarreto@nwresd.k12.or.us

Parenting Success Network:
Benton, Linn

Mike Jerpbak
Department Chair, Parenting Education
541.917.4891
wolfej@linnbenton.edu

Sommer McLeish
Coordinator (Lincoln County)
541.557.6215
smcleish@samhealth.org

Parenting Together Washington County:
Washington

Leslie Moguil
Senior Program Coordinator
503.846.4556
leslie_moguil@co.washington.or.us

Pathways to Positive Parenting:
Coos, Curry

Charity Grover
Parenting Lead
541.266.3909
charityg@scesd.k12.or.us 

Take Root:
Douglas, Klamath, Lake

Julie Hurley
Parenting Education Coordinator
Douglas/Lake/Klamath
541.492.6607
julie.hurley@douglasesd.k12.or.us

Susan Stiles-Sumstine
Assistant Parenting Hub Coordinator
Douglas/Lake/Klamath
541.492.6604
susan.stiles-sumstine@douglasesd.k12.or.us

Sanora Hoggarth
Parenting Education Coordinator for Klamath County
sanora.hoggarth@douglasesd.k12.or.us

Umatilla Morrow Head Start, Inc.:
Morrow, Umatilla, Union

Aaron Treadwell
Executive Director
541.564.6878
atreadwe@umchs.org

Mary Lou Gutierrez
Parenting Education Coordinator
541.667.6091
mgutierr@umchs.org

Jen Goodman
Family and Community Partnership Manager (Union County)
541.786.5535
goodmajd@eou.edu

OPEC Funded Parenting Education Curriculum



Abriendo Puertas /Opening Doors

Suicide Prevention for Parents
A guide for parents and caregivers while at the hospital emergency department

 

PARENTING EDUCATION BOOK LISTS

CUTTING OUT SCREENTIME: OUR FAMILY’S EXPERIMENT January/February 2022 

Run Wild 

by David Covell 

Daniel Finds a Poem 

by Micha Archer 

What to do with a Box 

by Jane Yolen & Chris Sheban

GETTING IN TOUCH 

WITH NATURE 

March 2022 

Green Green: A Community Gardening Story by Marie Lamba 

Lola Plants a Garden / Lola planta un jardín by Anna McQuinn 

Up in the Air: Butterflies, Birds, and 

Everything Up Above 

by Zoe Armstrong 

Greenie grows a garden / Verdecito cultiva un jardín (bilingual) 

by Harriet Ziefert 

Hasta Las Rodillas / Up to My Knees 

by Grace Lin (bilingual 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


GETTING MESSY 

AND BEING HANDS-ON April 2022 

Mix It Up! 

by Hervé Tullet 

Pinta Ratones 

by Ellen Stoll Walsh 

Edward Gets Messy 

by Rita Meade 

Ultimate Slime: 100 new recipes and projects for oddly satisying, Borax-free slime 

by Alyssa Jagan 

Mud 

by Mary Lyn Ray 

SIBLINGS & FRIENDS 

May 2022 

How Do Dinosaurs Stay Friends? / Cómo son buenos amigos los dinosaurios 

by Jane Yolen 

The Evil Princess vs. The Brave Knight by Jennifer Holm 

How to Apologize 

by David LaRochelle 

Maple & Willow Together / Arce y Sauce juntas 

by Lori Nichols 

Meesha Makes Friends 

by Tom Percival

GETTING CREATIVE WITH RECYCLABLES 

June 2022 

Recycle and Remake, 

edited by Hélene Hilton 

Rainbow Weaver / Tejedora del arcoíris (bilingual) 

by Linda Elovitz Marshall 

Out of the Box 

by Jemma Westing 

100 Easy STEAM Activities: awesome 

hands-on projects for aspiring artists and engineers 

by Andrea Scalzo Yi 

Recycling Crafts by Annalees Lim 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


BUILDING EMPATHY USING STORYBOOKS 

July 2022 

A Kids Book About Epathy 

by Daron K. Roberts 

I am Human: A Book of Empathy 

by Susan Verde 

Caring with Bert and Ernie: A Book 

About Empathy 

by Marie-Therese Miller 

Empatía: una guia para padres e hijos by Patricia Fernández Bieberach 

Everyone… 

by Christopher Silas Neal 

GOING TO THE DENTIST August 2022 

ABC Dentist 

by Harriet Ziefert 

Does a Tiger Go to the Dentist? 

by Harriet Ziefert 

Max va al dentista 

by Adria F. Klein 

What to Expect When You Go to the Dentist by Heidi Eisenberg Murkoff 

Vamos al Dentista 

ALL ABOUT STRESS 

September 2022 

How Big Are Your Worries Little Bear? By Jayneen Sanders 

The Rabbit Listened 

by Cori Doerrfeld 

Breath Like a Bear: 30 Mindful 

Moments For Kids to Feel Calm and 

Focused Anytime, Anywhere 

by Kira Wiley 

Plantando semillas : la práctica del 

mindfulness con niños 

by Nhá̂t Hạnh 

Scaredy Squirrel 

by Melanie Watt

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

ALL ABOUT CALM 

October 2022 

Mindfulness Moments for Kids: 

Hot Cocoa Calm 

by Kira Willey 

Calm Monsters, Kind Monsters: a Sesame Street Guide to Mindfulness 

by Karen Latchana Kenney 

You Are a Lion!: And Other Fun Yoga Poses / Eres un león!: posturas de yoga para niños 

s

GET INTO THE KITCHEN November 2022 

Thank You, Omu! / ¡Gracias, Omu! 

by Oge Mora 

Cooking Class: 57 Fun Recipes Kids 

will Love to Make (and Eat!) 

by Deanna F. Cook 

Plaza Sésamo: C es de cocinar – recetas de nuestra comunidad 

by Susan McQuillan 

Kalamata’s Kitchen 

by Sarah Thomas 

FAMILY CELEBRATIONS December 2022 

Dumpling Day 

by Meera Sriram 

Alma and How She Got Her Name / Alma y cómo obtuvo su nombre 

by Juana Martinez-Neal 

The Heart of Mi Familia 

by Carrie Lara 

Mango, Abuela, and Me / Mango, Abuela y yo by Meg Medina 

We Are Family 

by Patricia Hegarty 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

 

02 – Urgent Info – Services and Resources in Response to the War in Ukraine
Dec 6 all-day

 

Resources in Response to the War on Ukraine

The recent attack on Ukraine has impacted many families in the United States, especially our military and veteran families and those who have family living in the region. The NCTSN and our partners have resources for those families who may need support during this time:
 

Military and Veteran Family Resources
 
Working Effectively with Military Families: 10 Key Concepts All Providers Should Know
 
Understanding Child Trauma & Resilience: For Military Parents and Caregivers
 
Honoring Our Babies and Toddlers: Supporting Young Children Affected by a Military Parent’s Deployment, Injury, or Death (Zero to Three)
 
Sesame Street for Military Families
 
Community Support for Military Children and Families Throughout the Deployment Cycle (Center for Study of Traumatic Stress, CSTS)
 
Strengthening Military Families to Support Children’s Well-Being
 
Helping Children Cope During Deployment
 
Military Children and Families: Supporting Health and Managing Risk (webinar)
 
Impact of the Military Mission & Combat Deployment on the Service Members
 
Understanding Deployment Related Stressors & Long-term Health in Military Service Members & Veterans:

The Millennium Cohort Study (webinar)
 
An Overview of the Military Family Experience and Culture
 
Talking to Children about War
 
Age-Related Reactions to a Traumatic Event
 
Psychological First Aid for Displaced Children and Families

Traumatic Separation and Refugee and Immigrant Children: Tips for Current Caregivers

Understanding Refugee Trauma:

For School Personnel For Mental Health Professionals  and For Primary Care Providers

Coping in Hard Times: Fact Sheet for Parents

Youth and School Personnel

Helping Children with Traumatic Grief: Young Children

School-Age Children and Teens
 

 

Military Child Education Coalition Resources to Support Ukrainian Military Children & Their Families

As the situation on the ground in Ukraine continues to evolve, and military families deal with potential deployments, we are reminded of the many uncertainties military-connected children experience as a part of the military lifestyle. We are also reminded of the stress and insecurity that can accompany such unpredictable circumstances.

For 24 years, MCEC® has worked to establish programs and resources for parents, educators, and students to help them navigate unique challenges associated with the military lifestyle. Programs like our Student 2 Student® peer-to-peer support system, parent workshops, and professional development for educators all work together to more effectively respond to the unique emotional needs of military children.

MCEC® is also answering the call from our allies. Upon a request from the National Association of Ukrainian Psychologists, seeking resources for serving military families, the American Psychological Association and the Uniformed Services University of the Health Sciences reached out to MCEC®.

We responded with the tools listed below, which, we believe, can be immediately helpful to families during these extremely trying times.

Developing Positive Coping Strategies

Fostering Resilience in Children

Helping Military-Connected Children with Daily Stress & Frustration

Raising a Confident Child in an Uncertain World

Supporting Children through Natural Disasters & Loss

Turning Stress into Strength

Anxiety in Young Children

Depression in Youth

Community Crises & Disasters

Activity Web of Support

MCEC Webinar Resources

National Child Traumatic Stress Network Resources

A one-on-one English program for Ukrainian Youth

ENGin is a nonprofit organization that pairs Ukrainian youth with English-speakers for free online conversation practice and cross-cultural connection. We work with students age 13-30 and volunteers age 14+.

ENGin pairs English learners with volunteers from around the world to conduct weekly online speaking sessions. Every learner and volunteer is screened to ensure their fit for the program. Participants are then matched based on preferences, interests, and availability to ensure an effective and mutually enjoyable communication experience. After a match is made, ENGin supports learners and volunteers throughout their participation in the program with tips, resources, and problem resolution.  

Students Join Here

Volunteer Apply Here

 

Helpline Resources
 

SAMHSA Disaster Distress Helpline – call or text 1-800-985-5990 (for Spanish, press “2”) to be connected to a trained counselor 24/7/365.
 
Military OneSource – call 1-800-342-9647 for eligible DOD service members and their families.
 
Veterans Crisis Line – call 1-800-273-8255, press “1” or text 838255 for all service members.
 
PTSD Consultation Program – for providers who treat Veterans. Ask a question by calling 866-948-7880<tel:866-948-7880> or emailing PTSDconsult@va.gov<mail to:PTSDconsult@va.gov>.
 

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

For those that are needing technical assistance or additional resources, please don’t hesitate to contact:

Dr. Greg Leskin gleskin@mednet.ucla.edu<mailto:gleskin@mednet.ucla.edu> for Military and Veteran Family resource questions and

Dr. Melissa Brymer at mbrymer@mednet.ucla.edu<mailto:mbrymer@mednet.ucla.edu> for all other questions.

 

Resources In Europe

eucap provides provides support for autistic people in crisis situations

Supporting autistic people in crisis situations

How can you deal with difficult situations if you have limited knowledge of autism? How to best support an autistic person in an acute crisis and challenging conditions? View brief basic information compiled by EUCAP and Autism Europe on this page or download as a pdf file here. More translated versions will be added as they become available.

 

Teenergizer support for Ukranian teens

 

Teenage peer-to-peer counselling service offers lifeline to youngsters in Ukraine

An online counselling service for teenagers has made the world of difference to one youngster who struggled to cope with grief.

Click Here For More Information

 

LiLi Center Logo

Ukraine Peer-to-Peer Support Group

The events happening in Ukraine have affected many in different ways. We want to support those affected directly or indirectly by offering a safe place to express their emotions in a supportive and safe environment. Our peer-to-peer networks are a way for people to support each other in a safe and secure space. If you are interested to express your feelings about the war, need guidance or resources The LiLi Centre is here for you.

For More Information Visit :  https://www.lilicentre.ch/en/home

Where: LiLi Centre
When:  
Wednesdays 09:30-11:30, and Thursdays 17:00-19:00

Who:    Anyone impacted by the situation in Ukraine seeking support and community
Cost:    Free, Sponsored by the LiLi Centre’s Mental Health Initiative (MHI)

NOTE: If you have a need to speak with a mental health professional privately about how you are coping, we are happy to put you in touch with our network of providers and/or connect you to our low-cost and no-cost counselling clinic.

AM – All Month – NCPM – National Cancer Prevention Month – FFLCSN – Friend for Life Cancer Support Network – Peer Support
Dec 6 all-day

 

 

National Cancer Prevention Month

February 2022

 

Friend for Life is a network of cancer survivors and caregivers who provide compassionate, one-on-one support to others diagnosed with cancer, and to their loved ones. At your request, Friend for Life will match you with a trained volunteer who has experienced a form of cancer and course of treatment similar to yours. To help persons diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment, and recovery by pairing them with a trained survivor of a similar experience, so they can face cancer with someone who’s been there.

Be Matched With A Volunteer

I can’t begin to tell you how comforting it was and is to have someone a phone call away.

If you have received a cancer diagnosis and would like to receive the support of a Friend for Life volunteer, use  the link below and please complete and submit our matching form. We ask that you describe your situation in as much detail as possible (type of cancer, stage, chemo drugs, alternative therapies, etc.) so that we can make an appropriate match. You may even include hobbies and interests. Please include what is most important to you from the match (particular diagnosis, chemo type, life situation, etc.).  If you are a family member, friend or co-worker who would like to receive the support of one of our volunteers, please provide what you know about the patient’s diagnosis, your relationship to that person, and what is concerning you at this time.

Use This Link

https://www.friend4life.org/get-matched/

Contact Us

Friend for Life Cancer Support Network
Phone: 502.893.0643
Toll-free: 866.374.3634
Fax: 502.896.3010
Email: staff@friend4life.org

Brain Injury Awareness Month – Hydrocephalus Awareness – Support Groups, Events, Resources
Dec 6 all-day

 

Brain Injury Awareness Month — Hydrocephalus Awareness

Support Groups, Events, Resources, Advocacy

 

Facts about Hydrocephalus


Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood.

Here are a few facts about Hydrocephalus:

  • Hydrocephalus is one of the most common birth defects, each year one out of every 500 births results in hydrocephalus
  • Another 6,000 children annually develop hydrocephalus during the first 2 years of life
  • Brain injury occurs every 15 seconds in this country – and in some cases leads to the development of hydrocephalus
  • There are approximately 75,000 discharges a year from hospitals in the U.S. with a diagnosis of hydrocephalus
  • More than 50% of hydrocephalus cases are congenital
  • 70-90% of children born with spina bifida also develop hydrocephalus
  • CSF shunting procedures account for approximately $100 million in health care spending in the United States alone – half of this amount is spent on shunt revisions
  • In the past 25+ years, death rates associated with hydrocephalus have decreased from 54% to 5%, and the occurrence of intellectual disability has decreased from 62% to 30%
  • Normal Pressure Hydrocephalus affects adults and can cause dementia, difficulty in walking and, urinary incontinence
  • No statistics are kept (by our government), for those who develop

 

HELP LINES, PEER SUPPORT, SUPPORT GROUPS

 

 

The Hydrocephalus Association wants you to know that You Are Not Alone – We Are Here For You!

The Hydrocephalus Association staff and teams of trained volunteers are ready to answer your questions and listen to your concerns,  either by phone or email. Simply click on one of the following links to get connected to a volunteer or staff member for support, information, and connection.

 

PEER SUPPORT

To get connected with an HA Peer, please use this link to connect to a request from, after you complete it  your HA Peer will reach out to you very soon!

FOR ONE-TO-ONE PEER SUPPORT, CLICK HERE

 

CALL THE HA HELPLINE

Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.

Monday through Friday from 9:00 AM to 5:00 PM Eastern.

EMAIL HA CYBER VOLUNTEERS

Do you have a question about hydrocephalus? Treatment? Ongoing care?  The impact of the condition on all aspects of life? Our cyber volunteers are ready to answer your questions and share their experience via email.

You can submit them via email by clicking here!

 

Virtual Meet-ups

When: Every Saturday
Adults with Hydrocephalus Meet-Up (DC, MD, VA, PA, DE, NJ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
Every Saturday
Contact: Sierra Smith and Sara Curran-Kellogg
Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
1st Friday of the month
Contact: Kelly Varga
Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

When:
4th Sunday of the month
Contact: Jessica Coffaro
Teens Hang-Out
Come meet other teens with the condition! We’ll hang out, maybe play an icebreaker game, talk, and hopefully make some new friends.

When:
1st Sunday of the month
Contact: Olivia Maccoux and Tomas Rodriguez
Young Adults in their 20s Meet-Up
Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

When:
Every Saturday
Contact: info@hydroassoc.org
Dallas NPH Meet-Up
Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

When:
3rd Wednesday of the month
Contact: Gary Chaffee
Parents Supporting Parents of Adult Children with IDD
OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

When:
4th Wednesday of the month
Contact: Jackie Mullock
Flourishing in Mid-Life: Group for Women Age 40- 59!

 

Local Community Networks Of Support For Hydrocephalus

We encourage you to explore the local groups and networks available in your area. Be informed and stay connected!

Facebook

Oregon

Portland (& Vancouver, WA)

Online

info@hydroassoc.org

 

WEBINARS AND EDUCATION

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event in our webinar recordings. Our Support and Education Webinar Series is made possible through the generosity of our industry partner  Medtronic


Future Webinars

Please stay tuned for our 2022 Support and Education Webinar Series and more information regarding our future webinars.


Past Webinars

Congressional Fireside Chat – June 15, 2021

College Transition for Students with Hydrocephalus – December 14, 2021

College Planning for Students Who Learn Differently – March 10, 2021

Descripcion General de la hidrocefalia – July 17, 2021

 

 

National Hydrocephalus Foundation

National Hydrocephalus Foundation

 

What is Hydrocephalus?

Signs-of Hydrocephalus and Shunt Malfunctions

The most common signs are the following: Congenital Signs normally found in infants and children EARLY Enlargement of the head Irritability Lethargic Feeds poorly/Decrease in appetite Recurrent vomiting Prefers to be alone LATER Distended scalp veins High-pitched cry Increased muscle tone Enlarged and bulging fontanel “Sunset Eyes” (downward gaze) Acquired Signs normally found in older …

Normal Pressure Hydrocephalus (NPH) is a disorder, which usually strikes middle age to older adults. In NPH, the ventricles are enlarged, but there is no increase of pressure within the ventricles. The problem is thought to be due to the CSF not being fully reabsorbed by the body (through the arachnoid villi). NPH can be …

Hydrocephalus is diagnosed by a neurological exam and imaging techniques such as an ultrasound, CT scan, MRI, Fetal MRI (also referred to as Fast MRI, and is used on a pregnant woman who is carrying a child diagnosed with hydrocephalus) – and on occasion, a pressure-monitoring system. A doctor will order the appropriate tests according to …

Hydrocephalus Defined

Hydrocephalus is commonly referred to as “water on the brain.” The so-called “water” is actually cerebrospinal fluid (CSF), a clear liquid that looks like water and is produced in the 4 ventricles (cavities) of the brain, connected by narrow pathways.  CSF is in constant production and absorption;  it has a defined pathway from the lateral …

Although you may have not heard the word hydrocephalus (hi-dro-seff-a-lus), it is not an uncommon condition. Hydrocephalus has no ethnic or gender preferences – and it can develop at any time during gestation all the way through to senior adulthood. Here are a few facts about Hydrocephalus: Hydrocephalus is one of the most common birth …

Treatment of Hydrocephalus

Shunts What is a Shunt? A shunt is a mechanical device designed to transport the excess CSF from or near the point of obstruction to a re-absorption site and it is implanted under the skin. There are many different types of shunts, but there is no perfect shunt. The quest continues for one, the shunt …

 

Youth Webinar Series

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitation Hospital are excited to share some helpful information and resources with you! Our Youth Webinar Series  focuses on topics that young people with hydrocephalus and/or spina bifida often have questions about.

Webinar #1 


Melissa Thorne

Presentation by Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“If You’ve Got Questions, We’ve Got Answers”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa Thorne will share her insights as the Youth Facilitator at Holland Bloorview in the Spina Bifida and Spinal Cord Injury Clinic and Youth Engagement department, as well as a person with sbh. Having lived at Holland Bloorview as an inpatient for a year after having multiple orthopedic surgeries in grade 10, Melissa will share her story, her background and explain how she helps kids address challenges like ‘growing up ready’. We will also have a guest speaker! Melissa will follow her presentation with a question and answer session.

 

Webinar #2

               
Steph Di Martino     Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Social Skills and Friendship”

Watch on YouTube

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. Steph and Melissa will explore strategies to build conversation skills, talk about where to meet people your age, how to build connections, what to look for in a friend and help you become aware of what you bring to the table of friendship. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #3

       
Kristen English    Melissa Thorne

Presentation by Kristen English, Therapeutic Recreation Specialist and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

 “Community Interaction and Recreation”

Watch on YouTube

November 3 at 7:00 p.m. EDT

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 12-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Kristen English will share her insights as a Certified Therapeutic Recreation Specialist in the Transitions, Recreation and Like Skills Team at Holland Bloorview Kids Rehab. Kristen provides adapted sport and recreation opportunities to children and youth with disabilities including wheelchair basketball, All Abilities Soccer and the Access Boom Sailing program. She is also a Master of Health Evaluation candidate at the University of Waterloo. You can expect Kristen and Melissa to address how to find meaning in recreation and leisure participation, explore sports and recreation in your community as well as look at equipment that can be adapted to your needs. Kristen and Melissa will follow their presentation with a question and answer session.

 

Webinar #4

               
Steph Di Martino      Melissa Thorne

Presentation by Steph Di Martino, Life Skills Coach and Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator

“Life Skills and Independence – Transition to Adulthood”

Watch on YouTube

November 10 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Steph Di Martino will share her insights as a Life Skills Coach at Holland Bloorview. As a Life Skills Coach, Steph helps to provide experience-based activities to support learning using discussion, role play, problem-solving and peer mentoring with an experiential/immersive approach. You can expect Steph and Melissa to talk about tips and tricks for navigating the adult world, how to grow up ready and get involved in your own health care, learning responsibilities in the home (cooking, laundry, making plans, cleaning) as well as time management and organization. Steph and Melissa will follow their presentation with a question and answer session.

 

Webinar #5


Melissa Thorne

Steph Di Martino 

Kristen English

Presentation by all speakers from our Youth Webinar Series, including: Melissa Thorne, Co-Moderator, HB Alumni Network & Youth Facilitator, Steph Di Martino, Life Skills Coach and Kristen English, Therapeutic Recreation Specialist

“Still Have Questions? We Have Answers!”

Watch on YouTube

November 17 at 7:00 p.m. ET

Who should attend
Youth from the hydrocephalus and spina bifida communities, ages 14-21. Parents are welcome to attend this webinar in support of their minor children.

What to expect
In this webinar, Melissa, Steph and Kristen from Holland Bloorview will provide participants with a recap and overview of the key points of each webinar in our Youth Webinar Series. Participants will also be given the opportunity to participate in a breakout room with a clinician. Melissa, Steph and Kristen will follow their presentation with a general question and answer session.

Have questions you want to ask any of our presenters? Need more information?
Send your questions in advance of any or all webinars. Please submit your questions to awalters@hydrocephalus.ca or info@hydrocephalus.ca

 

HEALTH AND MENTAL HEALTH

Anxiety, Depression, and Hydrocephalus in Children and Adolescents

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of parents and siblings of individuals with hydrocephalus.

Watch Now >

 

Anxiety, Depression, and Hydrocephalus in Adults and NPH

(You Tube)

This presentation will provide attendees with information and research regarding mood disorders that frequently occur in individuals with hydrocephalus. The discussion will include an emphasis upon incidence, prevention, and individual positive coping/adjustment. Discussions will also include family experiences of hydrocephalus and adjustment/coping experiences of caregivers of individuals with hydrocephalus.

Watch Now >

The Healthiest You: Finding Balance Through Nutrition and Lifestyle Techniques

(You Tube)

Join Bethany Holmes, CHHC, in discussing how to find balance through nutrition and lifestyle techniques. This session will focus on self-care and whole-body wellness for healing. Bethany will share her personal story of going through brain surgery and her recovery and healing process. You will learn the importance of eating real foods to fuel your brain and body, giving you the nutrients and energy you need to feel your best. In this session, you will also learn several lifestyle techniques that will help cultivate self-love and appreciation and how to better cope with anxiety and stress. We will also discuss balancing health with social life, work and everyday responsibilities.

Watch Now >

 

 

Dec
7
Wed
02 – OPEC – Oregon Parenting Education Collaborative – Parenting Education Resources
Dec 7 all-day

 

PARENTING EDUCATION RESOURCES

OPEC has a new website! Visit health.oregonstate.edu/opec for the most update OPEC information. ORParenting.org will be phased out by the end of 2022.

OPEC HUBS IN OREGON

About OPEC Hubs

The Oregon Parenting Education Collaborative (OPEC) supports a statewide network of parenting “Hubs.” As part of their role, OPEC Hubs:

  • Provide infrastructure to support parenting education efforts across their region, serving as a “go-to” place for families and community partners related to parenting resources and programs, support professional development opportunities for parenting education professionals, and collect data
  • Foster community collaboration to coordinate parenting programs across community partners, build relationships between cross-sector partners, and leverage available resources in support of families
  • Expand access to and normalize parenting education programs through a combination of direct service and mini-grants to partner organizations to meet the needs of all families in their communities. OPEC Hubs support a blend of universal and targeted parenting programs that are evidence-/research-based and culturally-responsive

The OPEC Logic Model illustrates the strategies, outputs, and outcomes of this work.

Ready to get connected? Your local OPEC Hub can connect you with in-person and remote parenting classes, workshops, resources, and family events in your community.

OPEC Facebook Page

https://www.facebook.com/OPECParentingEd/

Select From the Counties listed below to fund your HUB

FOR PARENTING EDUCATORS

Resource Tip Sheets

Parenting Education Curricula Resources

 Training Opportunities

Research

Program Fidelity Rating Tools

Additional Resources

OPEC GRANTEE SITES

Grantee Directory

Contact information for each of the OPEC Parenting Education Hubs is listed below.


OPEC Parenting Hubs



Building Healthy Families:
Baker, Malheur, Wallowa

Maria Weer
Executive Director
541.426.9411
mweer@oregonbhf.org

Clackamas Parenting Together:
Clackamas

Chelsea Hamilton
Clackamas OPEC Hub Coordinator
503.367.9116
chamilton@co.clackamas.or.us

The Family Connection:
Jackson, Josephine

Bethanee Grace
Program Co-Coordinator
541.734.5150 ext. 1042
bgrace@socfc.org

Diana Bennington
Program Co-Coordinator
541.734.5150 ext.1050
Diana.Bennington@socfc.org

Family Resource Center of Central Oregon:
Crook, Deschutes, Jefferson

Dee Ann Lewis
Executive Director
541.389.5468
deeannl@frconline.org

Kim Pitts
Program Logistics Coordinator
541.389.5468
kimp@frconline.org

First 5 Siskiyou:
Siskiyou, CA

Karen Pautz
Executive Director
First 5 Siskiyou
530.918.7222
karenpautz@first5siskiyou.org

Four Rivers Early Learning & Parenting Hub:
Gilliam, Hood River, Sherman, Wasco, Wheeler

Christa Rude
Regional Coordinator
541.506.2255
christa.rude@cgesd.k12.or.us

Shira Skybinskyy
Parenting Hub Assistant Director
sskybinskyy@cgesd.k12.or.us

Frontier Hub:
Grant, Harney

Donna Schnitker
Hub Director
541.573.6461
schnitkd@harneyesd.k12.or.us

Patti Wright
OPEC Grant Coordinator
541.620.0622
wrightp@harneyesd.k12.or.us

LaneKids:
Lane

Claire Hambly
Education Program Manager
541.741.6000 ext 141
chambly@unitedwaylane.org

Emily Reiter
Education Program Specialist
541.741.6000
ereiter@unitedwaylane.org

Marion & Polk Early Learning Hub, Inc.:
Marion

Lisa Harnisch
Executive Director
503.967.1187
lharnisch@earlylearninghub.org

Tiffany Miller
Communication Specialist and Parent Education Associate
503.485.3291
tmiller@earlylearninghub.org

Margie Lowe
Performance and Fiscal Officer
503.559.9610
mlowe@earlylearninghub.org

Mid-Valley Parenting:
Polk, Yamhill

Brent DeMoe
Director, Family & Community Outreach
503.623.9664 ext. 2118
demoe.brent@co.polk.or.us

Stephanie Gilbert
Early Learning and Family Engagement Coordinator
503.623.9664 ext. 2368
gilbert.stephanie@co.polk.or.us

Northwest Parenting:
Clatsop, Columbia, Tillamook 

Dorothy Spence
Early Learning & Parenting Education Hub Coordinator
503.614.1682
dspence@nwresd.k12.or.us 

Elena Barreto
Regional Coordinator
503.614.1443
ebarreto@nwresd.k12.or.us

Parenting Success Network:
Benton, Linn

Mike Jerpbak
Department Chair, Parenting Education
541.917.4891
wolfej@linnbenton.edu

Sommer McLeish
Coordinator (Lincoln County)
541.557.6215
smcleish@samhealth.org

Parenting Together Washington County:
Washington

Leslie Moguil
Senior Program Coordinator
503.846.4556
leslie_moguil@co.washington.or.us

Pathways to Positive Parenting:
Coos, Curry

Charity Grover
Parenting Lead
541.266.3909
charityg@scesd.k12.or.us 

Take Root:
Douglas, Klamath, Lake

Julie Hurley
Parenting Education Coordinator
Douglas/Lake/Klamath
541.492.6607
julie.hurley@douglasesd.k12.or.us

Susan Stiles-Sumstine
Assistant Parenting Hub Coordinator
Douglas/Lake/Klamath
541.492.6604
susan.stiles-sumstine@douglasesd.k12.or.us

Sanora Hoggarth
Parenting Education Coordinator for Klamath County
sanora.hoggarth@douglasesd.k12.or.us

Umatilla Morrow Head Start, Inc.:
Morrow, Umatilla, Union

Aaron Treadwell
Executive Director
541.564.6878
atreadwe@umchs.org

Mary Lou Gutierrez
Parenting Education Coordinator
541.667.6091
mgutierr@umchs.org

Jen Goodman
Family and Community Partnership Manager (Union County)
541.786.5535
goodmajd@eou.edu

OPEC Funded Parenting Education Curriculum



Abriendo Puertas /Opening Doors

Suicide Prevention for Parents
A guide for parents and caregivers while at the hospital emergency department

 

PARENTING EDUCATION BOOK LISTS

CUTTING OUT SCREENTIME: OUR FAMILY’S EXPERIMENT January/February 2022 

Run Wild 

by David Covell 

Daniel Finds a Poem 

by Micha Archer 

What to do with a Box 

by Jane Yolen & Chris Sheban

GETTING IN TOUCH 

WITH NATURE 

March 2022 

Green Green: A Community Gardening Story by Marie Lamba 

Lola Plants a Garden / Lola planta un jardín by Anna McQuinn 

Up in the Air: Butterflies, Birds, and 

Everything Up Above 

by Zoe Armstrong 

Greenie grows a garden / Verdecito cultiva un jardín (bilingual) 

by Harriet Ziefert 

Hasta Las Rodillas / Up to My Knees 

by Grace Lin (bilingual 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


GETTING MESSY 

AND BEING HANDS-ON April 2022 

Mix It Up! 

by Hervé Tullet 

Pinta Ratones 

by Ellen Stoll Walsh 

Edward Gets Messy 

by Rita Meade 

Ultimate Slime: 100 new recipes and projects for oddly satisying, Borax-free slime 

by Alyssa Jagan 

Mud 

by Mary Lyn Ray 

SIBLINGS & FRIENDS 

May 2022 

How Do Dinosaurs Stay Friends? / Cómo son buenos amigos los dinosaurios 

by Jane Yolen 

The Evil Princess vs. The Brave Knight by Jennifer Holm 

How to Apologize 

by David LaRochelle 

Maple & Willow Together / Arce y Sauce juntas 

by Lori Nichols 

Meesha Makes Friends 

by Tom Percival

GETTING CREATIVE WITH RECYCLABLES 

June 2022 

Recycle and Remake, 

edited by Hélene Hilton 

Rainbow Weaver / Tejedora del arcoíris (bilingual) 

by Linda Elovitz Marshall 

Out of the Box 

by Jemma Westing 

100 Easy STEAM Activities: awesome 

hands-on projects for aspiring artists and engineers 

by Andrea Scalzo Yi 

Recycling Crafts by Annalees Lim 

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 


BUILDING EMPATHY USING STORYBOOKS 

July 2022 

A Kids Book About Epathy 

by Daron K. Roberts 

I am Human: A Book of Empathy 

by Susan Verde 

Caring with Bert and Ernie: A Book 

About Empathy 

by Marie-Therese Miller 

Empatía: una guia para padres e hijos by Patricia Fernández Bieberach 

Everyone… 

by Christopher Silas Neal 

GOING TO THE DENTIST August 2022 

ABC Dentist 

by Harriet Ziefert 

Does a Tiger Go to the Dentist? 

by Harriet Ziefert 

Max va al dentista 

by Adria F. Klein 

What to Expect When You Go to the Dentist by Heidi Eisenberg Murkoff 

Vamos al Dentista 

ALL ABOUT STRESS 

September 2022 

How Big Are Your Worries Little Bear? By Jayneen Sanders 

The Rabbit Listened 

by Cori Doerrfeld 

Breath Like a Bear: 30 Mindful 

Moments For Kids to Feel Calm and 

Focused Anytime, Anywhere 

by Kira Wiley 

Plantando semillas : la práctica del 

mindfulness con niños 

by Nhá̂t Hạnh 

Scaredy Squirrel 

by Melanie Watt

*This booklist provides recommendations 

based on the content of our monthly 

parent newsletter: Parenting Together. 

https://orparenting.org/parents/newsletters/ 

ALL ABOUT CALM 

October 2022 

Mindfulness Moments for Kids: 

Hot Cocoa Calm 

by Kira Willey 

Calm Monsters, Kind Monsters: a Sesame Street Guide to Mindfulness 

by Karen Latchana Kenney 

You Are a Lion!: And Other Fun Yoga Poses / Eres un león!: posturas de yoga para niños 

s

GET INTO THE KITCHEN November 2022 

Thank You, Omu! / ¡Gracias, Omu! 

by Oge Mora 

Cooking Class: 57 Fun Recipes Kids 

will Love to Make (and Eat!) 

by Deanna F. Cook 

Plaza Sésamo: C es de cocinar – recetas de nuestra comunidad 

by Susan McQuillan 

Kalamata’s Kitchen 

by Sarah Thomas 

FAMILY CELEBRATIONS December 2022 

Dumpling Day 

by Meera Sriram 

Alma and How She Got Her Name / Alma y cómo obtuvo su nombre 

by Juana Martinez-Neal 

The Heart of Mi Familia 

by Carrie Lara <